still kicking stage 4 b endometrial cancer

cathyK said:

still kicking stage 4 b endometrial cancer
hello all , praying everyone is doing well, or better than yesterday and the day before. I have been counting the days till my oncologist visit next week, still at every 3 months, I have been cancer free since nov 1, 09 (last chemo) so almost 2 years. feeling great other than aches and pains from other things, like arthritis in foot, and torn something in shoulder, not rotator cuff but worse and waiting on a specialist to sew me back up, 3 month waiting.
thought Id tell everyone still kicking ) got a great oncologist in grand rapids , wish I had him at the beginning of this wild ride. how is everyone else doing with stage 4 B ? this was the one thing I looked for when I went on line, is someone , ANYONE who has been cancer free with stage 4 B endometrial cancer.
lets get the roll call going, stage 4 b stand up and yell Im ALIVE and WELL!! cancer cant get me ! im a fighter!

Cathy K

maryv1119 said:

You're giving Hope
Hi Cathy,

I have stage 3C grade 3. It's so great to hear you have been cancer free for 2 years now! My treatment ended May 2011 and my mind has been spinning wondering when/if my cancer will return.

It's wonderful to hear from other late stage cancer survivors.

Let's keep kickin'!

Sara Zipora said:

Thank you for hope
I was thrilled for you and future of others like us by you 2nd anniversary!

I am Stage IV B Grade 3 uterine-Adenocarcinoma, today I got the results of blood tests and Ca 125 six months post Chemo. Still quite anaemic Hemo=10 but Ca 125= 7.7
iron shot etcs, pills and even transfusion don't make a difference even for a week!Ty
But I am working part time and did even a few goods days a week all during Chemo, husband, family and friends are great supports.

Wishing you continued success,

Sara

cathyK said:

still kicking stage 4 b endometrial cancer
just checking in , have been so busy and have not posted in a long time, I will be going for my 2 year appt. in 3 weeks and always have that thought in the back of my head, 95% chance of recurrance. thank God there is no recurrance as yet and praying I am one of the 5%
now I can say I know a few people with stage 4 b endometrial cancer, that have been cancer free for more than 2 years. yea yea yea . more people to add to that list soon !!!
now I would love to go to my first oncologist to tell him he needs to take the god from the middle of his name, as he said Id be dead in 1 to 2 years, but he probably would call the cops on me, he is that type of person , arrogant and rude,
thank GOD I have a fantastic doc now, so nice
well speak up , how many of us are out there now, kicking cancer.
please remind people to post , as when I first got diagnosed and was told by doc I would not live more than 2 years i went hunting for anyone who had lived more than 2 years cancer free. and seemed to find none. it is a real great feeling to know so many others are out there cancer free!!! and I am praying for all that are fighting cancer at this time ,
have a blessed night !!
cathy K

snowy1158 said:

Cathyk
Hi Cathyk! First of all Congrats on your good news!!! I am so glad to find someone who has stage 4 cancer and is surviving!! That gives me some HOPE. I was diagnosed 4/5/06 after my complete hysterectomy with stage 3B endometrial cancer. My surgeon she got all she could find but suggested I have chemo as a precautionary measure. I found a gynocologist/oncologist and started chemo in 6/2006. I had 6 treatments of carbo/taxol. I had my treatments once every 3 weeks. The side effects were a little rough...but I made it through and by the time I was finished in October my markers were down to like 18. I was thrilled but my doctor didnt seem to be as glad as i was. He said I still had to be checked every 3 months. The next year..10 months to be exact...my cancer had metastasized to my lungs. Time for more chemo...my markers werent real high...like 50. I just had 3 rounds of cisplatin alone, but had an allergic reaction on my very last trreatment. No more platinum drugs for me the doc said. He did tell me the nodules on my lungs were very very small and growing so slowly, another thing that made me feel good. In 2009 on a checkup with him, he told me the strangest thing that really shocked me. He said he couldnt understand why this cancer hadnt killed me yet...he said I should have died a year and a half ago. I told him maybe it was my FAITH in GOD, and yes, even my faith in him (my doctor. I am now in stage 4, and it scares me. I am not ready to die Cathy. I just did my 2nd treatment yesterday of doxirubicin (hope I spelled that right). I was told several years ago that most stage 4 dont make it...I dont want to be that statistic. YOU GIVE ME TO THE HOPE AND STRENGTH TO GO ON!!! GOD BLESS YOU AND THANK YOU SO MUCH!!! I wish all the best for you and everyone else who is fighting cancer.

Hi snowy11580!

I too was diagnosed in Feb. 2006 after having a complete hysterectomy.  I held off on chemo and radiation as I had no health insurance and instead did an herbal protocol.  In Dec 2012 my left leg swelled up twice the size of my right leg and went to the hospital to discover I also had a blood clot in the leg and 3 clots in my lungs due to the cancer metasticizing.  Have 30-40 lesions in my lungs and tumor in my pelvic area. Started taxol/carbo chemo treatments for 8 rounds every 3 weeks.  The last treatment I had an anaphylactic reaction to the taxol.  That was the end of May 2013.  We held off until Feb. of this year and then did one chemo of carbo only.  Spent the entire month feeling awful and then was hospitalized with diverticulitis which my oncologist thinks was probably starting right before the chemo.  Spent a few days in the hospital but spent a lot of the summer with abdominal pain which I thought was more of a food sensitivity issue.  Eventually that calmed down, but in October I started having a little vaginal bleeding that made us be concerned about the cancer perferating the intestine so did one round of Doxil which seemed to go fairly well, but 6 days later I spiked a 103.1 fever in an hour with no symptioms prior to it.  Thought I was freezing to death....ended up in the ER and admitted for infection.  Nurse said I didn't have any signs to warn me because my immune system was really, really low.  Got the IV antibiotics for a couple of days and then home with Augmentin and Zmax.  Then end of Nov. started a slight bit of vaginal bleeding so I am now receiving radiation for 20 days with Tomo therapy.  So far so good.  Took the pain and bleeding away.  It is soooo nice to see you have been dealing with about the same thing for the same amount of time.  I keep reminding myself that there are people out there with stage 4 cancers that have been living with it for years and that I don't have to be in the average group for survivorship.

Hang in there my friend.  I no longer work so that I can focus on self care, but I dream that someday I will have the strength to see clients again. 

Have been dealing with stage 4 endometrial cancer since Dec. 2015.  I have never gotten rid of it.  Did the Carbo/Taxol, radiation, harmone therapy and keep having one tumor grow, shrink, grow more, shrink, grow more.  It is in several other areas as well.  She has me on Doxil now (3 treatments and have developed a severe chemo burn).  I am miserable.  I have tried everything form Aveeno, Eucurine, Bag Balm, Udder Cream and now I have some infections, oh Calimine Lotion as well.   Waiting on a new compound that is being mixed for me.  My thought, treatments are worse than the cancer sometimes.  Hanging in there but I refuse to take more treatments till I get rid of this burn on my torso area.