Thymic Rebound/mediastinal mass

carolinagirl811
carolinagirl811 Member Posts: 15
in Lymphoma (Hodgkin and Non-Hodgkin) #1

Hello,

I was diagnosed with stage III T-cell lymphoblastic lymphoma in January of 2015. At the time of diagnosis, a "trivial" pericardial effusion was found. My oncologists mainly focused on my large external nodes and I went through two and a half years of chemotherapy on the ALL protocol. A few notes, I was diagnosed with AVN in July of 2015, so my oncologists removed the steroid portion of my protocol. I also experienced methotrexate neurotoxicity in September of 2015, so I started on leucovorin and missed one dose of PEG. In March of 2017, I had a CT scan after telling my oncologist about chest pain. The pericardial effusion was still present. Today, I had a cardiac MRI to follow up the pericardial effusion. A mediastinal mass was found in my chest. I'm not presenting with other symptoms and was wondering if this could be thymic rebound? Does anyone have any experience with this? I go back Friday for a PET scan, but am trying to gain some understanding. 

Thanks

Comments

  • po18guy
    po18guy Member Posts: 1,509 Member
    edited June 2017 #2
    Best to write questions down...

    For doctor. Just what that mass is will have to be determined by further examination and/or biopsy. However, the following study does seem to shed some light on this extremely rare condition. It seems to resolve itself over time, and it is good that it is known as "benign thymic hyperplasia."

    https://www.ncbi.nlm.nih.gov/pubmed/17263694

  • carolinagirl811
    carolinagirl811 Member Posts: 15
    edited June 2017 #3
    po18guy said:

    Best to write questions down...

    For doctor. Just what that mass is will have to be determined by further examination and/or biopsy. However, the following study does seem to shed some light on this extremely rare condition. It seems to resolve itself over time, and it is good that it is known as "benign thymic hyperplasia."

    https://www.ncbi.nlm.nih.gov/pubmed/17263694

    Thanks!

    Thank you for your response! I'm hoping this is the case. Just pretty anxious, but there's nothing I can do but wait!

  • po18guy
    po18guy Member Posts: 1,509 Member
    #4
    carolinagirl811 said:

    Thanks!

    Thank you for your response! I'm hoping this is the case. Just pretty anxious, but there's nothing I can do but wait!

    Life does not stop...

    Even while you are waiting - even though it may feel like it. Stay busy with life. Dive deep into what you love. Take note of how life suddenly becomes more precious when it is threatened.

  • lindary
    lindary Member Posts: 711 Member
    #5
    Hard to wait

    It can be hard to waiting to get a diagnosis. As Po said, stay busy. Get your questions ready for the dr. Good luck.

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