Cancer Across the Pond.. Con't

Hi Ladies, Well like Edigirl (Chris) I am back from Germany and home for the fall.  This last trip (the 8th in 8 months) was the most challenging.  I didn't do as well with the whole body hyperthermia this time, so Dr. Herzog and I decided that whole body is probably off the table for me, but local hyperthermia and other treatments (including future ablation if necessary) remain viable.  The last ablation was done using microwave technology instead of laser and I was told the method used is based on the size and location of the tumor.  It wasdefinitely harder to get through than the laser ablation, so I was very relieved to have it behind me.  The best part...it worked.  I started this journey with two tumors in my liver (which was the primary concern).  In the US, I was given an expiration date, and more suggested chemo (which had only a 15% chance of impacting anything).  I left Germany with the tumors gone.

This procedure was more challenging to get through, and for the first couple of weeks after my energy level wasin the toilet.  I also developed thrombosis in my lower calves which I am currently being treated for.  Unfortunately, this medication interacts with the medications that I have been using to keep lower back pain in check so pain management has become a new issue.  Overall though, I am pleased with the results and would do it again.  I still have lymph nodes to deal with, tho no new tumors and my other organs are doing OK.  I have had multiple CT's and multiple MRI's in the last 8 months and Dr. Herzog (Chris and I have the same oncologist) says that...yes, they can see them, but they are not doing much so it is time to take a break.  At the moment, it all goes well, I will return in November for 10 days for a tuneup.

My primary care physician has been incredible since I got back and is going to try to help me get a new oncologist within the Kaiser system who is more of a kindred spirit.  I need someone who will help with periodic blood work and scans but not get upset when I take off for Germany if something actually needs to be addressed.  I can't go back to the oncologist who gave me an expiration date (Dr. Herzog said NO, and my PCP agreed) so that is a priority for the next couple of months.  I was up on the fence as to whether I wanted to go back to Germany in November (it's been a long, long, long year...) but my husband trusts Dr. Herzog completely and wants me to go.  So I got my flight tickets, just spent the extra money to get refundable tickets.

Like everyone, I still worry about the next CA125, and the next CT Scan, but more and more I am starting to accept that I don't want to be defined by a number or a picture.  After four years, I am more accepting that things just evolve.  You get up each day and do the very best you can to save your life, one day at a time and to live as well as you can.  That's the best any of us can do. Hoping everyone has a pleasant labor day weekend (hot as hell where we are!).  Hugs all around!! - Helen