how to help my husband through this ?
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Similar experiencelarrydsparks said:mucositis
well we only have 10 maybe 11 more rad treatments and 2 more infusions. It is starting to get bad, Larrys throat is soar and now its becoming more challenging to eat. I made a protein smoothie for him this moring and he said it upset his stomach a little. Im not sure what to do to make sure he gets nutrients. I bought almond milk because he said regular milk tastes bad. I put a really good protein powder and strawberries and half a banana. I bought hot tea to try to see if this will help, also mucinex. Also ran humidifier last night. He has the magic mouth wash but it seems to only hlep a little. He has liquid pain killer but dowsnt seem to want to take it. He is spitting stuff out every other minute, and not sleeping well. He doesnt have a feeding tube and nor does he want one. Does anyone have any other ideas????
Your husband's symptoms sound so similar to my husband's. You are definitely in the worst of it. I don't know how you are going to get nutrients into him if he is like my husband. The pain was so bad and the mucus so thick, he wouldn't take anything by mouth including water. He would take his liquid morphine under his tongue only. The feeding tube became a necessity, and intravenous nutrition (TPN) became his lifesaver. Before the TPN, he was getting daily saline drips to keep him hydrated.
My husband is currently 5 weeks post treatment, and still takes nothing by mouth due to the pain. This is the first week since treatment that he has said his pain is starting to lessen.
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push on through
larrydsparks,
Staying hydrated and getting enough nutrition will do more for his treatment and recovery than almost anything else.
He needs to turn any hopelessness in to determination to finish well. I did have a PEG, but I worked at drinking one meal a day. It doesn’t matter how fast he gets the calories, he just needs to get them.
He is getting close to the end, it will get better, just hang in there and kick butt.
Matt
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