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pamstayner
pamstayner Member Posts: 111 Member
in Kidney Cancer #1

Not just my height....   I'm done on the phase 2  trial with Ibrunitib and Nivolumab. Lasted 56 days whooptie Doo

I lasted for  2 cycles of 28 days each, 4 more Nivo injections, got scanned... and now have a big fat liver met, and a little larger lung mets since I began the trial, 56 days ago.  And I might add, 18 more big fat pounds too.

  The oncologist told me to rest a decision during the two weeks drug cleanout, and perhaps join the scheduled trial for Phase 2 of Anixitib and TRC 105 versus Anixitib alone.  Since the next in-line could be Anixitib alone, it will not be too bad of a deal to try it with something, I am still searching my options... and do not intend to rush any decision this time.

 

So, the  Sutent has been tried, (18 months) Nivolumab alone (12 months) Trial (2 + months).. I am at about 3 years since treatment for the first progressionbegan in Feb 2014..  I've got one TKI, one imunotherapy, and one combo trial under my belt already.  I loved being on Nivo... no side effects... BUT, as my cancer is misbehaving on treatment, I gotta move on.

Bummed. Mad. Sad. but still looking good !  If I remember, something about higher BMI equaling longer survival rates for RCC, then even off any treatment I should last another 10 years at least !!  When I get skinny size 8 or maybe 4 I shall worry.  

Right now, I am going to zen out enjoy feeling normal, and recharge.  Everybody stay well, and I will check in again when I got something to tell.

Pam

 

Comments

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #2
    Wait, Pam, don't go yet. I

    Wait, Pam, don't go yet. I want you to get support and some kindess from our wonderful folks here! You deserve HOPE and Healing~ I hope you find treatments that get this monster to retreat.

    I will keep you in my heart and prayers my dear. I am here for you all the way, if you want me to be!

    Sending you healing hugs,

    Jan

  • pamstayner
    pamstayner Member Posts: 111 Member
    edited March 2017 #3
    I intend to stay reading

    Jan... you are so sweet... I did not mean signing off the site... I meant I will get vocal when I got something more to share... I gotta keep reading about everyone here, as I need the contact.

    I do not intend to let myself worry (waste of time) I just plan to keep feeling norma l(that is no treatment) until I have to tell the oncologist my decisions about the new trial he wants me to join. I jumped fast the last time... and flunked out   days later.. . every step foreward in trial land seems to make me get rejected for new ones.  (like previous tkis, previous imunotherapy) Tough choices.

  • stub1969
    stub1969 Member Posts: 978 Member
    edited March 2017 #4
    Thinking about you!

    Only words and thoughts of encouragement for you, Pam.

    Stub

  • marosa
    marosa Member Posts: 334 Member
    #5
    Pam I greatly admire your attitude and I'm

    cheering and wishing you all the best in your new treatment.  You sound very positive and clear headed, you will surely make the best decision for you. Sending you healing thoughts and a hug

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #6
    Hang in there, Pam! Hoping

    Hang in there, Pam! Hoping that your next treatment is the one for you! We are cheering you on!

    Hugs

    Jojo

  • foxhd
    foxhd Member Posts: 3,181 Member
    #7
    Pam,

    Tough old broads like you frustrate cancer. I'm glad treatment options remain. You've handled the pressure well. Sometimes finding an effective treatment is a crapshoot. Take time and recharge during your treatment break. You'll be ready for the next route.

  • pamstayner
    pamstayner Member Posts: 111 Member
    #8
    As usual,

    All of you have given me a boost, I needed it.  And as usual, Fox puts it over the top.  I have been called tough before, but never with the old broad added.

    Totally has me laughing !! 

    Thank you all, Jan you are always so huggie, and I felt a good one this time.  Marosa and JoJo, I appreciate you two, you are like my own  cheerleaders , and Stub, thank you for thinking of me. 

    I'm good now, and in about a week, ready to make noise... meanwhile I will FLY.

    Pam

     

    Pam 

  • JerzyGrrl
    JerzyGrrl Member Posts: 760 Member
    edited March 2017 #9
    Hey, Pam -

    I hope your sabbatical from the treatment is an opportunity to do something special for yourself. Thinking of you...

  • Allochka
    Allochka Member Posts: 1,072 Member
    #10
    Pam, your sence of humor and

    Pam, your sence of humor and strength are tremendous! And I admire your ability not to worry too much.  you are true inspiration!

  • hardo718
    hardo718 Member Posts: 853 Member
    #11
    Go Pam

    So happy things are going well!  Enjoy!

    Donna~

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