Waiting for diagnose and panicking

We   were all scared in the begining. The good news is that if it is of concern the lesions are as small as they get and usually close to 100% curable from surgery. Because there is a possability of a concern in both kidneys they may lookat the possability of different procedures   such as cyro and/or abalation. And still because it/they are so small they may want to watch and wait. Whatever the uktimate course of action we will help you thru this. We have all been there and done that.

Icemantoo

Hi, I'm also waiting for a diagnosis, but they haven't said "probable" cancer, so I feel that I'm kind of in limbo.  I have two genetic mutations that predispose me to a bunch of different cancers, and I'm freaked out, so I can't imagine your level of stress having already had multiple cancers! Just wanting to send some positive thoughts and support your way. 

pat1965 said:

Hi Suki, nobody said the

Hi Suki, nobody said the probable, its just me assuming. I'd rather expect the worst and be wrong than the opposite. Kind of survival strategy.

I am thinking about getting a genetic evaluation done this time, too. BRACC came negative. They considered Cowden syndrome, but I didn't take the test for it (never showed other symptoms except for the cancers). I always thought my cancers were hormone related, annow kidney... Anyway, I kind of expected it and look at it as closely as I can, but, cancer free for 6 years, I thought that maybe it left me... Having been there so many times, all I want is to get the info so that I can move and get all this behind me as soon as I can. That's what I am anxious about. Hoping for the best for you!

Hi Pat!

I recently found out that I'm  positive for PALB2, ATM and I have a variance of PTEN, (which goes along with Cowden's syndrome).  The genetic counselor was shocked that I've made it to 51 without getting cancer with my genetics and the fact that there is sooo much cancer in my family.  I feel like a cancer time-bomb!   I am in the process of finding a surgeon for a prophylactic mastectomy, and I've been side-lined by this kidney thing!  I also have a thyroid nodule that was "indeterminate", and now that I know about my gene mutations, they will have to look at that again too.  

I am also a person that expects the worst and then it's a wonderful surprise when things go well, so I totally get it!  

Pat, the waiting is terrible but even if it's cancer it's so small that a partial nephrectomy would most likely be the end of it. As for the other growth on your right kidney, it's a good sign that it hasn't changed and is probably a cyst. Having bilateral kidney cancer is pretty rare. I had a partial neph 3 years ago and the worry and anticipation were way worse than the surgery and recovery. Not a walk in the park of course but nothing unmanageable. I was surprised how well I did and how quickly. Hang in there!

I can't imagine what you've been through! We have a member here whose small kidney lesion was monitored for 1.5 years and had barely grown. It appeared to be RCC when removed, but even during 1.5 watch and wait it didn't get mets. Kidney cancers are rather slow growing, so it is kinda safe to wait  some months with small tumors. Wish you luck and no more cancers!

Natty.

At 1.2 cm, whatever it is, it was found early. Lets hope it is not C, but if it is it is as close to 100% curable as can be. It may even be too small to determine. Before you know it you will be around for your grandchildren.

Icemantoo