Nerves spared on one side = impotence ?

Any nerve sparing leaves you with a chance for potency. Partial nerve sparing just reduces the odds but not to zero. Rehabilitation will be key, use it or lose it. It can take up to 4 years to get your final result and expect absolutely zero when you first get home. I was zero at catheter removal and I am at around 50% at 9 months. I had one side spared.

Good luck.

George

Aubie,

I wonder your age. I hope my posts do not cause you anxiety. This is a new unknown world for you and I think you are worried about the consequences that any decision may bring later. You have focus on ED but other issues are as important as erections in your future quality of life (without a prostate in place). Incontinence is critical and the surgeon cannot assure you a perfect ride without consequences. His part in the job is to dissect the whole gland without affecting the parts surrounding it. He hopes that cancer is whole within the flesh he cuts out so that you get cured.

The unknown possibilities he (as an urologist) told you regards the issues of later recurrence that would oblige you to additional salvage treatments. For instance his comment on the " ... some in some smaller microscopic lymph nodes ...", sounds to me as an excuse for later recurrence. A good urologist recommends surgery only if the cancer is whole in the gland, otherwise would suggest radiotherapy (out of a surgeon scope).

I am not a doctor and my opinions are based on my experiences as a survivor. I do not know how much they weigh into your decisions but I believe that when discussing on a treatment, cure should be our prime goal. The side effects come in second place. When cure becomes obscure then the quality of life becomes the prime target and all efforts should focus in the side effects that are more dear to us. I can imagine that avoiding ED is your prime goal so that I would recommend you to do nerve spare on both sides which would provide you with higher assurances for faster ED improvement.

In regards to the biopsy data, the location of the specimens is missing. Typically they number the cores starting from the base and going down to the mid and apex regions of each lobe (2x3x2=12),  but many urologists do not follow the traditional template numbering and start from the apex. If we consider that your specimen 7 (closer to the lymphovascular that goes up along the bladder) as being at the base (just next to the bladder), then the specimen 1 is at the same area (the base). The other specimens follow the numbering with 2 cores at each other region in each lobe (right or left). The base of the prostate is closer to the sphincter of the bladder and that is where suspicious of risky metastases seem to be apparent (according to the urologist's comments). Even if the specimen 7 and 1 were from the apex the same reasoning would apply.
The volume of infection (95%, 70% and 50%) is substantially high which in my lay opinion, together with the positive finding for PNI (perineural invasion) guesses an high risk for existing extraprostatic extensions. In fact, cancer cases with PNI usually have a poorer prognosis, because PNI is indicative of perineural spread, one of the routes taken by the bandit to travel out of the prostate and to the lymph nodes.
Surely, we know that some pathologists also mistaken the perineural invasion by perineural impingement of benign acini that can mimic invasion by the cancer but it is benign. When PNI is found usually one should get a second opinion on the biopsy cores from another laboratory.

Gleason score 7 stands for intermediate risk for aggressivity and metastases. It incorporates the rates 3 and 4 in pairs of (3+4), being the ones (4+3) judged as more risky in recurrence cases. In your shoes I would consult another urologist (from a different circle) to get a second opinion on your worries.

You may be interested in reading the ED experience of guys in this forum;

http://www.healingwell.com/community/default.aspx?f=35&m=1701386

Best wishes and luck in your journey.

VGama

I get about a 50% useable erection without drugs or shots and it takes more work. I get a little better some times if I use a vacuum pump. Your outcome in this area relates to the skill of your surgeon, your baseline status and how vigorous you work rehabilitation. I am traveling and don'y have my notes but if I remember correctly my surgeons number are that if you are under 60 and had good baseline function, both sides spared results in around 75% likeyhood and one side spared had a 40% chance. Odds dropped after 60 at the time of the surgery. It's a tough subject that most of us have to come to grips with. There are solutions to this issue if it does not go as well as hoped and it can take up to 4 years for best recovery. I agree with the other guys here that cure should be your first goal and everything else should be considered after that. We can't keep working the problem if we don't stay alive. I believe that for most of us we get adjusted to our new normal eventually and work the problem from our new point of view.

The most common site of recurrance after primary treatment is the point where the base of the prostate met the bladder at the sphincter or in the case of surgery what is now the reconnection point or anastomosis.

George

JS2017 said:

My robotic surgery

I had robotic surgery in December 2016. I was 65 years old and I went through the same decision process and emotions as you, I am assuming. I talked to three surgeons, two at IU Health and one at Urology of Indiana. It was an easy choice to choose one at IU Health as he was very experienced and calm, confident and kind. The doctor at U of I was arrogant, negative and he didn't even bother to make sure he had my records before my appointment.

Prior to surgery, my PSA was at 17 which is very high.

My excellent surgeon was Dr. Ronald Boris.

I also talked to an urgent care doctor when I went into the facility for a different minor problem. He emphatically told me to get the surgery ASAP and save my life. His brother and dad had prostate cancer, so he knew what he was talking about!

The surgery went well, per my surgeon. I was uncomfortable after surgery, but not in much pain, because I had a tube in my throat and my face was swollen, but it all got better within hours.

My stomach had six small incisions which healed well within six weeks.

My nerve was somewhat damaged on one side. The surgeon removed some lymph nodes to make sure he got all of the cancer. My cancer was still encapsulated in the prostate. A month later the PSA test showed zero, meaning no cancer. Second PSA test showed no cancer, too.

Urinary continence returned in just two months! I was so relieved. I tried Cialis and Viagra, but neither of those drugs helped me. Today, I tried Trimix (penile shot). I got a month of shots through Custom Med Apothecary in Indianapolis. It worked perfectly! My erection lasted for several hours. Trimix costs about $95.00 per month. I can afford this, luckily. Medicare does not pay for any of these treatments. Medicare will pay for a surgical implant (I checked). I know you are younger, but I wanted older men to know if they read this post.

The shot was "not that bad" just like my surgeon had said.

If your cancer stage is similar to mine, then you may have the same results. You will have sex again. The orgasm is different, but it's okay. It's just kinda different.

My wife was really happy. She said it was worth the wait. She struggled with depression after surgery, but she went on a low dose of Paxil to help herself cope better. This illness has made a difference in our lives, but we have grown closer because of it. Before surgery, our marriage was rocky. We changed our focus and worked at getting closer again, knowing how things can change quickly when health concerns are involved.

I can't say yet whether I will need to continue with the penile shots forever or whether I will regain normal erections within a year or two. If I do not regain erections, then I will need to think about an implant. I am patient and willing to give my recovery plenty of time.

Hang in there and remain hopeful. Staying calm as much as possible will help you the most after surgery.

Hey JS! Me too. Except IU couldn't get me scheduled for six months or so. So I went with Dr. Farnham at U of I in Carmel. Just wondering where Dr. Arrogante was located... If it was Greenwood U of I, I ditched two different urologists there. They were incredibly disinterested in me, but incredibly interested in milking my insurance co. Eventually Anthem wouldn't even deal with them anymore at Greenwood U of I and put them on a "no go" list. I ended up with Dr. Farnham from recommendation of a friend and my GP's research. I could tell you more about U of I Greenwood, but don't want to risk a libel suit... Things may be better there by now (doubt it). Let me know I'm curious....

Hi Aubie

New to this like you. I can't comment too much on the medical detail as the old lags here know much more than me

What I can say is that I am in a similar boat - G7 (4+3) but luckily T2 (informally confirmed post-op). I expect to be upgraded to an 8 (hopefully not a 9) once I meet the consultant after my surgery a month ago but feeling positive.

I had nerve sparing on one side but had my chitlins (vesicles and lymph nodes removed). This was agreed after a good long chat and me accepting that the results could be anywhere from good to bad and it would be a long term journey to any form of party land.

Post op, I had good continence and can barely get a semi that ASDA would chuck in the reject bin if it was a banana (very unsettling to see your appendage look like a left turn sign ) but things seemed to work after a fashion.

I put the (relative) success down to lots of pre-op core exercise and I have had the importance of Kegels hammered home to me by my continence nurse. Not just for dry times bit after more research I find they are important for ED and orgasms. Every day is Kegel day! There are apps to help.

Although the possible range of a person's sucess is in the lap of the Gods, I think it is important to remember that it is down to us to do the work to get ourselves on the good side of that range, not just for ED but for overall physical and mental health .

The intent expressed to me was always removing the disease, maintaining continence and then sexual function. A common sense order and we need not to misdirect our focus on a very long journey.

Cushions