Uterine Stage IV B Reoccurence Vagina
Comments
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Sounds about as good news as
Sounds about as good news as you can hope for, and hopefully, you can rest a little over the holiday season. You have been through so much ... a little fun and salsa for a little while sounds like a great idea!
I'm finding that bit out about questioning as well. Wait ... WHY do I "have" to accept dire outcomes? I understand it's not puppies and unicorns and rainbows, and that Stage 4B UPSC (diagonsed) is brutal ... but WHY should I just cower in a corner? Why can't I expect my medical staff to be as committed as I am to living a longer life? I see many ladies here with such doctors and medical personnel. I fear it will make a big difference in future treatments for me. I want doctors to fight WITH me on this. This is why I am really considering that second doctor for my surgery and follow-up. (I see you've been having problems with certain doctors yourself.)
I hope you now have doctors are also dedicated to having you live with this as long as they can provide for you ... and longer. Much longer.0 -
You are rightevolo58 said:Sounds about as good news as
Sounds about as good news as you can hope for, and hopefully, you can rest a little over the holiday season. You have been through so much ... a little fun and salsa for a little while sounds like a great idea!
I'm finding that bit out about questioning as well. Wait ... WHY do I "have" to accept dire outcomes? I understand it's not puppies and unicorns and rainbows, and that Stage 4B UPSC (diagonsed) is brutal ... but WHY should I just cower in a corner? Why can't I expect my medical staff to be as committed as I am to living a longer life? I see many ladies here with such doctors and medical personnel. I fear it will make a big difference in future treatments for me. I want doctors to fight WITH me on this. This is why I am really considering that second doctor for my surgery and follow-up. (I see you've been having problems with certain doctors yourself.)
I hope you now have doctors are also dedicated to having you live with this as long as they can provide for you ... and longer. Much longer.You are right...you need a doctor who is committed to your wellness...and making you feel like he/she is fighting along with you...a fellow warrior...
I'm blessed to have 2 such doctors...my gyno oncologist never once spoke about life expectancy or any of the bad stuff and she told me not to google...and I know she and my pharmacologist did all they could before handing me over to my amazing radiology oncologist. He is named Angel...so I have an Angel. He was so worried I was going to back out of radiation that he called my gyno oncologist and told her "I don't care who she goes to but please make her do it because it is the only way we can give her a future". He's totally invested in helping me---so much so he stays late for scan results and studies them closely (that's how he found my cancer in my neck lymph glands even though the radiologist who read the scans missed it). He once spent a weekend double checking my scans. I have a team. They fight for me.
You deserve the same evolo58...you deserve to have a doctor that makes you feel like you are a priortiy and that he/she can give you a future...if you don't feel that way now find someone who does if you can...I wish I could send my Angel to you...
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Pulmonary Embolism Blood Clot PE on CT Scan
Last week I went for a CT scan. A large pulmonary embolism was found near my heart, and when I was taken to the emergency room another clot was found in my upper right leg by ultrasound. I was hospitalized for two days and put on blood thinner. The doctors started me on drip heparin and then on the second day Lovenox injections twice a day which I will have to take forever. Also, on my second night I ran a fever, and the doctors decided to keep me hospitalized for an extra day. They found that I had a UTI and started me on antibiotics, levofloxacin. So my trip to get a CT scan turned out differently than what I thought it would.
My cancer is worsening. I knew that a month ago and I informed the doctor, but she insisted that I go through another month of gemzar/cisplatin chemo. I have not had blood clots before. I did feel weak before I went for the CT scan, but I thought it was anemia. I also had a dry non-productive cough which I attributed to allergies. I think the worsening cancer, the gemzar/cisplatin chemo which weakened my immune system and did nothing to halt my cancer and the UTI all contributed to my pulmonary embolism (PE). I am still waiting to talk to the doctor about future treatments. I am definitely going to put my foot down and refuse to complete a treatment if I know it is not working and/or if the side effects are too severe. I feel pretty good today as I type this, but I don't want to live with constant fatigue. Fortunately, I have no pain and I want to keep it that way. The doctors call my PE, an asymptomatic pulmonary embolism. My embolism is a collection of clots not just one clot. I think it's been developing since at least the last month. It will probably take a very long time to dissolve.
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linmk, I am so sorry to hear
linmk, I am so sorry to hear what has happened. Please take care of yourself while the clots dissolve.
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Thank youNoTimeForCancer said:linmk, I am so sorry to hear
linmk, I am so sorry to hear what has happened. Please take care of yourself while the clots dissolve.
I appreciate your sympathy NoTimeForCancer.
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linmk, Wow! What a time you
linmk, Wow! What a time you have had. I'm so sorry to hear this. Glad you are feeling better and really glad to hear your spunk! You continue to fight for yourself. No one knows your body like you do. I hope you heal quickly and can find a solution that gets all of this under control. Please come back and let us know how you are doing.
Love and Hugs,
Cindi
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Wow!
So sorry you are going through all this. Do you think maybe eventually they will let you go on something like Eliquis instead of the shots. I hated those. Stay strong!
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Oh, craplinmk said:Pulmonary Embolism Blood Clot PE on CT Scan
Last week I went for a CT scan. A large pulmonary embolism was found near my heart, and when I was taken to the emergency room another clot was found in my upper right leg by ultrasound. I was hospitalized for two days and put on blood thinner. The doctors started me on drip heparin and then on the second day Lovenox injections twice a day which I will have to take forever. Also, on my second night I ran a fever, and the doctors decided to keep me hospitalized for an extra day. They found that I had a UTI and started me on antibiotics, levofloxacin. So my trip to get a CT scan turned out differently than what I thought it would.
My cancer is worsening. I knew that a month ago and I informed the doctor, but she insisted that I go through another month of gemzar/cisplatin chemo. I have not had blood clots before. I did feel weak before I went for the CT scan, but I thought it was anemia. I also had a dry non-productive cough which I attributed to allergies. I think the worsening cancer, the gemzar/cisplatin chemo which weakened my immune system and did nothing to halt my cancer and the UTI all contributed to my pulmonary embolism (PE). I am still waiting to talk to the doctor about future treatments. I am definitely going to put my foot down and refuse to complete a treatment if I know it is not working and/or if the side effects are too severe. I feel pretty good today as I type this, but I don't want to live with constant fatigue. Fortunately, I have no pain and I want to keep it that way. The doctors call my PE, an asymptomatic pulmonary embolism. My embolism is a collection of clots not just one clot. I think it's been developing since at least the last month. It will probably take a very long time to dissolve.
Oh, crap. You are a trooper and dealing with so much; I thank god it's not active pain, though. Lack thereof is definitely a good sign. I'd put my foot down, too, if I were you: it's a vicious cycle where the drugs they give you in an attempt to cure your disease wind up weakening your system such that the disease can progress. It's totally illogical. Refresh my memory - did you have Foundation One testing?
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Linmk
I just read your posting. My thoughts are with you as you try to decide what is best for you. There are no easy answers. God how I wish no woman would ever be diagnosed with cancer again. ((Hug))
Lori
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Never mindderMaus said:Oh, crap
Oh, crap. You are a trooper and dealing with so much; I thank god it's not active pain, though. Lack thereof is definitely a good sign. I'd put my foot down, too, if I were you: it's a vicious cycle where the drugs they give you in an attempt to cure your disease wind up weakening your system such that the disease can progress. It's totally illogical. Refresh my memory - did you have Foundation One testing?
Never mind, I read back and you did have F1 testing. Sorry for my lack of focus. B
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I am so sorry that you are
I am so sorry that you are going through tough times, Linmk. I was wondering.. Since you are Type 1 endometrial cancer. Have your doctors considered any hormonal treatment? Did they test the hormonal receptors of your tumor? Regardless of their responsiveness I think hormone therapy is a low risk treatment and cannot hurt to try. Wishing you the best!
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I’m so sorry to read this. I
I’m so sorry to read this. I had a PE many years ago and it’s no fun. It is something I worry about a lot though I’ve never had another one. Chemo alone thickens the blood. While I had the shots I was later put on pills instead for about 6 months with testing every month. Prayers that your extreme problems are solved.
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Thank YouTeddyandBears_Mom said:linmk, Wow! What a time you
linmk, Wow! What a time you have had. I'm so sorry to hear this. Glad you are feeling better and really glad to hear your spunk! You continue to fight for yourself. No one knows your body like you do. I hope you heal quickly and can find a solution that gets all of this under control. Please come back and let us know how you are doing.
Love and Hugs,
Cindi
Cindi, I appreciate your support.
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Blood ThinnerCheeseQueen57 said:Wow!
So sorry you are going through all this. Do you think maybe eventually they will let you go on something like Eliquis instead of the shots. I hated those. Stay strong!
Thank you for your support CheeseQueen57. I don't know anything about Eliquis. I don't mind giving myself shots in the stomach. I feel no pain. My sister has been on Lovenox for sevreal years for Protein C deficiency. It's a genetic trait that I don't have myself. She has developed hematomas from it. I hope that the doctors are doing all they can to help my friend. Be sure to tell us about your trip to Florida when you return.
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Exophytic Vagina Tumors
I've been asked how I knew that my cancer was getting worse. I knew because I have two exphytic ball shapped tumors growing out of my vagina. I could physically reach down and feel them growing outwards. Gemzar/cisplatin definitely were not shrinking them. I jokingly told the doctor that I would need a jock strap if the balls grew larger. Who knows maybe I'll grow a penis too. That would be a real transformation.
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Glad to see, somehow, you
Glad to see, somehow, you keep a sense of humor about it. I can't even imagine what his reaction to what you said, but I can tell you my office must wonder just what the heck I am laughing about.
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