Endometrial Cancer dx - Lung nodules CT Scan

I was diagnosed with stage 1C, grade 2, endometrial adenocarcinoma in 1999, and one of the risk factors I had for recurrence was extensive LVSI.  I had several other risk factors which you don't appear to have such as outer-third myometrial tumor invasion, lower uterine segment involvement and a fairly large tumor, approximating 4 cm.  I was treated at that time with both internal and external radiation.  Chemotherapy was not standard of care in 1999 for early stage endometrial adenocarcinoma. 

If I were you, I would not only get a second gyn-onc opinion on your treatment plan, I would get a second opinion on your pathology by a gyn-pathologist.  For example, I'm puzzled by the finding regarding your fallopian tubes.  Has someone explained to you the meaning and significance of the statement: "Cancer was not found elswhere other than within the lumens of my fallopian tubes. Stated: detached fragments of endometrial carcinoma within the lumens only"?  After my diagnosis I called the pathologist directly to speak to him about findings on my pathology report.  You might want to touch base with the pathologist who wrote your report as a starting point.  Also, do you know whether your LVSI was extensive or more limited?  If it was not extensive, perhaps that may have also factored into your doctor's no chemotherapy or radiation recommendation (in addition to your young age), but only he can answer that question for you. 

If I were you, I would also see a pulmonologist.  You have more than just a few tiny nodules, which may or may not be of any significance.  You also have a "shadowing in the center of your chest," as well as a constant cough, shortness of breath, and tiredness.  Given these factors, I believe a consult with a pulmonologist is in order.  In 2009, I went to the ER for a chronic cough.  I had troubling findings on a chest CT.  I was misdiagnosed in the ER, and it took me several months to get a correct diagnosis, but eventually I was diagnosed with and treated for eosinophilic pneumonia.  Along the way, I was told that there was a suspicion of metastatic cancer based on the CT findings, which eventually was determined not to be the case.  But while I did not have metastatic cancer to the lung, I had a very serious medical condition that required a lengthy course of treatment. 

Good luck with getting answers to all your questions.  I wish you the best of health.

calliegirl said:

Thank you!

for all your responses, advice, support and concern...Yes, I am thinking strongly about getting a second opinion. I truly do not feel comfortable with the path report and my oncologist telling me that LVSI was present

and yes the nodules are way too small to biopsy...i was thinking to get the CT Scan done in March, compare it to Dec 2017 images, and if there are changes see a lung specialist...

it's all so strange...because I try my very very best not to get paranoid or worried with a new pain or discomfort, especially in my pelvic area...but there are some days it's too difficult not too...

Again many thanks ...hugs and strength to you all Cheers! XO

Oh, Calliegirl, we can all relate. It is normal, after a dx, such as ours to immediately assume it's returned, whenever something doesn't feel right. I can't begin to tell you how much my body has changed, in my lower abdomen - mostly in my bladder. It has never been right since the surgery and does odd things. I can't tell you how many times I have been to Urgent Care thinking I have a bladder infection, for them to only tell me everything is normal.  As much as I like to care for myself in a healthy way, I welcome drinking the barium and having my CT scans.  When they come back NED, I seem to be able to rest for the next six months. When they first told me I had the nodules, I too, had shortness of breath.  Not sure if it was because I knew they were there or if there was something truly going on.  However, after I got the second opinion, I no longer thought twice about them.  Again, I will be having my scan in the next few weeks to see if they have grown any in the past six months. Do what you have to, to find peace in this journey.

We can never be too vigilant. I also had a spot found on my lung at the time of my total hysterectomy. Consult with pulmonologist and watch for two years. She determined it was scar tissue probably from having had pneumonia at some point previously. It is so anxiety causing. The doctors often are concerned about the rate of false positives imaging tests can create but they also worry about not doing the imaging procedure and missing cancer. Praying it is just scar tissue.

Lori

PET can’t hurt. You know physicians have insurance companies watching the types of imaging physicians do. They actually hire companies that have decision making algorithms that doctors are suppose to follow in terms of what imaging technology to start with and when it is appropriate to do one imaging procedure over another less costly imaging procedure. I never had a PET scan but then I had endometrial uterine cancer. I only had a CT scan once and that was before my hysterectomy. If you want a PET scan tell your oncologist or pulmonologist why you think you should have one. Ask your doctor why they wouldn’ t allow you to have one. Demand a PET scan unless your doctor can give excellent rational why not. It is unconscionable that two other doctors missed the cancer in lung. Believe me their is a variance in physicians abilities to read a wide variety of imaging technology results! 

I feel for you when you say you are confused.  You need answers and ASAP.  The worrying and anxiety is nothing to them but to us, a big one!  Please see what else you can find out and from a different source if you can.

I don't think cancer can spread that quickly not with the type you have ben diagnosed with.  I had the exact same diagnosis only no mention of lymph nodes.  I wish I could help more.  But I don't understand it either.  You are waaay to young for this.

Karen

TLC1ANGEL2018 said:

Endometrial x 4

 

I was diagnosed in 2004, went through a complete hysterectomy & 5 1/2 weeks external radiation & 3 internal radiation treatments.  I was stage 3 - entering Stage 4.  My cancer returned a year later, and it was attached to my spleen & pancreas.  They removed my spleen, the tail end of my pancreas, and a spot on my stomach.  In 2013, a mass appeared in my abdomen & it was removed and I was on the chemo pill for almost 3 years.  I recently had CT's showing growing nodules in my lungs.  I've gone through blood work with a pulmonary dr & they feel it's reoccurring endometrial.  I'll have a CT again in about 2 weeks to determine the final results & treatment.  I was hoping after 3 times, I was done with Cancer, but I guess the battle continues.

 

TLC, I had a hard time finding you post in this thread but was determined to get in there.  I am so sorry to hear that you continue to fight this beast, and hope they can help you find something again to beat it back.  Hugs dear one.

Hi Callie!  I was just wondering how you are doing now and what you found out about the lung nodules? Hope this finds you well!