Oxaliplatin put back into mix

Woodytele
Woodytele Member Posts: 163
in Colorectal Cancer #1

Has anyone been taken off the Oxi and then put back on with success?  Me CEA has been creeping up, so onc added Oxi to my latest infusion at a reduced dose.  I previously had 13 infusions with the Oxi, then taken off for past six months  to the neuropathy.  If anyone has similar experience let me know.  Peace!

Comments

  • NewHere
    NewHere Member Posts: 1,428 Member
    #2
    I Did Not Have It Put Back In

    When my neuropathy did not resolve after my 8th session with the Oxi, the Oncologist pulled it before the 9th due to the risk for permanent and substantial issues.  (He said the change is not linear, once it starts, it snowballs.)  And he was pretty clear I would not go on it again.  A couple of months ago I was told it is back and inoperable in lymph nodes.  At some point I will go on FOLFORI this time (did FOLFOX for 12 treatments, with 8 sessions with the Oxi initially).   Was told they still would not put me back on the Oxi part at this time.

    So if you go back on, make sure to monitor this carefully and do not ignore it.

    Best of luck.

    And I just have to ask (maybe I have and forgot due to chemo brain)  Fender player?  Based on your screen name :)

  • Mikenh
    Mikenh Member Posts: 777 Member
    edited January 2018 #3
    NewHere said:

    I Did Not Have It Put Back In

    When my neuropathy did not resolve after my 8th session with the Oxi, the Oncologist pulled it before the 9th due to the risk for permanent and substantial issues.  (He said the change is not linear, once it starts, it snowballs.)  And he was pretty clear I would not go on it again.  A couple of months ago I was told it is back and inoperable in lymph nodes.  At some point I will go on FOLFORI this time (did FOLFOX for 12 treatments, with 8 sessions with the Oxi initially).   Was told they still would not put me back on the Oxi part at this time.

    So if you go back on, make sure to monitor this carefully and do not ignore it.

    Best of luck.

    And I just have to ask (maybe I have and forgot due to chemo brain)  Fender player?  Based on your screen name :)

    Everything that I've seen

    Everything that I've seen indicates that Oxaliplatin accelerates, even with linear dosages and it's a bit scary being on it. Kudos to those that have made it throught the entire course - I don't know that I could do it right now.

  • Woodytele
    Woodytele Member Posts: 163
    #4
    NewHere said:

    I Did Not Have It Put Back In

    When my neuropathy did not resolve after my 8th session with the Oxi, the Oncologist pulled it before the 9th due to the risk for permanent and substantial issues.  (He said the change is not linear, once it starts, it snowballs.)  And he was pretty clear I would not go on it again.  A couple of months ago I was told it is back and inoperable in lymph nodes.  At some point I will go on FOLFORI this time (did FOLFOX for 12 treatments, with 8 sessions with the Oxi initially).   Was told they still would not put me back on the Oxi part at this time.

    So if you go back on, make sure to monitor this carefully and do not ignore it.

    Best of luck.

    And I just have to ask (maybe I have and forgot due to chemo brain)  Fender player?  Based on your screen name :)

    Thanks

    i got a bunch of guitars. the damn Oxi has screwed up my fingers, so I use a slide a lot Rather than picking out chords. 

  • aoccc2015
    aoccc2015 Member Posts: 37
    #5
    6 months after 12 rounds of

    6 months after 12 rounds of oxi still have some numbness that comes and goes, dont really notice it working but do typing or if i think about it lol...hands and feet arent needed if im dead. Ill do more if i have to. Thank you god for more time alive, that stuff did wonders fast.

  • NewHere
    NewHere Member Posts: 1,428 Member
    #6
    Woodytele said:

    Thanks

    i got a bunch of guitars. the damn Oxi has screwed up my fingers, so I use a slide a lot Rather than picking out chords. 

    I Hear That

    I was messed up for awhile.  Was so strange.  I had to look at the fretboard, felt like my fingers were on novacaine and could not play a lick (as it were Laughing)  It came back.  Couple of other guitar players on the board that I know of.  I have a Tele with a single coil and a humbucker.  Maple neck (I usually prefer rosewood in general) and more a Start and Les Paul guy, but this guitar just called to me in the store.  I LOVE it.  The frets are perfect.  Cannot believe how long I have it now. 

     

  • Woodytele
    Woodytele Member Posts: 163
    #7
    NewHere said:

    I Hear That

    I was messed up for awhile.  Was so strange.  I had to look at the fretboard, felt like my fingers were on novacaine and could not play a lick (as it were Laughing)  It came back.  Couple of other guitar players on the board that I know of.  I have a Tele with a single coil and a humbucker.  Maple neck (I usually prefer rosewood in general) and more a Start and Les Paul guy, but this guitar just called to me in the store.  I LOVE it.  The frets are perfect.  Cannot believe how long I have it now. 

     

    Tele

    great to play guitar, it’s my solace.  Something magical about it. Good to hear of a guitar player on the board!

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited January 2018 #8
    Oh my goodness

    I'm not sure how you got through that many rounds with oxy.  I've been on medication for 9 years due to neuropathy caused by that medication.  Some doctors feel that only a certain amount of that is what is going to help.  If you can tolerate it and your doctor thinks that this is the solution and it doesn't bother you or cause you harm than this a decision you have to make.  I'd never be able to go on it again. Wishing you well.

    Kim

  • Mikenh
    Mikenh Member Posts: 777 Member
    edited January 2018 #9
    I'm silently screaming after

    I'm silently screaming after two rounds. I will be really annoyed if I can't hit tennis balls in the future.

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