discouraging appointment

Bluedaisy, sorry you had just a negative experience at your appointment. My oncologist had no bedside manner, either, and I did not like having to deal with him at all. Thankfully I did not require ongoing treatment because he came highly recommended and was 100% on point about my stage and grade prior to surgery.

I have been on this board since 2012, but don't often post. There were several ladies here when I first got diagnosed who were extremely helpful and had alot of knowledge. Some had stages and grades 2 & 3...some had late stage 4. Their journeys were all different and many of them still post. So they are still around.

I think as you move away from this disheartening appointment you will begin to feel better. Nothing like seeing the oncologist or having a treatment session or testing to keep you in a state of fear! God willing you will be around for quite awhile in good shape. Try to focus on the positive.

Best of luck!

Kathy

Lou Ann and Kathy G said it so well.  Dr. Google may have a good side manner but he is a lousy doctor.  There are so many things that are changing now in treatment and no one - no matter how good a doctor they are - can say how long anyone has.  My doctor's nurse said to me, "Go out and LIVE!"  and that is some great advice.  No one knows how long they have.  

I was going on vacation when you first posted this thread, and I only go on here when the mood strikes me.  Today, I looked back a little ways and found your old thread.  I am a 7 year survivor with stage IVb UPSC.  I am currently fighting UPSC (and winning again for the second time).  I actually had over 3 years where I was NED after my first surgery in 2010.  I had a little abdominal pain after that which felt like my incisional hernia was coming back.  It wasn't anything major.  Several doctors examined me and couldn't find a hernia, but when I finally had surgery again this past April, it was found again.  My intestines were actually growing into the mesh from my 2012 hernia repair.  I'd had a small mass found in 2014 which my GYN/onc had watched for a whole year with scans and had decided it wasn't growing, so it couldn't be cancer.  I didn't have a lot of pain or any other major problems.  I guess my biggest symptom, looking back, was that I was craving certain foods a lot, especially a local bakery's special home-style bread.  I also craved sugar frequently.  I know everyone's symptoms are different, but I think mine should have been a lot worse considering the fact that my cancer had spread dramatically fast in a two and a half month period.  I'm sure everyone has different symptoms, but for someone such as myself who was well down the path towards death in my second reoccurrence, they just weren't that bad.  I wasn't even positive I had my cancer back.  My symptoms weren't all that bad the first time around, either.  I thought I had celiac disease, not cancer.  I'm glad my doctor refused to tell me the bad statistics when I first came down with this.  The cancer probably would have spread more from my increased stress level of worrying about it.