MMMT / Return to work

NoTimeForCancer said:

Buzzy, I'd like to be the

Buzzy, I'd like to be the first to welcome you, I think you will find other women along in the next day or two, so I would encourage you to be sure to come back.  

It is hard to find anyplace that offers gyn cancer women a chance to talk, but fortunately, this board is pretty active and the women will openly share.

Buzzy, everyone is going to be different.  Some of us have been lucky enough to have worked throughout all our treatment while others have had very difficult timI am not sure if you have other medical conditions, and I hope you have asked your doctor about how to get the pep back in your step. Maybe they can recommend a diet change, or maybe a dietician can help you find some answers. 

thank you for the warm welcome. Good advice about the diet change!  I will check back this forum as you recommend 

mwells1004 said:

Hi Buzzy!

I too have uterine carcinosarcoma (stage 4 grade 3) I finished my chemo in August. I was very lucky and was able to keep my job as a CNA throughout my treatment. Everyone is so different but I definitely feel you with the fatigue, I have a newfound love of naps! You should definitely talk to your doctor about how much this is affecting you though, you deserve the best QOL possible. My docs drilled me with the importance of staying active even when I didn't want to, as I said definitely talk to your doc but exercise, balanced eating and good hydration are always a good idea. Feel free to message me if you ever want to vent about the dreaded MMMT! Lots of love, Melissa 

Hi Melissa. I'm sure to be in touch With you. Thanks for the kind note. Not happy to be in this club but am grateful for the caring people

with warm and caring thoughts

Buzzy

txtrisha55 said:

 

 

Welcome and sorry you had to join the club.  This is a great web site, full of caring and loving women and caretakers, which can listen to you venting, crying, celebrating, and just sharing your concerns.

 

I would suggest talking with your gyn onc dr or their nurses and ask them if what you are feeling is normal and do they have suggestions to help.  You could also see if the cancer center you went to has a support group for cancer survivors.  You would not have to have someone with “Your Type of Cancer” most people go through the same “not me” when they hear the word cancer.

 

You are a survivor. You have gotten through the rough part of the diagnosis, surgery, and treatment.  Now to get yourself back into the swing of things.  Everyone is different.

 

I was Grade 3, Stage 3C1 MMMT back in April 2011.  I had Surgery, Chemo and no radiation.  I took off two months but went back to work after two chemo treatments.  I still had four to go.  I went back to work bald.  Yes I had bad days and those days I took off.  I got up and walked, changed some of my eating habits and lost a little bit of weight.

 

I am 6 years from the start of it all and no recurrence.  I feel blessed but I still think about it.  I pray you find the answers you are looking for and get back to a new normal. trish

 

hi Trish

i am so happy for you. Your story is such an inspiration. I was falling into a very dark place. Crying all day and wondering what will happen to me. I'm so grateful for your post

you have given me that ray of hope and I thank you

denise

janaes said:

Welcome my story is this. I

Welcome my story is this. I too was diagnosed with MMMtvstage two grade three.   I wanted to work. I was fortunate to have summers off work so i missed my last month of work and had my surgery in may 2016.  I recovered from surgery and started chemo in june. I was half way done with chemo treatments when i went back to work.  I couldnt do it i worked three days and went home and the next day went to my bosses boss and she okayed me to take 3 months off.  

I will tell you when i was done with treatment, it took alot of work to get where i wanted to be.  I went back to work sometime in nov.  4 hours a day. I had to take hour breaks at first and had to come home an restfor an hour before i did any thing else.  Before i went back to work i was at first just walking to the corner an back.  I just did a little more each day.  We are all different but that is how it went fot me.  It took months to feel fairly good. Good luck janae

  

Hi Janae

thanks for the encouragement and sharing your story. I just returned to work today for 4 hours.  2 in the office and 2 at home. It actually felt good to get off the couch and interface with people. Less time to feel sorry for me and all the what if worrying!  I did fall asleep before dinner I was wiped out. But I'm praying I get back to where I was or close to it 

thank you again!! Denise 

survivingsu said:

Hi again Buzzy

Hi again Buzzy,

Thank you very much for your reply, that lets me know I was helpful to you.  Everyone is different, with different treatments, conditions, etc., but here are a few specific examples in my case:

1) Strength and endurance after treatment was a very gradual thing for me.  Before heading back to work I had to practice walking to my neighborhood bus stop so I'd know I could do it.  It took a few months to feel like myself, and even then I didn't quite.  About a year later I got my port removed, and boy that made me feel a lot like my old self!

2) Aches and pains - I still get them, I can't tell if it is because of the treatment, or just aging.

3) My guts took a long time getting back to near-normal...almost 3 years I think, again it was a gradual improvement thing.

4) My hair - I went bald twice during treatment.  It started growing back when I had my final chemo post-surgery, and that was the second time I went bald.  My hair grew back, but it is thin and I used to have thick, full hair...but aging and hereditary can do that too.

5) Having survived cancer takes its toll mentally, at least it did for me, but that gets much better over time too.  I easily worried about every little test, pain, number, whatever, until more time went by & I felt good.  I also experienced guilt, as I knew really good people do not necessarily survive cancer, that is eventually replaced by the joy of just being alive, and wanting to share and help others.  More than ever this experience reinforced the big picture that all we have is each other and a little time.

My very best to you!

:0)

Susan

Thanks again. I need the positive reinforcement. It's all so consuming and frightening. I'm taking baby steps but I can see I'm nowhere near I used to be. I will follow your good advice and pray I somewhat return to who I once was. Lots of prayers and positivity not only for me but all of us  mentally I'm spent and hoping it gets easier  

thanks again for reaching out

Denise