Eyelids Twitching

2

Comments

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    edited December 2017 #22
    SophDan2 said:

    You have the right attitude

    I am feelinbg better with each day! The tase buds are slowly coming back and the cold is a non-issue at this time.

    You must live somewhere cold, I'm north of Boston, where it has been pretty cold already.

    A sense of humor is very helpful when dealing with our circumstances. Keep warm and remember that the cold sensitivity will, subside when treatment ends. the neuropathy feelings that I am experiencing are tolerable, with the hope that they will eventually lessen over time.

     

    Take care

    Actually I'm below you. I'm

    Actually I'm below you. I'm in NYC. So we have pretty much the same weather forecast. It's funny...I never liked wearing socks but since chemo started in September and rolling into cold days, I bundle up like Randy from the Christmas Story. Lol

    Speaking of the pic, what is that bottle you're holding? :D

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #23
    Annabelle41415 said:

    Twitching

    Mine did the same and also the eyeballs twitched as well.  Scared the heck out of me, they told me that was one of the side effects but they never gave me a solution.  It was very annoying.  Hope that it gets better for you.  This treatment has some weird side effects and it seems to me the doctors don't tell you all of them.  Wishing you well.

    Kim

    Eyeball twitches

    Oh Kim! I had forgotten about that side effect. My eyeballs would jerk around something chronic. It looked like I was on drugs. Well, I was, but not 'those' kind of drugs. 

    Tru

  • SophDan2
    SophDan2 Member Posts: 150 Member
    #24
    Mikenh said:

    I was wondering if that was

    I was wondering if that was the North End in your picture.

    Gloucester, but in front of the best Italian bakery

    Gloucester, but in front of the best Italian bakery

  • SophDan2
    SophDan2 Member Posts: 150 Member
    #25
    PamRav said:

    Had twitching

    during the actual infusion.  It was to the point that I️ couldn’t read or play on my iPad.  After the infusion finished it went away but would resurface at the strangest times ( no correlation to cold or anything else).  I’m 8 months past the oxy and happy to say it’s gone.  No more twitching 

    pam 

    Great to hear Pam

    Like you, I am post treatment and still feel the numb fingertips and toes; I am hoping that the feeling will eventually go away with time.

  • SophDan2
    SophDan2 Member Posts: 150 Member
    #26
    Lily Flower said:

    Actually I'm below you. I'm

    Actually I'm below you. I'm in NYC. So we have pretty much the same weather forecast. It's funny...I never liked wearing socks but since chemo started in September and rolling into cold days, I bundle up like Randy from the Christmas Story. Lol

    Speaking of the pic, what is that bottle you're holding? :D

    Moxie

    I am holding a bottle of Moxie, which I love the taste of (acquired taste, from what people who don't like it say).

     

    I would always rather say that I'm too warm than I'm too cold Sealed

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    edited December 2017 #27
    SophDan2 said:

    Gloucester, but in front of the best Italian bakery

    Gloucester, but in front of the best Italian bakery

    I love Italian pastries.

    I love Italian pastries. Cannoli and spumoni are two of my favorite! 

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    #28
    SophDan2 said:

    Moxie

    I am holding a bottle of Moxie, which I love the taste of (acquired taste, from what people who don't like it say).

     

    I would always rather say that I'm too warm than I'm too cold Sealed

    Haha so true about being too

    Haha so true about being too warm than too cold!

    i don't remember seeing moxie being sold at my local supermarket. I hear it's a bit on the bitter side. i might try it if I see it. I have tolerance for bitterness. I've eaten those Asian bitter melon and actually like it. :D

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #29
    Lily

    my husband had that it went away quickly though. I see you are in NYC we are in CT he is hooked up to his chemo right now and had a lot of trouble this morning breathing in the cold And his eyes were a mess. I know he is hoping for a warm winter 

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    #30
    Ruthmomto4 said:

    Lily

    my husband had that it went away quickly though. I see you are in NYC we are in CT he is hooked up to his chemo right now and had a lot of trouble this morning breathing in the cold And his eyes were a mess. I know he is hoping for a warm winter 

    Hi neighbor! I have a cousin

    Hi neighbor! I have a cousin named Ruth and lives in CT but she's a mom to 3. :D

    Just glad that this is a short-lived effect. I can't imagine having twitching eyes throughout the whole treatment. I always dread the week after my drip which is always rough with the overall malaise and nausea. I hope your husband is feeling better. :)

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    edited December 2017 #31
    Lily Flower said:

    Hi neighbor! I have a cousin

    Hi neighbor! I have a cousin named Ruth and lives in CT but she's a mom to 3. :D

    Just glad that this is a short-lived effect. I can't imagine having twitching eyes throughout the whole treatment. I always dread the week after my drip which is always rough with the overall malaise and nausea. I hope your husband is feeling better. :)

    That's funny!

    I definitely have 4 though, so funny not too many of us with what I refer to as my old lady name lol I hate to jinx it but he isn't tired or nauseous, I keep waiting thinking it has to happen but so far so good. The cold sensitivity is really bothering him this time. Finding something to drink besides warm water is a challenge. We are about to get a stretch of cold soon so i hope you are not due for your oxi anytime soon! Take care Lily!!

  • abita
    abita Member Posts: 1,152 Member
    #32
    Lily Flower said:

    Hi neighbor! I have a cousin

    Hi neighbor! I have a cousin named Ruth and lives in CT but she's a mom to 3. :D

    Just glad that this is a short-lived effect. I can't imagine having twitching eyes throughout the whole treatment. I always dread the week after my drip which is always rough with the overall malaise and nausea. I hope your husband is feeling better. :)

    Second infusion Monday

    How long have you had nausea? I am getting my second round Monday. I did not get nauseous after. Do you get the anti nausea medicine in the drip? Thanks for the tip on the eyes. Being the first week, I didn't have the cold issue much, but did a couple of times.

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #33
    abita said:

    Second infusion Monday

    How long have you had nausea? I am getting my second round Monday. I did not get nauseous after. Do you get the anti nausea medicine in the drip? Thanks for the tip on the eyes. Being the first week, I didn't have the cold issue much, but did a couple of times.

    I know you are asking Lily

    But my husband not gotten any nausea, he gets anti nausea meds and a steroid in his infusion and takes steroids and zofran after. Hopefully you won't get any either. His first round really didn't give him much cold sensitivity issues, it hit him good the second and has gotten worse with each. It usually eases by day 4 from disconnect and after that it comes and goes. Good luck!

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #34
    abita said:

    Second infusion Monday

    How long have you had nausea? I am getting my second round Monday. I did not get nauseous after. Do you get the anti nausea medicine in the drip? Thanks for the tip on the eyes. Being the first week, I didn't have the cold issue much, but did a couple of times.

    Sickness

    Everyone responds different to treatment but most of it includes some anti-nausea medication, plus they can give it to your orally.  Hope you continue to do well, Abita.

    Kim

  • SophDan2
    SophDan2 Member Posts: 150 Member
    #35
    Lily Flower said:

    I love Italian pastries.

    I love Italian pastries. Cannoli and spumoni are two of my favorite! 

    I love Italian pastry too

    Bubba-Rum with the filling are my favorite. If you ever get to Boston, go to Mike's Pastry in the North End, they have the best pastries I have ever tasted!

  • abita
    abita Member Posts: 1,152 Member
    edited December 2017 #36
    Ruthmomto4 said:

    I know you are asking Lily

    But my husband not gotten any nausea, he gets anti nausea meds and a steroid in his infusion and takes steroids and zofran after. Hopefully you won't get any either. His first round really didn't give him much cold sensitivity issues, it hit him good the second and has gotten worse with each. It usually eases by day 4 from disconnect and after that it comes and goes. Good luck!

    Thanks. I also get the

    Thanks. I also get the steroid and anti nausea in infusion. I haven't had to take it yet, but I have Ondansetron pills for home. Yeah, I figure the cold and numbness will hit after the 2nd and onward.

  • Mikenh
    Mikenh Member Posts: 777 Member
    #37
    SophDan2 said:

    I love Italian pastry too

    Bubba-Rum with the filling are my favorite. If you ever get to Boston, go to Mike's Pastry in the North End, they have the best pastries I have ever tasted!

    That place is wildly popular

    That place is wildly popular with locals and tourists. The lines can be rather insane at times.

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    edited December 2017 #38
    SophDan2 said:

    I love Italian pastry too

    Bubba-Rum with the filling are my favorite. If you ever get to Boston, go to Mike's Pastry in the North End, they have the best pastries I have ever tasted!

    OMG I would never leave!

    OMG I would never leave! Thanks! Definitely on my bucket list. :D

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    #39
    abita said:

    Second infusion Monday

    How long have you had nausea? I am getting my second round Monday. I did not get nauseous after. Do you get the anti nausea medicine in the drip? Thanks for the tip on the eyes. Being the first week, I didn't have the cold issue much, but did a couple of times.

    Hi Abita, Welcome to the

    Hi Abita, Welcome to the forum! Before my drip begins, they give me Akynzeo to combat the nausea. It lasts about 24 hours. I also take Capecitabine (Xeloda) at home for 2 weeks and I get nausea from it. My oncologist prescribes anti-nausea medicine for me but I don't always take it because I don't want to be constipated. It is somewhat tolerable so I just suck it up. side effects are different for everyone. So you may not get the eye twitching, but if you do get it, just know that it doesn't last long. Good luck to you with all your treatments!

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    edited December 2017 #40
    Ruthmomto4 said:

    That's funny!

    I definitely have 4 though, so funny not too many of us with what I refer to as my old lady name lol I hate to jinx it but he isn't tired or nauseous, I keep waiting thinking it has to happen but so far so good. The cold sensitivity is really bothering him this time. Finding something to drink besides warm water is a challenge. We are about to get a stretch of cold soon so i hope you are not due for your oxi anytime soon! Take care Lily!!

    Hey Ruth, it's funny how a

    Hey Ruth, it's funny how a lot of old names are making a comeback. I used to think Emma was such an antique moniker, now all the little kids are named Emma. Lol Although I have to admit before some of the old names started to trend, I always liked Amelia, Clara, Sophia. :)

  • abita
    abita Member Posts: 1,152 Member
    #41
    Lily Flower said:

    Hi Abita, Welcome to the

    Hi Abita, Welcome to the forum! Before my drip begins, they give me Akynzeo to combat the nausea. It lasts about 24 hours. I also take Capecitabine (Xeloda) at home for 2 weeks and I get nausea from it. My oncologist prescribes anti-nausea medicine for me but I don't always take it because I don't want to be constipated. It is somewhat tolerable so I just suck it up. side effects are different for everyone. So you may not get the eye twitching, but if you do get it, just know that it doesn't last long. Good luck to you with all your treatments!

    Capecitabine

    I don't get capecitabine, so maybe that is why. My at home infusion is the 5fu, I think. I get the device that administers it when I finish the in hospital treatment. I wear it for 46 hours, then go back to have it removed. My anti-nausea in the drip lasts for 3 days. I have a "cousin" of it in pills at home, just in case. 

    This forum helps a lot. I have a good support system, but they can't help me with my fears and questions the same as people who are going through it or who have been there. 

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