Update on my weird journey

Well, in September I was told chemo wasn’t working well enough, I was inoperable and they would add a 3rd drug Avastin to “try and stay ahead of the tumors.

As of November 6, I’d been admitted to the hospital once with an ER visit because they thought I might be having a heart attack (I wasnt). Around this time my hair started growing back in even though I was still on Carbo/Taxol/Avastin. I asked about it but didn’t really get an answer. At the same time I started having more abdominal pain, though not unmanageable.  Next chemo was scheduled for November 28. By this time I was experiencing daily chills and low grade fevers. Woke up that morning with temperature of 101.6, went to my Dr appointment and no fever, so she sent me over to chemo.

had my premeds, started the Avastin and 10 minutes in experiences a 101.8 fever. They stopped treatment and sent me to the ER. Admitted for 4 days, 3 nights.

A CT scan shows my chemo had completely stopped working. My tumors were now larger than when I was first diagnosed. They told me I was terminal and to go home and enjoy the holidays as they would probably be my last.

i think most of you can  imagine the devastation I was experiencing. I spent that weekend having conversations with family and friends. I felt terrible as everyone cried.

The next Monday my Dr called to tell me she was having my original biopsy tested to see if I’m a match for Keytruda. I am. My Dr was hopeful yet made it clear this probably wouldn’t cure me but may buy me more time. I’ll take it!

December 15, I head to my Dr appointment, and hopefully my first Keytruda infusion. Walk into the lobby and trip over a wheelchair someone left there. I saw the wheelchair but not that the legs were not folded back an went flying, injuring my knee. When I got up to my Dr office I told them what happened. They now refused to see me or let me have treatment as I was injured on hospital grounds and must go to the ER. Really, who does this happen to? I must have a black cloud over me!

after x-rays and a tetnus shot, a little bacitracin and a large bandaid, they sent me home. 

Meanwhile Im stilling getting fevers and chills and more pain daily.

Finally got rescheduled for the Keytruda for this Thursday. I have no idea if it will help me or if I’ll experience side effects but I’ve heard good things and am praying for good results.

just had to vent as my journey has been long and hard even though it’s only been 5 1/2 months of chemo treatment.

this is a tough place to be, encouraging words would sure be welcome right now!

By the way it appears I may have Lynch Syndrome as well. Meeting with a Genetic Counselor in February.

sorry for the typos, I’m on my phone!