Please share your symptoms before diagnosed , any association with cervical cancer?

Most people who have uterine cancer do not have positive pap smears.  Only when some of the cancerous cells from the uterus have migrated to the cervix does the pap smear show up with positive results.  So don't let a negative pap smear make you think you're in the clear.  You may or may not be.  I used to get a sharp pain in my lower left side once a day.  My uterine cancer had spread to both ovaries and a couple of other places back in 2010.  I think that twinge of pain I was feeling was coming from the cancer in my left ovary.  The pain you're feeling could be something unrelated to uterine cancer, like sciatica, which goes down one side into your leg.  However, the painful periods are worrisome.  Mine were painful from the age of 14 on.  My periods had started when I was 12, but the bad cramps didn't start until a couple of years later.  Have you asked if you can have a colonoscopy because of your family history?  I know it's a bit early for that because you haven't hit 50 yet, but I would want to have one in your situation.  I had sharp pains a few times while getting into bed starting in 2014.  I felt like my hernia was coming back, which it was, but I found out a couple of months ago that I also had a return of my uterine cancer which was wrapping itself right around my ascending colon.  I also had that "something isn't right" feeling of terrible pain, although I complained to various doctors over the years who didn't find anything. My GYN/onc had found a small mass back then, but it was too small to biopsy.  He kept a watch on it for a whole year with scans, but it never grew.  Then he decided it wasn't cancer.  But it really was.  Keep being your own advocate.  See if you can get doctors to order an ultrasound, a CT scan, and a colonoscopy on you after you finish your UTI meds if you still have pain then. You may have a genetic abnormality that has come down through your family.  By the way, before I was diagnosed with my uterine cancer in 2010, I was convinced I had celiac disease.  My mother was diagnosed with that at age 84.  I had myself tested for that twice but both tests were negative.  I had no idea I had anything as serious as stage IVb Uterine Papillary Serous Carcinoma.  I actually felt pretty healthy except for a few pains occasionally and some bad fatigue at times.  I eventually ended up bleeding and that's what got me diagnosed.  Your problems may not even be cancer.  You could have an ovarian cyst which could be causing you this pain.  Let's hope it's something less serious like that.  Just keep bringing it up to your doctors until they do something to diagnose it for you.  Good luck.  

I am in treatment for my second recurrence of edometroid adenocarcinoma.  When first diagnosed, in 2005, the symptom was post-menopausal bleeding.  I am grateful that an oby-gyn had told me that I had reached full menopause and so no amount of bleeding should be ignored.  Although it was early stage (IC) and low-ish grade (2), and I was declared "cured" after surgery and external radiation, I had a recurrence in 2012.  Then, the symptom was a persistent ached in my lower right spinal area.  Actually, I think the cancer was diagnosable in 2010 when I had two episodes that year of a sudden onset of excruciating pain.  Both times I went to the ER and got a morphine shot that eliminated the pain.  We were going through a lot of family and job turmoil at the time and I did not pursue the issue further.  Then, in 2012, I was being seen by a sports medicine doctor to explore the constant ache.  After conservative measures, NSAIDs and exercises, with no change in the pain and a sense that what I was feeling was visceral pain and an inability to get into the car without lifting my right leg into the footwell, I insisted on a CT.  It showed a mass in the para-aortic node area.  A fine needle biopsy confirmed the recurrence diagnosis and during the procedure the doctor triggered a pain very intense.  Turns out the tumor was pressing on my psoas nerve/muscle complex; so there never was sciatica or any sports-related issue.  Treatment was radiation and hormone therapy that kept me in remission for 5 years.  This latest time, in November 2016, I had no symptoms except one day I passed copious blood in my urine for half a day.  My gyn-onc scheduled a CT and referred me to a urologist.  The urological oncologist did a thorough exam and testing and found nothing but the CT showed scattered nodules in my lungs.  My advice to you is not to ignore any pain.  It would seem to me that you, as a woman with a previous diagnosis of carcinoma in situ, should not have any trouble with a gyn oncologist getting insurance OK to whatever is necessary to rule out a gynecological cancer.  That is what I would say to him/her "I want you to rule out cancer" and take someone with you to the appointment if need be to politely indicate you have a witness to your demand.  Good luck.  After all is said and done, if the proper testing shows no problem, that's great.  But once you have doubts about your health, you probably will find you can't put them out of your mind.  Hence be assertive in your insistence that someone do what's necessary to demonstrate you are cancer free.  Best wishes.  Oldbeauty

derMaus said:

Appreciate the details

I go Thursday for a needle biopsy on enlarged para-aortic lymph nodes, my recurrence (original occurrence?) that I picked up while chemo was going on.  I've also had sciatica on the right side which isn't responding to my usual 'tricks', although it has been diminishing somewhat through low level use of NSAID's. I asked the doc if the lymph nodes (one is 3 cm) could be impinging on the nerve; he said possibly. Now that I read your post, I again wonder if the two are somehow related in my case as well. Thanks for taking the time to write in detail; I find it quite helpful.

I hope you get complete answers and an effective treatment plan after the procedure on Thursday.  I had radiation for the para-aortic node, and, at the same time, they had found scattered lesions in my lungs and a suspicious clavicular node.  Those were left to be the "guinea pigs" for the progesterone treatment.  Everything was effective.  The radiated node has never reappeared and neither has the clavicular node.  That and the lung lesions resolved for 5 years with the hormone therapy.  Now the lung has resurfaced and I am in chemo for the first time.  I don't want to scare you but if the mass is impinging on the nerve, just several days after my fine-needle biopsy when the doctor triggered intense pain, I again suffered a sudden onset of excruciating pain.  This time, I was met at the hospital by my doctor's fellow and I subsequently was admitted for a few days for cancer pain management.  If you are having a Ct-guided FNB, maybe they can take another look at the involvement and I would at least talk to my doctor about what s/he wants me to do if the procedure triggers severe nerve pain.  Best wishes.  Oldbeauty

Hey Concerned - Good news on your tests! Have you had an MRI on your hip?  If there is a problem with it, much of the time it will cause a pain in your pelvic area. I'm wondering if a sports medicine specialist or an orthopedic doctor would be your next stop? It doesn't sound like any of this is 'in your head' to me! I hope you find answers soon. Please come back and let us know if you do.

Love and Hugs,

Cindi