I don't know if I'm allowed to post, waiting for biopsy and scared

Julieotte5 said:

Well I got my results today-

Well I got my results today--pap is normal and nothing abnormal on the endometrial biopsy. Diagnosis is adenomyosis. I'm scheduled for a LVAH hysterectomy may 30. I really want to thank everyone here for holding my hand and giving me the strength to speak up and ask questions. I won't soon forget that. I wish you all the very best in your journeys. Thank you again and I'll still be listening to my body. Thank you for letting me hang around here for a few weeks.

I'm so glad that you finally have a diagnosis that helps explain what you have been experiencing. Good luck on the surgery and recovery. Wishing you all the best, Kim

Hi, my name is Rosemary.  I am 63 yo and newly diagnosed with Stage IV UPSC.  I live in Baltimore and will shortly be beginning chemotherapy at Sinai Hospital under Dr. Abbie Fields.  I am stunned and afraid.  Investigating on internet shows the direst of prognoses.  Not sure what to believe, but feel that I will either succomb to disease or be physically diminished by treatment.  I need to be more positive going into treatment.  Prognosis unclear.  

rdifatta said:

upsc

Hi, my name is Rosemary.  I am 63 yo and newly diagnosed with Stage IV UPSC.  I live in Baltimore and will shortly be beginning chemotherapy at Sinai Hospital under Dr. Abbie Fields.  I am stunned and afraid.  Investigating on internet shows the direst of prognoses.  Not sure what to believe, but feel that I will either succomb to disease or be physically diminished by treatment.  I need to be more positive going into treatment.  Prognosis unclear.  

Rosemary, I am so very sorry to hear of your recent diagnosis. I know that it may seem impossible at this time but please do what you can to try to stay hopeful.

Please also try not to pay too much attention to the statistics you will read online. Many of the people in those studies could had other health issues that contributed to their deaths that were not listed in the reports. You are a statistic of one. Focus on you.

Treatment is not fun in any way but you will probably find that it is also not as terrifying as you may think. I had surgery, chemo and radiation and had very few side effects. I worked full-time (desk job) through both the chemo and radiation treatments. My experience may not be like yours but I'm sharing this so that you know that treatment is do-able and that others have made it through and came out virtually unscathed at the other end. 

At this early stage my advice is 1) try to gather copies of all of your surgery and pathology reports. They may come in handy if you need to get a second or third opinion (like I did). 2) Do some research and find out if there are cancer centers near you that specialize in your particular type of uterine cancer. 3) Surround yourself with a medical team who has your best interest at heart and then trust them to do all they can to help ensure that you have a long and very happy life.

You can do this! And we'll be here to help in whatever way you need.

Wishing you peace and strength, Kim

Kvdyson said:

Rosemary, I am so very sorry

Rosemary, I am so very sorry to hear of your recent diagnosis. I know that it may seem impossible at this time but please do what you can to try to stay hopeful.

Please also try not to pay too much attention to the statistics you will read online. Many of the people in those studies could had other health issues that contributed to their deaths that were not listed in the reports. You are a statistic of one. Focus on you.

Treatment is not fun in any way but you will probably find that it is also not as terrifying as you may think. I had surgery, chemo and radiation and had very few side effects. I worked full-time (desk job) through both the chemo and radiation treatments. My experience may not be like yours but I'm sharing this so that you know that treatment is do-able and that others have made it through and came out virtually unscathed at the other end. 

At this early stage my advice is 1) try to gather copies of all of your surgery and pathology reports. They may come in handy if you need to get a second or third opinion (like I did). 2) Do some research and find out if there are cancer centers near you that specialize in your particular type of uterine cancer. 3) Surround yourself with a medical team who has your best interest at heart and then trust them to do all they can to help ensure that you have a long and very happy life.

You can do this! And we'll be here to help in whatever way you need.

Wishing you peace and strength, Kim

Thanks, Kim.  I'll do my best to stay positive.  My port placement is scheduled for 6/13.  Here we go.  Rosemary

Hi Rosemary,  Last year about this time ( I remember because it started Chemo right after my birthday which is june 10th) I was in a very similair place as you are.   I cant help but think about how scared I was.  But I will tell you this.  This support group helped me eery step of the way.  My fears were calmed, my experiences easier because I was not alone.  When I had a hard day I shared it here and felt support and love.

I want to wish you the best as you go forward in your journey.  Let us know when you start you treatment.

Love Janae