Slight swelling externally to throat/clavicle post treatment?

Say hello to lymphedema.  My experience at 1 year post is that it is my last serious side-effect.  Tumor is gone, dry mouth is workable, taste mostly okay, but my lymphedema is proving very stubborn.  We are moving in to the cold weather months, and I have learned I have to keep my jaw and neck warm, or I pay.  It comes and goes. 

Mechanically, what I'm told is the lymph nodes in the target area no longer function.  They accumulate fluid, but don't drain properly.  Mine cycle between hard and stiff, to soft and squishy.  There is a technique to help with that, but you need to see a specially trained massage/physical therapist.   Be very careful about rubbing that area, any hard pressure makes it worse.  There is a rather pricey head/neck wrap that sort of works.  I put it on at night, wake up in the morning to discover my jaw had drained but I now have a fluid intertube mid-neck.  Eventually that drains down and we repeat the process.

Also, I am now an initiate into the world of scarfs.  Generally, you want them to be at least 70", and you should consult youtube for the no less than 13 ways to tie a man's scarf.  Amazon has a staggering collection of men's scarfs, but if you have any sense of fashion I would stick to cashmire, tho I also picked up some fine scots plaids in lambswool.  A true child of Scotland does not find wool itchy, tho Canadians with their Harris Tweed underwear take it too far.  There are differing opinions on prognosis, but my congenitally grumpy youngest who somehow made it thru med school tells me he expects mine to be permanent.  

I see my ENT next week for my scheduled routine.  He will stick a tube up my nose and his finger down my throat.   The anesthetic for the tube will make my nose run for at least a day.  He may commiserate, but not much.   That seems to be state of the art for H&N post-treatment.   I could complain about pain, but that would simply result in a referal to my primary care, or to an ER doc (which I am informed are more correctly called EM specialists) who would simply be aggrieved at getting a referal for something that really should be seen by some other (non-EM) specialist.   I personally see a somewhat medieval aspect to much of this.  On the whole cashmire is cheaper.