My dance with NED may be over too

I hate that they post these things to our charts before we talk to our docs. I have to force myself to NOT look at them until my doctor visit for interpretation.  It's a struggle between wanting to be prepared for visit and upset because I have just enough knowledge to be dangerous. Good luck. I'm sorry you are going through this. 

Dang- that is just a bummer that you are going through that and that you had to see a report without information!!!  Ugh!  I hope you got a call today and aren't still in limbo.  I too have to wait FOREVER before they release my results- so weird- someone must of pushed the Dr. reviewd button by mistake?!  Keep us posted!  Hang in there   (((HUGS)))

Cindy, that stinks and you have every right to read that doctor the riot act when you finally do talk to her. In the meantime, have you been researching the different treatment options that may be offered, if it is mets? It sounds like your doctor may not have a lot of time to talk (once she finally calls you) so having all of your research completed and at your fingertips may prove useful to start moving the process forward starting with that first call. Good luck to you and fingers-crossed that you hear from her today.

Oh, Cindy, I know how frustrated you must be!  I NEVER got calls back from the oncologists themselves, always a nurse or assistant and never in a reasonable amount of time as far as I was concerned.  And this was when I thought I was having serious side effects from chemotherapy.  And it turns out, I WAS having some serious side effects, but probably not life threatening.  But what if they had been?  I finally resorted to calling my pcp who always always saw me - often that very same day (and she was closer geographically).  In hindsight, I sort of understand, but having just recently gone through a different but equally frustrating experience with my son in obtaining appropriate medical care, I just plain do NOT like the way we are treated as patients/humans and when you see all the staff in our physicians' offices you can't help but wonder who does what and why it takes so doggone long for anything.   Our docs don't even see us when we're in the hospital (unless it's for surgery) - a "hospitalist" does.  They don't even appear to think about us until about 2 minutes before they walk in the room to see us.  If they do, doggone it, I sure don't know about what goes on behind the scenes.  I thank my lucky stars that I remain well and really anticipate that I will, but initially I sure didn't know or feel at all confident.  I am glad you finally got a call from the PA and of course, s/he is correct.  They need to do a biopsy.  But you knew that.  I guess the good news is no one is acting crazy urgent about this, but it does not help YOU in the meantime emotionally.    It just makes me so emotional and angry to feel dismissed.  Now, none of this solves your problem, does it?   Women typically post here after seeing their gyn/onc or oncologist and keeping us informed.  Also note that a lot of the posts are women waiting and worrying. And just because this seems to be a common problem, that does not make it any better.   So I'll wait and worry with you.  Hope you get the biopsy scheduled soon, but then there is the wait for the results . . ..Marcus Welby would have held your hand all the way along, but you've got us and we'll hold your hand.

Suzanne

Cindy, just thinking of you and hoping that all went well for you today. Let us know how you are doing. 

Thank you for coming back on and letting us know!  So glad they could get good samples.  Prayers as you rest and wait for results- we're with you, sending prayers and (((HUGS)))

Like the others said, I am glad they were able to get good samples. Hoping there was a non-cancerous reason for the enlargement.