Scheduled to begin radiation in January TERRIFIED any suggestions?

I replied and included some links to former (and good) threads.  It is being flagged for review by the adminstrators prior to post.  I did a lot of work to look those things up so I hope it goes through for posting soon.

I am editing my message and hoping this one - with the thread - posts.

https://csn.cancer.org/node/296985

Also, a lot of us here have had radiation.  Take a breath.  You are not alone.

NoniK said:

Thank you for responding. The

Thank you for responding. The shock has left me feeling very much alone even though I have a very supportive family. This came out of nowhere. I wasnt feeling ill or anything. Just started spotting one day and wit’s cancer diagnosis and a hysterectomy within two weeks. I have issues with nausea in my normal life. So that worries me.

May I ask, what was your attitude going into treatment? 

Like you this diagnosis came out of nowhere...I started bleeding and then boom! Cancer...

When my gynocolgist called me to tell me the news I told her "ok, so now I am a cancer SURVIVOR because there is no way I am going to let this get me!!!"

I'm blessed because my gynocological oncologist kept me feeling positive throughout the surgery and chemo...and then she gifted me with referring me to the most amazing radiology oncologist.

My radiology oncologist sat down with me and asked me to tell him all my fears and concerns and ask all the questions so that I would be comfortable with treatment. That helped a lot. 

His staff is incredible...it's not easy climbing onto a radiation table with a full bladder and your bare bootie exposed (that was the position I was in for my external beam treatment) and at the start of my treatment all the techs were men (they later got some ladies in to replace some of the guys who left). We just kept it light and they were super respectful of how i felt. And my doctor always made sure I felt comfortable (I saw him in clinic at least once a week or more and several times a week he would see me waiting and come hug me and ask how I was doing).

I always relayed any issues to the nurses and they were always quick to help or offer solutions.

Mention to your radiology oncologist that you have nausea issues and maybe he/she can give you Zofran or Compozine (I take the generics). Remember that they can "plug you up" so be sure to have a fiber laxative like metamucil. I had some nausea and I still had plenty of meds leftover from chemo so that helped.

I went into treatment with the attitude it was going to work. There are no other options. It took a lot longer to go across town and park etc than the actutal treatment itself but it resulted in about 2 hours of my day being spent going to and from and having the treatment...but the treatment itself never hurt and my skin had no issues. 

Cancer can be very isolating. It's very hard to get someone to understand how you feel unless they have gone through it as well. It's very scary. I'm single and without a boyfriend/partner and my kids are grown (one in college and one just out) and they aren't in town. So it was hard coming home from treatments by myself and not having anyone to help me or to share it with. BUT I got though it and prayer and a good attitude went a long way toward my well being. I also exercised almost daily so that made me feel better too. 

The ladies here are very supportive and a great place to come with questions and concerns...we are a "sorority" no one wants to join but we are all sisters in this...

Stay positive and focused...ask your doc questions and tell him/her your concerns...use your time on the table for prayer or meditation and set your sights on wellness. 

I'm Stage 4b...my doctors think I am going to be NED...I find out for sure in 5 weeks. It's not an easy road but it's a doable one...

hang in there....

xoxo

I went through radiation therapy twice for 6 weeks each time. I would listen to relaxing music that I brought in and would try to imagine the radiation healing me. Some days I imagined a flow like chocolate or silk caressing and healing each of my organs.  Some days, I imagined pokeman eating away at the cancer. My treatments were not painful. Keeping the skin soft is important as radiation can burn. Eight years later that cancer is a distant memory.

NoniK said:

Your words touched me deeply

Actually your response made me cry because it feels hopeful. Thank you for the suggestions of music and visualization. When I had my CT scan and radiation mapping done I felt like I was in the twilight zone all alone. I wasn’t prepared for how isolated I felt. I felt like a slab of meat and not a person.  What was happening to my body wasn’t natural. By focusing on music or visualizations hopefully I won’t feel so separated from myself.

Thank you for sharing.

Every day when I went for my treatment I gave the technicians a Pandora station to play. They were able to play it over the speakers. One day it was James Taylor, or Dan Fogelberg. One day I even had them play the polka station cause polkas always make me laugh. I was amazed at some of the songs that came on randomly and made me feel so much better. They technicians were so sweet, particularly a young man. 

The smell of the gowns really bothered me, I think it was the detergent they use in hospitals. It still bothers me. I was allowed to bring my own bathrobe to wear during treatment. That made me feel a little better also. I had no skin problems. But you do really have to distract your mind. Also, in the waiting room there were always a lot of much sicker people than me with various types of cancer and I found it depressing. That wasn’t the case for chemo. 

You‘ll get through it.  I remember telling my husband in the car on the way down to the hospital, “ Please, I don’t want to go today.”  But he never let me not go. A lot of our battle is in our heads. We’ll all be with you in spirit pulling for you while you’re on that uncomfortable, morgue-like table. 

Hi NoniK,

Good questions.  I had radiation and chemo treatments 8 years ago, each week day morning I would go for my radiation session, then follow-up with a very long chemo session.  The radiation did not take very long (thank goodness), I just kept still and let the machiney rotate.  At the time I was rather weak, so I was very careful about getting off the table - I'd first sit up and let my inner ear adjust to being upright, then swing my legs over the side of the table before attempting to get up.

The whole thing was rather surreal at the time, and I have forgotten a lot of the pain (emotional and physical) over the years.  Hang in there!

Susan