extreme dry mouth wile sleeping

and I'm not talking about your tongue.

I hope you can make it through the next three treatments. Stopping or postponing is disheartening.

I also had, and sorry to tell you, still at time have, chronic dry mouth. I still wake up during the night, and my tongue is literally stuck to the roof of my mouth. I keep a big bottle of water by my bedside, which then creates several trips to the bathroom.  I never sleep solid through the night anymore. 

The only thing that I have found is to watch what I eat, and when the dry mouth is worse. For me it seems to be if I eat too much sugar or salt.  Of course, you are still in treatment, so it is probably the chemo and will not be helped much by watching what you eat. Give it a whirl though, and see if its worse after certain foods. 

When I had the mouth sores, I used a combination of warm water, salt and baking soda, swished that around my mouth and spat it out. I did it morning and night. It worked for the most part. My Oncologist suggested I do it every day, and if I had done it every day, I actually think I would not have had mouth sores. 

Good luck!

Tru

Xylimelts. They helped.  It's a mint tasting tablet that adheres gently to your inside cheek and stimulate salvia production.  It's over the counter in drugstores. 

Pam 

Trubrit said:

I've never heard of....

geographic tongue

My tongue has been white ever since chemo. It is permanently damaged, but doesn't seem to inhibit my taste buds. 

I had uncontrolled Thrush during chemo. They tried every medication at every strenth, but it didn't work until I stopped treatments. So, my guess is that is what caused the white tongue. I think it looks horrible when I talk, but I'm not looking at it, so whatever. 

Tru

It has white areas and red areas and pink areas and they have crooked edges so it kind of looks like a map. Sometimes it has white patches that don't come off. It looks like it's cracked but it's not. It's weird. And often it's sore or sensitive.

Jan

Trubrit said:

Stick it out

and I'm not talking about your tongue.

I hope you can make it through the next three treatments. Stopping or postponing is disheartening.

I also had, and sorry to tell you, still at time have, chronic dry mouth. I still wake up during the night, and my tongue is literally stuck to the roof of my mouth. I keep a big bottle of water by my bedside, which then creates several trips to the bathroom.  I never sleep solid through the night anymore. 

The only thing that I have found is to watch what I eat, and when the dry mouth is worse. For me it seems to be if I eat too much sugar or salt.  Of course, you are still in treatment, so it is probably the chemo and will not be helped much by watching what you eat. Give it a whirl though, and see if its worse after certain foods. 

When I had the mouth sores, I used a combination of warm water, salt and baking soda, swished that around my mouth and spat it out. I did it morning and night. It worked for the most part. My Oncologist suggested I do it every day, and if I had done it every day, I actually think I would not have had mouth sores. 

Good luck!

Tru

 

VERY funny comment! I also get dry mouth. Then if I drink a lot of water, I still have the dry mouth and I also have to pee a lot. Try to hang in there
-phil

Trubrit said:

Stick it out

and I'm not talking about your tongue.

I hope you can make it through the next three treatments. Stopping or postponing is disheartening.

I also had, and sorry to tell you, still at time have, chronic dry mouth. I still wake up during the night, and my tongue is literally stuck to the roof of my mouth. I keep a big bottle of water by my bedside, which then creates several trips to the bathroom.  I never sleep solid through the night anymore. 

The only thing that I have found is to watch what I eat, and when the dry mouth is worse. For me it seems to be if I eat too much sugar or salt.  Of course, you are still in treatment, so it is probably the chemo and will not be helped much by watching what you eat. Give it a whirl though, and see if its worse after certain foods. 

When I had the mouth sores, I used a combination of warm water, salt and baking soda, swished that around my mouth and spat it out. I did it morning and night. It worked for the most part. My Oncologist suggested I do it every day, and if I had done it every day, I actually think I would not have had mouth sores. 

Good luck!

Tru

 

What was the ratio of salt and baking soda?

JanJan63 said:

I haven't had it during chemo

I haven't had it during chemo but I had it terribly after having had a blood clot/cardiac arrest/stroke/coma situation. I'd wake up in the ICU and my tongue felt like it didn't belong to me, like a dead reptile sitting in my mouth. I was terrified that it would die or something and I wouldn't have a tongue anymore. It was because I was sleeping with my mouth open which I never normally do. They gave me Biotene for it but the effects didn't last long. They also tried hydrating my room but that didn't help, either. As I got better and was able to use my arms (I was paralyzed for some time after waking up from the coma) I could drink something and it eventually went away. But it was a horrible feeling while it lasted. Which is totally not helpful in any way other than that I sympathise with you. I was on Folfox when it happened.

For whatever it's worth I've had a geographic tongue off and on since all this started. My dentist thinks it's from the chemo. It can get really sensitive like I've burned it or been eating something sour.

Jan 

Both my dad and son have a geographical tongue but it is due to heredity for them.  It can be very sensitive for them if the spots tend to open up.  It is weird looking though.  My son has a very hard time eating tomatoes and he loves them.  Hope yours improves.

Kim