Hello mucositis!

frokker68
frokker68 Member Posts: 49 Member
in Head and Neck Cancer #1

Well. That didn't take long.  3 chemos and 13 rads in and my mouth is killing me!  Mainly back of throat.  Gargling with baking soda & salt solution, biotene rinse and oragel rinse.    Only helps for a few minutes it seems.  I managed to suck down a spoon of honey and that brought some relief too.   

Anything else I can try?   

Keith

Comments

  • Chicklette
    Chicklette Member Posts: 225
    #2
    Magic Mouthwash/ Chloroceptic Spray

    My husband is just starting to get a bit of mucousitis, too.  He has been very fortunate as far as pain is concerned. He has been using a combo of ibuprofen, acetaminophin, tussin dm, saltwater rinses.  He also gets acupuncture three times a week and we think that helps a lot.  He just picked up a RX of magic mouthwash, but has not tried it yet.  Ask your doctor to prescribe that for you.  I've heard many members say it's a lifesaver.  Good luck on your journey... you are a third of the way there!

  • mskitty137
    mskitty137 Member Posts: 73
    edited May 2017 #3
    Ask your doctor about

    Ask your doctor about tetracaine lollipops.  They have to be made at a pharmacy that does coumpunds. The numbing effect doesn't last very long but it definitely helped my husband with eating and taking pills. 

  • Chicklette
    Chicklette Member Posts: 225
    #4
    Spray

    my husband also uses chloroceptic mouth spray and it works well.  (He told me to tell you to make sure it's alcohol free)

  • Andy13460
    Andy13460 Member Posts: 115
    edited May 2017 #5
    12 Rads

    Im 12 rads in taste has just about left the building and saliva is sort of working, same as you mouth is sore at the back.

    Im using baking soda & salt mouth wash, Diflam mouth wash which has an anesthetic in it  I also find good old ice cream soothing. Im getting into the habbit of constantly sipping and swallowing small amounts of water

    Pain meds at the moment are Solpadeine soluble tablets.

    My Chemos different to yours I get 3 large doses of Cisplatin on day's 1, 22 & 43

  • Chicklette
    Chicklette Member Posts: 225
    #6
    Andy13460 said:

    12 Rads

    Im 12 rads in taste has just about left the building and saliva is sort of working, same as you mouth is sore at the back.

    Im using baking soda & salt mouth wash, Diflam mouth wash which has an anesthetic in it  I also find good old ice cream soothing. Im getting into the habbit of constantly sipping and swallowing small amounts of water

    Pain meds at the moment are Solpadeine soluble tablets.

    My Chemos different to yours I get 3 large doses of Cisplatin on day's 1, 22 & 43

    Taste

    we got ice cream tonight and my husband could only taste the salt in the peanut butter (he got a peanut butter cup flurry). He couldn't taste the ice cream at all, but it felt good on his throat. :)

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #7
    the infamous week 3

    Hi Keith,

    For me and not for everybody, my vintage of magic mouth wash worked great for throat, mouth and tongue discomfort.  Doctors use different formulas, but mine was very good.  I went through 6 bottles and I sipped, swished and swallowed every drop.  I used to take a hit of it in the parking lot of the rad center.  Magic mouth wash is on my top 3 side effect aids.

    Do whatever you need to, to get through this.  Keep drinking water and swallowing and keep your nutrition up.

    Matt

     

     

  • frokker68
    frokker68 Member Posts: 49 Member
    edited May 2017 #8
    Thanks everyone.  Tuesday ill

    Thanks everyone.  Tuesday ill be sure to ask for magic mouthwash.   Until then, I'll keep doing what I have been doing. 

  • jpmsd
    jpmsd Member Posts: 14
    #9
    mucousitis is no joke. It put

    mucousitis is no joke. It put me in the hospital and I came out with a feeding tube.

    I feel for ya. The magic mouthwash worked for me for 5 minutes. In the hospital they gave me a ketamine rinse that allowed me to speak for about an hour. Wouldn't send me home with it though. 

    Within a week or so after treatment ended my mouth healed. 

  • jmain
    jmain Member Posts: 3
    #10
    What worked for me

    Kevin, 

    Ask  your doctor about Muguard. My oncologist got me this product before I started my radiation. . I was the first of her patients to use it, and the only one that never got mucousitis. It is expensive, but the company paid for it.  You can read about it here: http://www.mugard.com/ . 

    Hope things get better for you.

     

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