R-EPOCH

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  • Nicholas25
    Nicholas25 Member Posts: 7
    #22

    So great to hear about your recovery.   Wondering when I will get back to normal...whatever that is... mine sounds very similar to yours, I will try to follow in your footsteps.  Very pesky big toenails too! I was feeling a bit sorry for myself tonight so your email is uplifting.

  • bob72
    bob72 Member Posts: 1
    edited December 2017 #23
    Just Finshed my last Round of R-EPOCH

    I so glade to find thease post I just finshed my last cycle 6 total the 1st was R-CHOP and then the Doc said he seen a genitic trait in my slide and changed me to the R-EPOCH, the 5 day stays in the hospit have not been fun, but after my 3rd round the pet scan showed my cancer was 90% resloved. As for thge side effects the post here are right on hair loose fatique, numbness in the finger and feet ect. I will get my next pet scan Dec 13 and hoping to be 100%, oh I was diagnoised with diffuse large B cell lympomia stage 4. If I can help answer any qustion please feel free to ask.

  • Evarista
    Evarista Member Posts: 336 Member
    edited December 2017 #24
    Congratulations

    Just a quick shout out to say welcome and congratulations on being done. And getting good news to boot! Hang in there with the side effects; they should get better, some quicker than others.  I still feel like I live in 2X gravity, but that's way better than the 4X five months ago!  Hair came back quickly and hopefully yours will too.  Stay well.

  • ajolley
    ajolley Member Posts: 2
    #25
    randyslovacek said:

    R-EPOCH
    I had non-hodgkins lymphoma last year and went through six rounds of R-EPOCH.

    I did fine. I finished in October of last year and all my side effects are gone and I have all my hair back.

    My main side effects were fatigue, numbness in my fingers and loss of all my hair.

    The first oncologist I saw told me R-CHOP was the text book treatment but the second doc at Cedar Sinai in LA told me R-EPOCH was a newer approach and showing better results both long and short term.

    I never got sick or threw up during the six months of treatment, but the 96 hours of being attached to my portable chemo pump (I nicknamed it Bumpy) did get on my nerves after a while. Just a bit of claustrophobia of being attached everywhere I went.

    But I'm fine today and got through. Please feel free to ask ANY questions I can try to answer.

    And I'm thinking good thoughts your way.

    Randy

    Hi Randy

    Hi Randy - I know it has been sometime since you wrote that post. My dad just was diagnosed with double hit lymphoma and will be doing r-epoch next week. Would you mind if I asked you a few questions?

  • ajolley
    ajolley Member Posts: 2
    #26
    bob72 said:

    Just Finshed my last Round of R-EPOCH

    I so glade to find thease post I just finshed my last cycle 6 total the 1st was R-CHOP and then the Doc said he seen a genitic trait in my slide and changed me to the R-EPOCH, the 5 day stays in the hospit have not been fun, but after my 3rd round the pet scan showed my cancer was 90% resloved. As for thge side effects the post here are right on hair loose fatique, numbness in the finger and feet ect. I will get my next pet scan Dec 13 and hoping to be 100%, oh I was diagnoised with diffuse large B cell lympomia stage 4. If I can help answer any qustion please feel free to ask.

    Hi bob - are you still in

    Hi bob - are you still in remission?

  • lindary
    lindary Member Posts: 711 Member
    #27
    ajolley said:

    Hi Randy

    Hi Randy - I know it has been sometime since you wrote that post. My dad just was diagnosed with double hit lymphoma and will be doing r-epoch next week. Would you mind if I asked you a few questions?

    ajolley

    This is an old thread. It would be better for you to start a new thread. 

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