Newly diagnosed

Rahs
Rahs Member Posts: 3
in Lymphoma (Hodgkin and Non-Hodgkin) #1

I was diagnosed on March 25, 2017 With TCell Pll. I took 12 rounds of Chempath, I got so sick that on April 21' 2017 i went for another round.  I didn't know my name they immediately put me in the hospitaL. I was there for over a month with a very sick liver.

I had told my doctor that I felt the same and something was not right.   The pathologist still had some of my bone marrow and retested it. I was misdiagnose.  I was then told I have Tcell NHL.  My WBC was over a million.  I am getting ready to start chopped with a e next week.  This will be my third round of this.

I apogolize if words come out wrong or misspelled.  I am having blurred vision and constant dizzines.  Is anyone else having these symptoms?  thank you for any help.

Comments

  • po18guy
    po18guy Member Posts: 1,509 Member
    #2
    You need a T-Cell specialist!

    T-Cell malignancies are rare. Very few hematologists have much, if any, experience with them. Treatment is not well defined. In which country are you located?

  • Rahs
    Rahs Member Posts: 3
    #3
    po18guy said:

    You need a T-Cell specialist!

    T-Cell malignancies are rare. Very few hematologists have much, if any, experience with them. Treatment is not well defined. In which country are you located?

    Location

    I am in USA the state of Ohio.

  • lindary
    lindary Member Posts: 711 Member
    #4
    diagnosis

    Rahs,

    You have had a rough road. When You said chopped did you mean you will be getting CHOP or are you getting R-CHOP? The difference is the R, Rituxan. I had this for treatment of follicular lymphoma and it did well. I hope you have good results. 

  • Rahs
    Rahs Member Posts: 3
    #5
    lindary said:

    diagnosis

    Rahs,

    You have had a rough road. When You said chopped did you mean you will be getting CHOP or are you getting R-CHOP? The difference is the R, Rituxan. I had this for treatment of follicular lymphoma and it did well. I hope you have good results. 

    I am getting Chop with a E

    I am getting Chop with a E thank you for the information.

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