Adult Gliomatosis Cerebri.

I was diagnosed in October of 2013 with a brain tumor.  They weren't sure exactly what tyoe of tumor it was.  I had surgery, and was told that they removed about 50-60% (not very reassuring) and it was a grade II Astrocytoma.  "slow Growing".  Since then, i had radiation about a half a year later.  Not sure that it did much to improve my condition.  I had follow-up MRI's and there was one small spot that they said they were keeping an eye on.  "Could just be radiation necrosis".  Didn't really have any problems for a while.  Last spring i started getting dizziness, and verigo.  I menioned it to my neursurgeon, and i honestly don't even recall what he said.  I had felt that for a while he was very nonchalant about questions i was asking him. Showed me a post-surgical MRI, and a current one (at the time) and said "well there's a lot of this white stuff in the current one..." I asked what that was, and he told me "wel, that's thought to be pre-cancerous cells, but we're not treating that, we're treating that, we're more concerned with this area back here" I was really confused.  I went to a pretty reputable hospital in Philly, and felt confident that they knew what they were doing.  The dizziness and vertigo continued, and i decided to switch hospitals, and go to MSK in New York.  Luckily they have a branch outside the city which has far easier access.  I've always heard that next to MD Anderson, they were second best in the country for cancer.  So, after a first appointment, and i had an up to date MRI, the doctor says "did they tell you that there is another spot towards the back of your head?" I was like "NO". seriously? idk, i don't feel confident, or informed by any doctors.  I read the report from the last MRI, and it says Impression: Since February 17, 2010 progression of Gliomatosis cerebri . So, what the heck?? They have since put me on Temodar 5/23 for a year with close monitoring to see if it is going to help.  I just started my 5th cycle this week, and so far nothing.  This sucks!  I feel bad for anyone else dealing with this, especially children.  Most days i stay positive, but sometimes it really gets me down.  My only savior is the almighty one.  I tell myself there is a better place than this earth, and i truely believe it, but sometimes it's hard living with the fact that my life is probably going to be considerably shorter than i anticpated. 

BTW, i'm 44.  I'll be 45 in another 17 days