Chroidal melanoma (Eye Cancer)

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Comments

  • jesse515
    jesse515 Member Posts: 6
    brutz said:

    I has been a year since-

    Hello Moonlady85

    yes the fake eye is expensive. My husband did get one...he is a veteran though so the VA helped him out. i thought he would wear a patch he surprised me. But what his Dr. did say is that this eye of his can last much longer than 5 years. However his Dr. also said that women tend to get new ones more often. He needs to take it out and clean it. BUt as long as his eye lids are tight enough to hold it in he will remain with the same eye. I wish you continued luck in your job search I feel as though you may need to ask in the event you are not employed as to your lack of obtaining the job. You know they can not discriminate based upon your physical appearance.

    melanoma in eye
    I would like to know more of your husband experience and what was his diagnosis

    jesse515
  • brutz
    brutz Member Posts: 7
    jesse515 said:

    melanoma in eye
    I would like to know more of your husband experience and what was his diagnosis

    jesse515

    Hi Jesse
    I am sorry for the delay in my response. My husband was 19 when he went to Vietnam in November of 1970.
    His unit was F Troop 8th Air Cav, American Division.
    He was an Aircraft mechanic/crew chief OH-6, electrical and weapons, He fixed everything electrical on OH-6, UH-1H, AH1G ,He flight tested all electrical weapons systems and SCAS systems on AH-1G.
    He was in Chu Lai for 1 month and remainder in Quang Tri.
    He was in Vietnam for 366 days total. He left when he was 20.
    He was in Agent Orange territory.
    He is/was a pilot, he was diagnosed with Choroidal melanoma 5 years ago...being a pilot he was very in tune to his vision..the change came quickly. Nothing was suspected at any of his regular eye exams or physicals. He had an exam and they were concerned, the specialists confirmed the cancer. He had plaque radiation and chemo. The tumor did not shrink. He had his eye removed in May 2012. Many adjustments to be made. Please tell us your story. We are looking for fellow veterans as there are so many out there according to our data. There were over 2000 identified in 2010 alone, while statistically there would be about 115.
    Please email me:
    brutz@pasco.k12.fl.us
  • Cindylouwoo
    Cindylouwoo Member Posts: 19

    choroidal melanoma
    I was diagnosed on June 30 2010. Course of treatment? Brachytherapy. It was such a shock we didn't ask all the questions we wanted to. I am scheduled for a myriad of scans and bloodwork on Tuesday. Preop with Anesthesia and Oncologist and Surgeon on Thursday and One week from Monday July 12 will be surgery. I have so many questions...like pain..I am allergic to many pain meds what can they give me? What kind of vision can I look forward to post procedure? When will life become somewhat normal again? Will I be able to drive? What are the side effects? What are the long term effects? What is the likely hood that this will come back again? What is the likely hood of metastasis later? I just need some answers. Anyone have any input? I am confident that My Lord and Savior will provide a way through this but the information I am seeing on the internet is incomplete (or maybe I am not searching correctly) Can anyone help me?

    How are you doing now?

    How are you doing now?

  • Jill612
    Jill612 Member Posts: 2
    brutz said:

    Chroidal in Veterans
    I am new here-- My husband has been 3 years with CM. He is a Vietnam Veteran and we found interesting stats regrading Vets and this cancer...
    as you all know the data from all sources say it is so rare..5-6 in one million...or about 1400 a year.
    But we have information from the Freedom of Information Act that follows Veteran hospitals...
    the rate was much higher than 1400 a year for Veterans alone----
    the rate was 1900 Vets treated in the year 07, about 2100 treated in 08, about 2200 in 09 ,about 2050 in 2010 and about 1600 in 2011.
    These numbers are not duplicated. These are occurances. The numbers are frightening for veterans.
    I am looking for fellow veterans of my husband with this cancer.. Please contact me.
    My husband was a pilot..he owned his own airline. He no longer flies. He now gets 50.00 a month in VA benefits. I know he is not alone. Please contact us.
    Thank you

    Veterans with eye cancer

    Hi Are you still active on the boards? If so, I would be happy to communicate with you. My husband just got news his eye cancer has returned for a second time. Blessings Jill612

  • Samanngill
    Samanngill Member Posts: 1
    Scared

    I go to Boston mass hospital next week for eye cancer sooo scared.  I am not ready to die

  • Kchilds
    Kchilds Member Posts: 1
    I am new to this blog.  I was

    I am new to this blog.  I was just diagnosed with this melanoma and will have plaque radiation  next Monday, Sept 18.  Very scared.

  • Shocked916
    Shocked916 Member Posts: 4
    Kchilds said:

    I am new to this blog.  I was

    I am new to this blog.  I was just diagnosed with this melanoma and will have plaque radiation  next Monday, Sept 18.  Very scared.

    I get it

    I guess I'm where you were last month,  kchilds. How did it go? I hope you are fully recovered and back to life as normal. Any insight you can offer? I go in for plaque radiation Oct 31st.

  • Shocked916
    Shocked916 Member Posts: 4
    How are you now?

    Would really love to hear from those of you who posted in the past. Most of these entries are from 2010 or before.  How are you doing now?