Had Surgery Yesterday for Vaginal Stenosis and I'm l'm Probably More Frustrated Than Relieved!

Anyone have some diet changes they have had success with? I have a nutribullet. Its not as bad as i thought it would be. I like receiving the benefits of the vitamins from the drink mixes that i make, since i dont eat as much lately. I try not to eat sugar every day like i used to thats been the hardest part. After chemo i was on a fountain soda and ice cream diet, ya i know!

also wondering if i should limit the amount of time i spend in the sun? that my favorite too that i will probly have to quit:(

If you are like I was you are just tired of having medical appointments so gyn can wait but don't put it off forever. You want to be sure you still get regular exams and pap tests. I'm like Martha just need to have things open enough for gyn exam. It is dismaying that there is so much about side effects that was never mentioned or just briefly touched on.

As for diet I too have a sugar addiction but other than that I try to eat healthy. You might get your vitamin D level checked (blood test). I was super low and now take 4,000 IU a day. I've read that half of people with GI cancers have low vitamin D. 

I hated my port, I was always bumping it and hurting myself, hugs could even hurt! I got mine out about 2 1/2 months after treatment. So if you really want it out ,it is your body remember! my doctor said something about leaving port in longer but didn't argue when I asked to have it out. 

rlr000dc said:

Soo?

Is this something that all of us should be concerned about? I still have swelling of the vulva along with other issues but havent thought of this even happening ugh!

i was soooo swollen , bleeding in that area that i could feel the tissues between my legs.....MD Anderson nurses (with My permission)  came to see the damage as a learning tool......radiation does this.....it took weeks to go down but the docs were correct that it would go down after radiation was over.....sephie

mp327 said:

rlr000dc

I have had no success with dilators in regards to getting back my sex life.  I used to use them regularly, but since they haven't helped, I only use often enough to keep things open for gyno exams.  That said, others have had success, so get a set and use regularly to see what happens for you.

I had no such problems with my port, but fortunately, my med onc allowed me to have it removed after 3 months post-treatment.  It sounds like yours has been somewhat problematic and I'm sorry your doctor will not give the okay to have it removed yet.

As for diet changes, I have a Nutribullet too, but rarely use it anymore.  I should probably get it out again and put it to use to improve my diet.  I guess I just suffered from burnout on eating all of that healthy stuff!  I am somewhat addicted to sugar, which is not good, and I love my chips and salsa.  I'm bad!

Sun exposure is good in small doses.  I love to be outdoors and have gotten better about using sunblock, but maybe still have a ways to go.

 

are you dealing with your chronic kidney disease okay? I seen it on another post just wondered.

I love sugar too.  My dearly departed medical oncologist who was the doctor who saw me through treatment from the beginning until December 2015, when he suddenly died, had the sugar discussion one time.  He didn't seem to think there was much to the theory that sugar feeds cancer.  He was a very smart man and a great doctor and told me "everything was okay in moderation," even tequilla!  I had to laugh about the tequila, although I do enjoy it now and then!

Getting enough fluids is difficult for some people, including me.  I think it's further complicated by the fact that my bladder doesn't have the capacity that it had before treatment.  If I drink too much water, then leave the house, the first thing I must do when I reach my destination is find a bathroom.  It frustrates me to no end!  Road trips are the worst!  I can tell you where every rest area is between my house and where all my family lives!  

You will continue to heal.  I know it is a little discouraging right now, but your body just needs some time.

Martha 

Wow! thats alota wata! does tea and coffee count as part of that? Mercy lands im about to 24 ounces it does seem like my bladder has shrank as revealed by the many restroom breaks! One tequilla , two tequilla, three tequilla, floor says my favorite shirt i got in Branson years ago. When I drink now it just makes me sleepy...No symptoms with your kidney trouble huh? Did that happen long after the anal cancer? geesh. Glad your stage went down to two maybe it will get lower with time. I am hopein you never need dialysis!

Sorry to hear about your fav dr passing, its nice to get one you trust and can turn to. I think i agree about the sugar and everything in moderation is better hopefully. All we can do is wait and see.

When we go to meet Molly in New Orleans we will need to search down a bathroom huh?lol.. HI Molly!

rlr000dc said:

tequila

Wow! thats alota wata! does tea and coffee count as part of that? Mercy lands im about to 24 ounces it does seem like my bladder has shrank as revealed by the many restroom breaks! One tequilla , two tequilla, three tequilla, floor says my favorite shirt i got in Branson years ago. When I drink now it just makes me sleepy...No symptoms with your kidney trouble huh? Did that happen long after the anal cancer? geesh. Glad your stage went down to two maybe it will get lower with time. I am hopein you never need dialysis!

Sorry to hear about your fav dr passing, its nice to get one you trust and can turn to. I think i agree about the sugar and everything in moderation is better hopefully. All we can do is wait and see.

When we go to meet Molly in New Orleans we will need to search down a bathroom huh?lol.. HI Molly!

My nephrologist told me that tea and coffee, since they contain caffeine, which can act as a diuretic, only count about half when including them in fluid intake amounts.  When I make coffee, I do half caffeinated and half decaf.  As for symptoms with the kidney disease, I had none.  It was discovered through blood work.  I was treated for anal cancer in 2008 and diagnosed with kidney disease in October 2015, 7 years after my treatment ended.  I cannot prove that treatment or contrast from numerous scans caused or contributed to this, but I'm sure it didn't help.

My doctor suddenly passing away was a huge shock.  It was devastating news to so many people.  I attended both the visitation and funeral and there were so many of his patients in attendance.  So sad.  You really hang all of your hope on your doctor(s) when you're ill.

mp327 said:

rhonda

My nephrologist told me that tea and coffee, since they contain caffeine, which can act as a diuretic, only count about half when including them in fluid intake amounts.  When I make coffee, I do half caffeinated and half decaf.  As for symptoms with the kidney disease, I had none.  It was discovered through blood work.  I was treated for anal cancer in 2008 and diagnosed with kidney disease in October 2015, 7 years after my treatment ended.  I cannot prove that treatment or contrast from numerous scans caused or contributed to this, but I'm sure it didn't help.

My doctor suddenly passing away was a huge shock.  It was devastating news to so many people.  I attended both the visitation and funeral and there were so many of his patients in attendance.  So sad.  You really hang all of your hope on your doctor(s) when you're ill.

that makes sense about the caffine actually. as far as the kidney disease just wondered what i may have to look forward too. its often a worry with all the tmt and test we have been through!

rlr000dc said:

that makes sense about the

that makes sense about the caffine actually. as far as the kidney disease just wondered what i may have to look forward too. its often a worry with all the tmt and test we have been through!

It is a worry for me too.  Radiation all by itself can cause other secondary cancers, such as leukemia.  I will never know what caused my kidney disease.  All I can do is try to keep it from worsening at this point.

This is all new to me.  Vaginal stenosis and dilators were never mentioned to me before treatment.  This is the first I am learning about this!  In a couple of weeks I will be one year post treatment.  How long after treatment did this start happening?  I don't need any more side effects!