Newly diagnosed HER2 positive ER/PR negative

Strongmama
Strongmama Member Posts: 9
edited March 2017 in Breast Cancer #1

im  newly diagnosed with IDC ER/PR negative HER2 positive.  I felt my tumor in the shower on January 28, and got the call on March 3.... Cancer.  I have no family history of breast cancer and am waiting for genetic testing results.  Meanwhile I have met my surgeon and oncologist, have had an MRI, meeting a new radiologist on Monday to review MRI, CT chest scan scheduled as well as heart image, chemo class is this Thursday.  I am scared ****less.  Is anyone else HER2 positive 

Comments

  • Apaugh
    Apaugh Member Posts: 850 Member
    edited March 2017 #2
    Hi

    I am.   I have been getting many forms of chemo since May of 2016.   I had a bilateral masectomy in March of 2016.  I will complete my chemo July of 2017.  It is not easy but it is managable.  take it a min. at a time if you have to but dont give up.  fight fight fight like a girl.

    Hugs,

    annie

  • CoastalMom
    CoastalMom Member Posts: 38
    #3
    HER2+ Double Neg

    I was diagnosed with HER2+ ER/PR neg in July 2015.  It is a very long road but you will get through it!!  I finished treatment in August 2016,  yes I was in treatment a full year!  I am doing great!!  

  • Strongmama
    Strongmama Member Posts: 9
    edited March 2017 #4
    Apaugh said:

    Hi

    I am.   I have been getting many forms of chemo since May of 2016.   I had a bilateral masectomy in March of 2016.  I will complete my chemo July of 2017.  It is not easy but it is managable.  take it a min. at a time if you have to but dont give up.  fight fight fight like a girl.

    Hugs,

    annie

    Thanks Annie... counting down

    Thanks Annie... counting down to my first treatment on the 30th.  I'm anctious.. and frightened at the same time!!   

    God bless

    cindy

  • Strongmama
    Strongmama Member Posts: 9
    #5
    CoastalMom,

    CoastalMom,

    glad to hear your doing great!!  

    Cindy 

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #6
    positive HER2

    My mom was 82 when diagnosed with IDC Stage 4 HER2+ breast cancer.  Given her age and the fact that she is very independent, she didn't want to have chemo even though they found the original mass in her right breast and lymph node and a nodule in each lung.   Originally she was only going to agree on a lumpectomy but with the scans they found the lymph node and nodules also so surgery was out.  She refused chemo but opted to have Herceptin only.    Well after about six months both of the nodules in her lungs were gone and the original tumor shrunk enough that she was able to have a lumpectomy and they removed the lymph node.   My mom will be 84 and she is still driving.  In fact she drives herself to the treatments every 3 weeks.

    Being on herceptin though you have to have MUGA scans and CT scan approximately every 4-6 months to check your heart (MUGA).  The only thing is I wish they had given her a port since they told her she would need to do this treatment all the time.

    You can do this.   

    My best to you,

    Kathy

  • Beepositive
    Beepositive Member Posts: 259 Member
    #7
    BE Strong ..you will be Fine!

    hello i am newly as of Jan 2017 also but with Invasive lobular carcinoma breast cancer (diffeent type from yours but)..shock..yes!! took me a few days to focus .. i was just thankful that i insisted on additional screening after my mamo because this type is not detected on mamo because of it is normally a mass and my breast as dense anyway! (read my "New to me" post on here tells my story)   Best wishes to you and keep the faith and BEEPOSITIVE!! you will be fine!

  • CoastalMom
    CoastalMom Member Posts: 38
    #8
    Strongmama

    Thank you so much!!!  There is a lot to my Journey but I kept it short.  I am here for you!  Just let me know and I'd be glad to share more with you!  This is a great group!

    Debbie

  • Strongmama
    Strongmama Member Posts: 9
    #9
    Kaleena said:

    positive HER2

    My mom was 82 when diagnosed with IDC Stage 4 HER2+ breast cancer.  Given her age and the fact that she is very independent, she didn't want to have chemo even though they found the original mass in her right breast and lymph node and a nodule in each lung.   Originally she was only going to agree on a lumpectomy but with the scans they found the lymph node and nodules also so surgery was out.  She refused chemo but opted to have Herceptin only.    Well after about six months both of the nodules in her lungs were gone and the original tumor shrunk enough that she was able to have a lumpectomy and they removed the lymph node.   My mom will be 84 and she is still driving.  In fact she drives herself to the treatments every 3 weeks.

    Being on herceptin though you have to have MUGA scans and CT scan approximately every 4-6 months to check your heart (MUGA).  The only thing is I wish they had given her a port since they told her she would need to do this treatment all the time.

    You can do this.   

    My best to you,

    Kathy

    I'm glad to hear your mom is

    I'm glad to hear your mom is doing well, how long will she take herceptin?  

    blessings

    cindy 

  • Strongmama
    Strongmama Member Posts: 9
    edited April 2017 #10
    Beepositive said:

    BE Strong ..you will be Fine!

    hello i am newly as of Jan 2017 also but with Invasive lobular carcinoma breast cancer (diffeent type from yours but)..shock..yes!! took me a few days to focus .. i was just thankful that i insisted on additional screening after my mamo because this type is not detected on mamo because of it is normally a mass and my breast as dense anyway! (read my "New to me" post on here tells my story)   Best wishes to you and keep the faith and BEEPOSITIVE!! you will be fine!

    Thank you for the

    Thank you for the encouragement, I try to stay positive but I do have my moment.  I have a 9 year old daughter and I can't bear the thought of leaving her!!  yesterday I had my first round of chemo TCH-P, and so far today I feel pretty good, I've heard it gets harder as you go.  take care!

    blessings

    cindy

  • button2
    button2 Member Posts: 421
    #11
    I also got Herceptin for a

    I also got Herceptin for a year and a half. It's so much easier than chemo. I'm doing great now after five years and you will too! Hugs, Anna

  • CoastalMom
    CoastalMom Member Posts: 38
    #12
    button2 said:

    I also got Herceptin for a

    I also got Herceptin for a year and a half. It's so much easier than chemo. I'm doing great now after five years and you will too! Hugs, Anna

    Wonderful

    I am so very happy for you Anna.  That is wonderful that you are five years out.

Discussion Boards