Totally Confused!!!

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Comments

  • foroughsh
    foroughsh Member Posts: 779 Member
    #42
    I agree with your family

    I agree with your family doctor. Find a urologist with kidney cancer experience.  Renal cell carcinoma does not need biopsy it needs to be taken out of patient's body.

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    #43
    foroughsh said:

    I agree with your family

    I agree with your family doctor. Find a urologist with kidney cancer experience.  Renal cell carcinoma does not need biopsy it needs to be taken out of patient's body.

    Did anyone who had or has rcc

    Did anyone who had or has rcc have extreme fatigue??? I mean to the point where all you do is sleep or want to sleep? I am usually very energetic and it is all I can do to get up and go to work!!! I have been this way for about 3 mths now. My body just will NOT do what I want it to.

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #44
    You should get over it

    Annissa,

    It took me 11 months until I waterskied again for my 60th\h birthday. I  was exhausted. The doctor who told you 7 days downtime has never been nephed.

     

    Icemantoo

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    edited September 2017 #45
    icemantoo said:

    You should get over it

    Annissa,

    It took me 11 months until I waterskied again for my 60th\h birthday. I  was exhausted. The doctor who told you 7 days downtime has never been nephed.

     

    Icemantoo

    I walked away from the appt

    I walked away from the appt realizing it was def going to take longer!! They are cutting out part of your kidney!!!!!! Thanks for the info.

  • Angie1496
    Angie1496 Member Posts: 154
    edited September 2017 #46
    I went shopping today and

    I went shopping today and purposely didn't do my norm with my sisters and I'm still exhausted.  I'm used to 15,000 steps a day and today I'm at 4,200. The most since my neph and I'm pooped!  

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    #47
    AnnissaP said:

    Did anyone who had or has rcc

    Did anyone who had or has rcc have extreme fatigue??? I mean to the point where all you do is sleep or want to sleep? I am usually very energetic and it is all I can do to get up and go to work!!! I have been this way for about 3 mths now. My body just will NOT do what I want it to.

    Annissa

    Yes  my fatigue on a 4cm mass was constant  and hard to deal with

    Although I carried on  working until three days before the surgery The last week  was very hard

    The fatigue was one of the signs I knew something was wrong. I am not the fittest person in the world. But  I knew this was not good

    i hope it will be fixed  when my body recovers from the surgery 

     

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    #48
    Oh wow. Ok!!

    Oh wow. Ok!!

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    #49
    Question!!! Did anyone have

    Question!!! Did anyone have their tumor grow while waiting for surgery???

  • Angie1496
    Angie1496 Member Posts: 154
    edited September 2017 #50
    Annissa,  My tumor was

    Annissa,  My tumor was actually slightly smaller than the second CT i had indcated.  However I was only 5 weeks from finding the tumor until it was removed.  I have a friends who's daughter had surgery in march and hers  was being monitored for 6 months prior to surgery but it grew during that 6 months so they removed it with 40% of her kidney.  It was also RCC.  She is 24! and it wasn't genetic in her case. RCC is supposed to be slow growing so I am not sure how long you would have to wait to see a significant change.  I think in my reading there is a type of RCC that is faster growing but its also rarer.  Clear Cell is the most common type of RCC. 

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    #51
    Thanks for writing. I just

    Thanks for writing. I just hate this waiting game. The dr will call etc etc. Wait, wait, wait. I just worry. Thanks again.

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    edited September 2017 #52
    Here we go!!!!! I see the

    Here we go!!!!! I see the surgeon on Tuesday!!! Apparently he is the top one in the area. I am so relieved.

  • Rockspin
    Rockspin Member Posts: 77
    #53
    AnnissaP said:

    Wow. Hoping you heal quickly!

    Wow. Hoping you heal quickly!! How is the pain (if you don't mind me asking)?

    The first few days were a

    The first few days were a kind of blur. Pain was manageable I was able to slowly walk eat a little but I stopped the heavy meds on the 3 Rd day. I'm just over a week and two days now and I'm recovering much better. I got my pathology report back and it said pT1a furhman grade II.

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