Taxol Neuropathy/Joint pain from taxol

The neuropathy you have is caused by the taxol and it is permanent. You may see some, and I say some, improvement over time. That chemo is still attacking your body even now. I was done in april and I absolutely refused that last 4 doses. My hands were paralyzed and I had horrific pain in legs from knees down including feet. Some of it went away. I still have a hard time grasping smalll things or opening small things, but not paralyzed. My feet kill me. They did give me some ultram, very little, and it helped my feet tremendously. Dr nowadays dont want you to take anything, even if it helps. I find their help, not helpful at all. I was never, ever told that some things were permanent, leaving me unable to make informed decisions. Now I have 2cond degree radiation burns, which I have been suffering with for last 10days. Needless to say, I cancelled the rest of radiation. I am not doing that. I don't want to live quite that bad. I'll take my chances. There are no supplements that will help you. You have permanent nerve damage. Maybe with time, some of it will go away. Mine did, but the feet, that's a different story. The dr. said it will not go away and I know of people who have this also from taxol. Have Dr. order some ultram. It's much milder than an opiate, which I don't want to take. Or if medical pot is available where you are, I would try that. It worked for me during chemo. I didn't get it from oncologist but medical pot is legal where I live. I find it reprehensible that your oncologist outright lied to you. Do they really want the $ that bad? I wonder some times. What you experienced is the same danger sympton my oncologist warned me about and they said if it occurred, they would have to lower the dose or give a break. I'm so sorry this happened to you. I can't imagine what I would be like if I would have taken the last 4 doses. Thank the Lord I didn't. The ultram really worked for me. It felt so much better. They cure your cancer let's hope after all that, but give you permanent lifelong problems. That's what I mean by informed consent. I told all of them I don't want to live at all costs, and I meant that. That's just me, but I have the rright to make informed decisions for my own medical care. They lied by omission to me too. I'll never go back there again. There is a lot of $ to be made in the cancer industry. Money corrupts. Never forget that. I've learned some valuable lessons. Medical pot or Ultram if you can try it. I sure hope everything is going to be ok with you. I'm going thru it too.  Take care

It is disturbing when doctors and nurses refuse to acknowledge known side effects of chemo. Sorry that you are both suffering. I will tell you that the previous time I had chemo, 6 years ago, it took about 4 years for the pins and needles in my hands and feet to go away. Chemo brain is here to stay! I hope that you both feel better soon.