New to forum, starting chemo (oxilaplatin and capecitabine) on April 24

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  • beaumontdave
    beaumontdave Member Posts: 1,289 Member
    #22
    Betsydoglover said:

    Xeloda and oxyplatin

    I was on both plus Avastin for 6 treatments (later on just Xeloda and Avastin).

    The oxy caused this weird cold sensitivity and "first bite" syndrome - temporarily feeling like there were glass shard in your throat - but very temporary.  Both went away after a few days.  I'd come home from chemo with my fingers tingling, but not really painful.  I did not have a port and after a few treatments, my infusion arm would feel sort of numb and tingly - went away in a week or two  and was totally tolerable.

    I was on the 2 week on/1 week off Xeloda plan with oxalilatin every 3 weeks.  At that time I was only working M-W (not related to chemo).  I had chemo on Monday, took the next 2 days off and then worked for the next 2 weeks with no problem.

     

    Hope this helps.

    Don't know that I'd seen you

    Don't know that I'd seen you post before, but I'm glad you filled out the profile so I could read your stage 4 survivor story. It inspires, congratulations....................................Dave

  • EissetB
    EissetB Member Posts: 133
    #23
    I am very SCARED

    I now have port-a-cath, and will be on six months FOLFOX treatment 2x a month session!! Ever since I came to live here in USA I only gotten sick 3x with flu. Then here I am, diagnosed with colon cancer stage 3!! I was shaken when the onc revealed the findings. They cut 8" with 2 massive tumor. Resection done, but port-a-cath implanted for FOLFOX treatment. 1st session was done on April 14, the second session will be on the 28th of this month. I have 12 treatment sessions for 6 months. I have minor reaction from the first session. My glands were tender when chewing which lasted for a few seconds. Other than this I'm okay, I guess. I am now scared for the coming sessions. I kind of wonder if reactions are different in every sessions

  • marbleotis
    marbleotis Member Posts: 720 Member
    edited April 2017 #24
    Welcome

    Welcome and sorry you are here.

    I was stage 3b signet cell and am now over 5 years NED  My Onc just released me from care this week.  So I am thrilled.

    What I had was the surgery, then 6 months of Oxcilipaltin and 5FU.  I still have the after effects neuropathy but I am still here.

    Do not think about all the up coming sessions.  Take one at a time.  You can and will get through this.

    Keep us posted, this forum is a great place for support, info, sharing and just because.

    Enjoy all your milestones, like chemo #1 is done, then #2 and so on.............

  • Bellen
    Bellen Member Posts: 281 Member
    #25
    Compassionate shots from drug company

    I have white bone cell shots five days in a row after 5 Fu bottle comes off.  I did not have much coverage for these very expensive shots - the drug company provided several vials for compassionate reasons, so this is definitely something to look into, if you do not have insurance coverage for drugs that you need.  Best wishes.

  • gsmith53
    gsmith53 Member Posts: 27
    edited May 2017 #26
    Betsydoglover said:

    Xeloda and oxyplatin

    I was on both plus Avastin for 6 treatments (later on just Xeloda and Avastin).

    The oxy caused this weird cold sensitivity and "first bite" syndrome - temporarily feeling like there were glass shard in your throat - but very temporary.  Both went away after a few days.  I'd come home from chemo with my fingers tingling, but not really painful.  I did not have a port and after a few treatments, my infusion arm would feel sort of numb and tingly - went away in a week or two  and was totally tolerable.

    I was on the 2 week on/1 week off Xeloda plan with oxalilatin every 3 weeks.  At that time I was only working M-W (not related to chemo).  I had chemo on Monday, took the next 2 days off and then worked for the next 2 weeks with no problem.

     

    Hope this helps.

    weird first bite syndrome

    Yeah. I forgot to mention that. That was probably the most annoying thing. I would eat a bananna in the morning. Who would have thought that a bite of a bananna would give me a shooting pain in my cheek. Only the first bite. It's really weird. But, I've gotten used to it.

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