I think It's good News

donna_lee
donna_lee Member Posts: 1,045 Member
in Kidney Cancer #1

After the CT on 8/8, I was sent in to have a brain MRI, for which I still haven't heard back.

The other test was a CT locate biopsy on the back of the right lung.  This was to be yesterday.  It was not any different than going in for day surgery: all the papers to sign, extra blood tests, insert the line for an IV, etc.  Dangers were there could be bleeding or pneumothorax.  After being prepped and propped with rolled and folded towels and blankets, plugged into the IV, bubble wrap placed under my left hip for comfort and a pillow between my knees, and a nearly 3 ft. wide velcro wrap to prevent me from moving, I finally went into the CT machine in a stretched out fetal position.  About the time I expected the RN to come out and put the Fentanyl into the IV, the Radiologist came out and said she wasn't going to perform a biopsy.  The questionable "mass" had shrunk by half in less than 3 weeks-not the behavior of a cancer cluster.  The only conclusion was there had been a bacterial infection remaining after the viral upper respiratory infection of early August; and even without antibiotics, it was clearing up by itself.

So I was unplugged, unwrapped, got dressed and allowed to leave.  I feel like a huge hot air balloon that has fallen to earth with a bang.  I've landed on this one safely, but still don't know what's going on.  I have a call in to the Oncologists office to get me some results ASAP, and to figure out who will monitor the lung situation-Onc. or PC.

As I said, good news, for now.

Best wishes to all.

donna_lee

«1

Comments

  • lobbyist0724
    lobbyist0724 Member Posts: 515 Member
    #2
    I am sure everyone else have

    I am sure everyone else have been waiting for your response. The process is always dramatic, but so glad about the result!!!

    Big Hug,

    Carmen

  • Kat23502
    Kat23502 Member Posts: 179 Member
    #3
    This is great news! Is the

    This is great news! Is the brain MRI just routine? Fingers crossed that is all clear as well!

  • donna_lee
    donna_lee Member Posts: 1,045 Member
    #4
    If I only had a brain...

    Oh, that's the first line of a song from the Wizard.  That's the big Question.  I just put in the second call to the cancer center-hopefully the Onc. will call me back on this request.

    Thaks for all the concern everyone has expressed.

    Donna

  • sandy23
    sandy23 Member Posts: 143 Member
    #5
    What a relief!!

    Great news, Donna!!  We have been thinking about you a lot.

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    #6
    That is great news Donna!! 

    That is great news Donna!! 

  • Rockspin
    Rockspin Member Posts: 77
    #7
    Such great news!

    Such great news!

  • DreamOnDeb
    DreamOnDeb Member Posts: 112
    edited September 2017 #8
    OMG, Donna!  Wow!  Fabulous

    OMG, Donna!  Wow!  Fabulous News!!! 

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    edited September 2017 #9
    Wow

    just need the other one now... praying  that it is again great news

     

     

  • APny
    APny Member Posts: 1,995 Member
    edited September 2017 #10
    So happy for you about the

    So happy for you about the lung results. That's really great. Now let's hope the other one has good news for you as well.

  • Allochka
    Allochka Member Posts: 1,074 Member
    edited September 2017 #11
    Donna, this is super fabulous

    Donna, this is super fabulous! Congrats and hugs!!!

  • stub1969
    stub1969 Member Posts: 980 Member
    #12
    Good news!

    Thanks for the update, Donna.  I've been thinking about you.

    Stub

  • donna_lee
    donna_lee Member Posts: 1,045 Member
    #13
    Just came from Onc. office

    I greeted the staff with, "I put in calls to Dr. C the past two days and he was given # and time I would be home to receive call. He didn't call last night and I want to see him today."

    He wasn't in today, but I got a 45 min. appt. with the Onc. nurse, plus met with the Office Mgr. about failures to return calls.

    Yes, the brain MRI had been to see if there was mets.  No, there was none.  The CT, as mentioned, just showed something that had already shrunk in size.  But Onc.   office will follow up with a CT in 2 months to make sure it has completely cleared.

    I have the name and number of the Risk Mgr. at the Hospital and will schedule a meeting with her next week. The hospital has a lot of new services, I.e., Cardiac diagnostic and treatment, Cancer Center, Joint Replacement and others.  But their administrative end is a botched mess, and I've already complained to them.  Now, after nearly a month, I will find out what they are doing or have plans to remedy the problems.

    And I'll try to get on with living.  The feelings of helplessness, incomplete answers or no answers and the anger and tears that come with it have really messed with me.

    Thanks again.

    donna_lee

  • salsa
    salsa Member Posts: 14
    edited September 2017 #14
    It sounds like good news to

    It sounds like good news to me:)

  • Angie1496
    Angie1496 Member Posts: 154
    #15
    Awesome News!!

    Awesome News!!

  • APny
    APny Member Posts: 1,995 Member
    edited September 2017 #16
    So glad brain MRI was clear.

    So glad brain MRI was clear. Sucks when they don't return calls; I don't think they have a clue what people go through waiting to hear results.

  • angec
    angec Member Posts: 924 Member
    edited October 2017 #17
    donna_lee said:

    Just came from Onc. office

    I greeted the staff with, "I put in calls to Dr. C the past two days and he was given # and time I would be home to receive call. He didn't call last night and I want to see him today."

    He wasn't in today, but I got a 45 min. appt. with the Onc. nurse, plus met with the Office Mgr. about failures to return calls.

    Yes, the brain MRI had been to see if there was mets.  No, there was none.  The CT, as mentioned, just showed something that had already shrunk in size.  But Onc.   office will follow up with a CT in 2 months to make sure it has completely cleared.

    I have the name and number of the Risk Mgr. at the Hospital and will schedule a meeting with her next week. The hospital has a lot of new services, I.e., Cardiac diagnostic and treatment, Cancer Center, Joint Replacement and others.  But their administrative end is a botched mess, and I've already complained to them.  Now, after nearly a month, I will find out what they are doing or have plans to remedy the problems.

    And I'll try to get on with living.  The feelings of helplessness, incomplete answers or no answers and the anger and tears that come with it have really messed with me.

    Thanks again.

    donna_lee

    Great news, Donna! Let it all

    Great news, Donna! Let it all go. Live your life. I love the outcome this time! I was concerned and glad it turned out well. Whew! I hope they get it together.

  • foroughsh
    foroughsh Member Posts: 779 Member
    #18
    That's great. I'm very happy

    That's great. I'm very happy for you.

     

  • Allochka
    Allochka Member Posts: 1,074 Member
    #19
    Donna, glad it was clear! You

    Donna, glad it was clear! You deserve being NED for at least 20 more years!

  • pamstayner
    pamstayner Member Posts: 111 Member
    edited October 2017 #20
    Been in the same situation

    Donna, I am happy your hot air balloon landed safely, with you intact !   I totally understand the frustration with not knowing what is going on, and the inability to get the medical people to listen to you and really help. It can be like quicksand, the harder I struggled, the stucker (is that even a word, likely not, but it says what I mean )  I got. 

    I posted a bit ago about my pretty awful pity party summer.  This last 10 days have been a complete reversal of attitude and gratitude for life today... and what I intend to acomplish. 

    I hope you are able to get your brain back in the right channel, I think sometimes the brain MRIs that I have had kinda mess up my thinking process.  My experience has been that no news is good news when the oncologist does not contact me.  But even with that belief  it never has calmed my worry.

    I am happy for you that all this stuff is not cancer related, now you can get back to being yourself !!

    Pam

     

  • jason.2835
    jason.2835 Member Posts: 337 Member
    #21
    Sometimes, you just want to punch...

    Sometimes, you just want to punch some doctors.  But in my experience, no news is usually good news.  When they have no money to make off of you, they conveniently "forget" to call.  I just set up my scans myself this past week because the letters that the doctors' office used to send out suddenly stopped coming when I went to yearly scans.  I guess they think I'm going to forget.  Nope.  No way.

    - Jay

Discussion Boards