One month on votrient

That's great. I'm glad the side effects have been relatively mild--assuming the nausea is easy to cope with.

Get ready for white hair.

My hubby has also just completed his first month on Votrient too. He also has had limited side effects so far anyway. He pointed out that he can see white roots appearing on his hair and he knows it will all white-certainly the least big deal ever for him. I was wondering when other people felt the side effects start kicking in. 
Thanks to everyone for being there.

Sslee723 said:

How long before hair went

How long before hair went white?

It took me about 6 weeks for the white hair to show up. It'll start (probably obviously) at the roots.

So, when I began Votrient, I had dark brown hair/beard with white roots. Now that I'm off of Votrient, I have white hair/beard with dark brown roots. Really an interesting look.

Sslee723 said:

Well not doing well one month and a few days

just when I thought this wasn't gonna be that bad I spoke to soon.  I have severe pains in my abdomen, migraine like headache.  I honestly could barely get out of bed all day.  Does that sound more like it ?

Mine went up suddenly (to 198/--) and prompted some headaches. Blood pressure meds remidied the issue and the headaches. 

Abdominal cramping was a side effect too.

I'm sorry you have to go through this.

specifically but I started votrient at 800mg when at my weakest and most vulnerable time. I started while I was still having my near death experiences. I was sooo...sick. Maybe 3 months later it was reduced to 400mg. I had the severe weight loss, diarrhea, nausea, and vomiting.Lost all taste, and had mouth sores. Here I was. No longer believing I was superman. I thought I had been real tough. But this was killing me. Then I find guys like Abunai who breezed through 800mg dose. I felt like a real loser. Hair and beard was so white it was nearly transparent. Now I have learned the hard way that we are all pioneers with these drugs. I know if something works, stay with it despite se's. But dose reduction has to be an option. Cabo is in the same class as a tki. And supposedly more difficult to tolerate. But because I take a medium dose and on alternate days, it is not so bad. Keep that in mind when negotiating with oncologist. I hear too often that many docs will only stick to the book in re: to dose and freq.

High blood pressure is a side affect and can be the cause of headache. Notify the doctor.  Usually on Votrient you need to take pressure pills until it is balanced. Sometimes more than one.  Do a search on here for side affects of votrient as there is alot on helpful info.

I managed 4 1/2 years on 800mg a day. I too had stomach issues. Pantoprazole did the trick. Thats a prescription med. Short tem Zantac 75 was a life saver till I got the script. It was like a hot coal was sitting on the left side of my stomach. Was on 10 mg lisonipril. Diarrhea was pretty bad. Lamotil tool care of that. Get the white hair yet? Mine went in 1 1/2 months. The drug worked wonders for me. Shrank all the tumors about 50%. Then after 4 1/2 years it stopped. Now on a clinical trial. Scan #2 next week.

rhominator said:

Success stories

Ed, long-term success stories like yours gave me a lot of hope when I started this journey.

Good luck. I hope you have a run like mine. When it stopped working for me the doctor told me there are many many more other therapys.