Haven’t been around much lately

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Comments

  • rcdeman
    rcdeman Member Posts: 263 Member
    #22
    Hang in there and stay in the faith!

    Dear Lou Ann,


    I am very glad to hear from you. Your presence here on this board is truly encouraging.

    However, I am sorry to hear that your physical strength has gone downhill. The drop in CA-125 is encouraging. Don't lose hope and stay strong. I am praying for you each day.

    Love,
    Rebecca

  • HorseLvr
    HorseLvr Member Posts: 102
    #23
    So sorry that things are not

    So sorry that things are not going well, LouAnn. I hope you get good news and there is something they can do for you.

  • cindy0519
    cindy0519 Member Posts: 173
    #24
    Oh Lou Ann.  I read your post

    Oh Lou Ann.  I read your post on the Uterine FB group and tried several times to respond but just simply couldn't find the words for some reason.  You have always been, and are now such a shining beacon of strength and hope.  I pray that you find comfort and that between Foundation One and your Onco they come up with a plan that helps you to be more comfortable at a minimum. 

     

     

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #25
    I, too, have been struggling

    to find the right words. Please know I'm thinking about you and hoping your medical team finds more more ammo for your battle. 

    Have you ever tallied the number of children you taught? I am awed by the number of humans a good teacher helps to shape over a long career. What a contribution to our society. Thank you.

  • henhill
    henhill Member Posts: 123
    #26
    LouAnn

    Just a shout out to let you know I am thinking of you and keeping you in my prayers.  May God keep you strong.

  • cheerful
    cheerful Member Posts: 261 Member
    #27

    Hi LouAnn:

      I will keep you in my thoughts and prayers.  I do hope that your oncologist can continue to help you battle UPSC. It sounds as if he is a great oncologist and is really helping you.   I am sorry to hear that you are in pain.  That is good news that your CA level has come down a bit. Hopefully, it will continue to come down even more. It is great that you have such a good attitude as that is so important.

      Hopefully, they will come up with a "cure" for our cancer. That would be such great news. Do keep us ladies posted.  

    Cheerful

    a/k/a Jane

  • MrsBerry
    MrsBerry Member Posts: 102 Member
    edited January 2018 #28
    Lou Ann, I am new here, just

    Lou Ann, I am new here, just wanted to say Hello and let you know I am one more soul sending you love and light. 

     

    Hugs, MrsBerry

  • Unknown
    Unknown
    #29
    Hi

    Love you and praying for you.  You are my warrior woman.  Hugs Nancy

  • Gardena
    Gardena Member Posts: 102
    #30
    Lou Ann

    I'm sorry to read you're having pain. I went thru a bout of pain last year and I empathise with you - it can be debilitating. Opioids didnt get rid of my pain so I tried cannabis and it worked for me while my docs sorted out the source of my pain/treatment plan.

    I'd like you to know I have looked to you many times as an inspiration. Your phase, 'you've had more good days than bad' when dealing with this disease has helped center me on my bad days and you always encourage us on this hoard to have hope. You are an incredible example of hope as you warrior on. You rock Lou Ann. Thank you for being you and being on this board. You're in my heart and in my prayers, and I hope you find pain relief soon! 

    And congratulations on the lower ca125!

    Gardena

     

     

  • SandyD
    SandyD Member Posts: 130
    #31
    Lou Ann

    I'm so sorry to hear the spinal tumor hasn't responded to treatment and that you're dealing with a lot of pain. At the same time it's also good to hear that there is no new spread and your CA 125 is down. You're an incredible warrior and an inspiration for me and so many others who find ourselves dealing with this challenge! Thinking of you and hoping that between your onco and Foundation One there's an option that will work for you!

     

  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #32
     

     

    Lou Ann,

     

    I too do not come to the site a lot any more.  I am so sorry to hear your news.  I pray daily for all the ladies, their families and caregivers.  I pray that you and your dr keep a positive attitude because that is key.  No one knows their expiration date so as long as there is hope there is a chance that some new drug will be found. 

     

    I wish you find the strength to hang in there.  Keep us posted and we all we keep praying for you. trish

     

  • MugsBugs
    MugsBugs Member Posts: 111 Member
    edited January 2018 #33
    Praying For You!!!

    Lou Ann - I am new to this group and I am so sorry that you are going through this!  You will be in my prayers -  good luck!

  • Big Sister 5
    Big Sister 5 Member Posts: 18
    #34
    Praying

    Lou Ann,

    My sister used marijuana during the chemo treatments and it was very helpful. You may want to try it. I am praying for you and asking for Jesus to hold you tight! 

    Hugs to you.

     

  • Sandy3185
    Sandy3185 Member Posts: 229 Member
    #35
    Oh Lou Ann! I haven’t been on

    Oh Lou Ann! I haven’t been on the board in a long time and was so sorry to see your post. I so hope the doctor can find a way to relieve your pain. Maybe a nerve block? I agree with others who have recommended marijuana, it has been a great help to several people I know who suffer from chronic pain. My granddaughter is only 21 but has been afflicted with endometriosis since she was 16. The pain she suffers is quite debilitating and she has found that medical marijuana does offer some relief.

    my thoughts and prayers are with you, Sandy

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