Endometrial - stage 3c

Feedthekitty said:

Considering Chemo but no radiation

Wondering if anyone with Stage 3C2 (spread to paraortic, pelvic and parametrial lymph nodes) Grade 3,  has opted to do just the chemo and not the radiation. Recommendation is 3 rounds paclitaxol and carboplatin, 6 weeks of external extended field pelvic radiation, 3 more rounds of chemo.  I worry that the doctors minimize the possibility of chronic and or long term side effects of this kind of radiation. I want to have a good idea of what my quality of life would be.  When I read what it can do to pelvic bones, bowels, lymphadema, urinary issues and stomach issues, I don't know how much of a gamble I'm taking. I'm 65 and have always been super healthy.  I don't want to live longer just to be managing side effects.    And I can't help but think the delay to get surgery from the time my symptoms were first addressed to 100 days later when I had the hysterectomy put me in a higher risk catergory with the paraortic lymph involvement. It is hard not to be bitter about that.  I think I can handle the chemo better than the radiation.  With no radiation I will be getting 6 rounds of chemo.  Not sure what my odds are of making it to the 5yr mark with or without recurrence.

I had 3C-3 endometrial cancer and had 5 weeks external radiation as well as 3 brachytherapy and 6 rounds of carbo taxol. I finished all treatment in June and am currently clear of cancer. Yes, unfortunately I do have bowel issues and after I talk to the gastroenterologist hopefully Monday about my current situation I may start a new thread on the uterine board about it. Have you been on that board? I don't think I've seen you on there. It is a very active board, so if you haven't gone on it I suggest you try it out.

Hello all. My name is Kathy. I was diagnosed with Grade 1 3c endo cancer in Sept 2014. Had 6 months of chemoand 25 radiation. Poppy size cell found in one lymph node. Am now on every 4 month check up schedule. My check up is on Wed. Very scared. Every little ache or pain I think cancer is back. I had no symptoms when it was discovered so I am living in fear of the same thing happening. Check ups consists of pelvic and Ca 125. Docs say CA 125 is unreliable soI don't know why it's done- it causes so much fear. Have been pushing for CT or Pet but am told - at two different hospitals it is not "protocol." I'm sure that's another term for insurance doesn't cover it, but for piece of mind I'd pay myself. I seem defenseless. Is anyone willing to email me and keep in touch? I am

so afraid ALL the time. I am 63 with a 5 yr old granddaughter that I want to be around for. Any support would be appreciated. My email is mud53@aol.com

Thank you

I was diagnosed with 111C2 adenocarcinoma uterine cancer- in 9 mths total June 2016- Dec 2016 I did chemo (taxol and Carbo)  25 rounds of external radiation and 3 brachytherapies- last moth I was told I was in remission- NED! I did very well with treatment. Yes I have bowel issues, but nothing Imodium can't help with. Chemo left me with neuropathy mainly my fingertips and my feet, but it's not dibilitating, it takes a bit for my legs to get started and by the end of the day they ache a little and fatigue still sets in when it wants, but Iam able to do everything I did before. Hang in there! I'm 53 and have a new grand baby coming this Dec. I have a lot of plans for me and my little one. Sending  hugs and prayers

Feedthekitty said:

Finished 3 rounds of chemo

As scared as I was of chemo, I'm tolerating it pretty well. Carbo/taxol every 21 days. I take a glutamine supplement to minimize mouth sores (have not had any) and neuropathy. I also get acupuncture on infusion days. Neuropathy has been minimal and is gone before next  chemo. My onc suggested 24hrs claritin for first 4 or 5 days for muscle aches. My first round I didn't take it and had one night that was very painful! Last 2 rounds I think the claritin helped a lot. Zofran totally effective. No nausea at all. I take it for 4 days following chemo.My petscan is later this month along with consult with  proton beam doc as well as radiologist. I'm still not sold on the idea of radiation because of the side effects. They can't predict how someone will do or who will wind up with ongoing issues. Because of para aortic node involvement, it's extended field radiation.  Unpredictable bowels and digestion issues can really affect ones life. I have 10 days to  ponder things before I need to decide!

Unpredictable issues - is a pain, but they can be managed. I am having more issues now than before. I make sure to take Imodium before going any where I don't have time to mess with those issues. I did the carbo/taxol radiation and brachytherapy I'm a 3c2 also. I think with C we have to take the bad (effects) with the good (life) . It changes us no matter what we choose - choose what's best for you hugs and prayers. 

Christine, my story is much like yours, but my treatments need June 2016. I pray by June 2018 my hair will reach my shoulders, but it has a long way to go! I think this has been mentioned before, but endometrial cancer is a type of uterine cancer and I am on that board which is very active:)

Feedthekitty said:

Considering Chemo but no radiation

Wondering if anyone with Stage 3C2 (spread to paraortic, pelvic and parametrial lymph nodes) Grade 3,  has opted to do just the chemo and not the radiation. Recommendation is 3 rounds paclitaxol and carboplatin, 6 weeks of external extended field pelvic radiation, 3 more rounds of chemo.  I worry that the doctors minimize the possibility of chronic and or long term side effects of this kind of radiation. I want to have a good idea of what my quality of life would be.  When I read what it can do to pelvic bones, bowels, lymphadema, urinary issues and stomach issues, I don't know how much of a gamble I'm taking. I'm 65 and have always been super healthy.  I don't want to live longer just to be managing side effects.    And I can't help but think the delay to get surgery from the time my symptoms were first addressed to 100 days later when I had the hysterectomy put me in a higher risk catergory with the paraortic lymph involvement. It is hard not to be bitter about that.  I think I can handle the chemo better than the radiation.  With no radiation I will be getting 6 rounds of chemo.  Not sure what my odds are of making it to the 5yr mark with or without recurrence.

I was diagnosed with 3C1 grade 1 in January 2018 and it was highly recommended that I do both chemo and radiation.  I chose to do only the 6 rounds of chemo.  Chemo was completed end of May 2018.  I am currently in remission.  What did you decide to do and how are you doing?

I was diagnosed with stage 3 uterus cancer or endometrial cancer on may 10 of this year five days before my 30th birthday. I'm doing 6 months of chemo then radiation and of course before all that I had a  hysterectomy. going to surgery really was hoping that I didn't have to have a full hysterectomy but once he got inside and open me up he saw the cancer was everywhere.  I went to the hospital was because I had this excruciating pain in my stomach. I thought i had kidney stones ended up having a mass on my left ovary which led to all this I'm not sure how to deal with it all

hojo said:

hi my name is ronnie and i am a survivor of stage 3 endometrial cancer, diagnosed 12/99 at 47,,,,i also had radiation and 6mos of chemo...and today i am great, healthy and happy to be replying to your note ...let me know how i can help....

Thank you for your post. I'm 44 and have stage 3 endometrial cancer. Your post brings me much hope!!!

So glad your well!