Next steps

mvalkosky97
mvalkosky97 Member Posts: 14

Clear cell renal cell carcinoma per surgeon was contained to kidney. Tumor was something like 6cm. Saw oncology yesterday and heading for a brain MRI and PET scan. Hubby doesn't ask questions so I don't know why he is having a brain scan!! So nervous. I first was excited to hear it was contained. Now terrified something is going to pop up somewhere.

Comments

  • stub1969
    stub1969 Member Posts: 978 Member
    edited August 2017 #2
    I think...

    The doctor is just covering all the bases to make sure there is no progression.  Even though the pathology said it was contained, there is still a chance that cancer cells traveled and settled.  I applaud your doctor for being thorough.  Once this is completed and you get the all clear--make sure you keep up with ongoing scans.  Do you have a scan schedule yet? 

    Good luck!

    Stub

  • Bay Area Guy
    Bay Area Guy Member Posts: 619 Member
    RCC can pop up in a variety

    RCC can pop up in a variety of places, so your doc is just acting out of an abundance of caution.  Your husband will be getting a CT or MRI and a chest X-ray a minimum of every six months for a while.  That's the minimum follow-up.  I had my partial neph done in June, 2016, so I've had two CT's in that time, both showing all clear.  My doc moved me into one scan a year Since there were no signs of anything.

    Best wishes for your husband amd, just as importantly, for you.

  • mvalkosky97
    mvalkosky97 Member Posts: 14
    edited August 2017 #4
    We were just told by surgeon

    We were just told by surgeon he needs a follow up scan in 6 months, but that was before seeing oncology. I assume if the first set of tests are clear he will still follow up again in 6 months. I am glad he is being thorough! Is just making me more nervous instead of more calm. Thank you all!

  • hardo718
    hardo718 Member Posts: 853 Member
    edited August 2017 #5
    Scanxiety affects more than the patient

    Thank God the doctor is being thorough.  I feel for you tho and pray you get the all clear.

    Let us know.

    Donna~