Pathology Results Finally

So sorry not what you were expecting

However it is good news that grade is 2

there is quite a few people on here with stage 3

Many reports state that you have a 80% change of five year non recurrence

I wish  you could have had better news 

Did they mention any plans for further treatment 

Annie

Also stage T3a at 4.0cm (Had focal parenephric fat invasion).  Had two clean scans so far.   While the probability goes up for reoccurrence, many have survived and done well.  Just stay on top of it and make sure you are getting scans every three months for the first few years and scans every six months to a year thereafter.  Since I am only 35, likely will need scans the rest of my life, but remembering to stay positive, live healthy and cherish fun times with my family!

sundaydriveguy said:

Kidneystoneblessing

Thank you for the comments!

 

I am also 35. Im torn about having kidney cancer at this age. Sometimes I think it's a good thing since my body is still in decent shape (No diabetes, high cholesterol, high blood pressure, etc.) to fight, but then sometimes I'm worried it's a bad thing. I mean if I got it 30 years early (according to ACS) maybe my body has some sort of gene mutation or some unknown underlying issue that caused it at a younger age.

 

As far as the scans, I'm also a little worried about that. Seeing that we're 35, that's a lot of radiation in our future. Has anyone done any serious research on the radiation doses for multiple CT scans every 3 months for a year or 2? I know it is needed for detection, I just hope it doesn't cause more harm.

 

Mike

I haven't done serious research but I googled ct scan radiation.

I don't remember the exact numbers but every ct scan is thought to increase cancer risk by 1/1000.  I read somewhere the other day that up tp 50% of people are likely to get cancer at some time.

So, if your probability of getting cancer is 50% then getting 10 ct scans will increase it to 51%

That doesn't sound too bad, but my natural inclination is to minimise the scans. I recently had a reaction to the contrast. Three weeks later the skin is still peeling on my feet.

I think my follow ups in future will be ultrasounds... I will probably try to arrange at least one more ct scan in one or two years.

Steve.

sundaydriveguy said:

Kidneystoneblessing

Thank you for the comments!

 

I am also 35. Im torn about having kidney cancer at this age. Sometimes I think it's a good thing since my body is still in decent shape (No diabetes, high cholesterol, high blood pressure, etc.) to fight, but then sometimes I'm worried it's a bad thing. I mean if I got it 30 years early (according to ACS) maybe my body has some sort of gene mutation or some unknown underlying issue that caused it at a younger age.

 

As far as the scans, I'm also a little worried about that. Seeing that we're 35, that's a lot of radiation in our future. Has anyone done any serious research on the radiation doses for multiple CT scans every 3 months for a year or 2? I know it is needed for detection, I just hope it doesn't cause more harm.

 

Mike

I forgot to say for scans request MRIs.   So we can reduce radiation exposure  

is well worth it. I think it is safe to say I've had more radiation in the past 6+ years than is concievable. However, it was an easy choice. I had a poor prognosis with nothing to lose. Scans every 6 weeks for 18 months. Every 3 months at minimum since. Radiation to mets totaling at least 2 months of daily zapping and scans that go with them. I'm sure I've forgotten multiple x-rays too.

Despite it all, I am healthy and stable at this time. I have upper extremity poly neuropathies from cord and nerve damage but the cancer that was there is wiped out. Not much of a cost for someone never expected to see the summer of 2012.

Maybe if I knew I was cured, I'd be hesitant to undergo scans. But without that confidence, one or two scans a year is a very good insurance. Just think, you may find another primary neoplasm in your lungs, pancreas, or GI tract. It may save your life again.

foxhd said:

The radiation risk

is well worth it. I think it is safe to say I've had more radiation in the past 6+ years than is concievable. However, it was an easy choice. I had a poor prognosis with nothing to lose. Scans every 6 weeks for 18 months. Every 3 months at minimum since. Radiation to mets totaling at least 2 months of daily zapping and scans that go with them. I'm sure I've forgotten multiple x-rays too.

Despite it all, I am healthy and stable at this time. I have upper extremity poly neuropathies from cord and nerve damage but the cancer that was there is wiped out. Not much of a cost for someone never expected to see the summer of 2012.

Maybe if I knew I was cured, I'd be hesitant to undergo scans. But without that confidence, one or two scans a year is a very good insurance. Just think, you may find another primary neoplasm in your lungs, pancreas, or GI tract. It may save your life again.

I plan to have life long scans.   My doctor is pushing MRIs.  Had one done december.  another one upcoming in march.  Chest pelvis and abdomen. 

sundaydriveguy said:

Kidneystoneblessing

Thank you for the comments!

 

I am also 35. Im torn about having kidney cancer at this age. Sometimes I think it's a good thing since my body is still in decent shape (No diabetes, high cholesterol, high blood pressure, etc.) to fight, but then sometimes I'm worried it's a bad thing. I mean if I got it 30 years early (according to ACS) maybe my body has some sort of gene mutation or some unknown underlying issue that caused it at a younger age.

 

As far as the scans, I'm also a little worried about that. Seeing that we're 35, that's a lot of radiation in our future. Has anyone done any serious research on the radiation doses for multiple CT scans every 3 months for a year or 2? I know it is needed for detection, I just hope it doesn't cause more harm.

 

Mike

I too am in my 30s. My oncologist is trying to stay away from so many CT scans. For my 1st follow up next month I will have a chest xray and ultrasound. Sorry but I cannot comment on the T3 as I do not know much about it.