RCC for just over 1 year now, what treatments have worked for you?

tracylev
tracylev Member Posts: 17
Hi, I just found this discussion board and have been reading some of the stories. I was diagnosed with RCC a little over a year ago and had a left nephrectomy in December 2015. I have mets to the lungs. My first treatment was high dose IL2. It didn't work. Second treatment Votrient which worked about 7 months. Now I'm doing a clinical trial and will get another scan in April. If this doesn't work and the tumors continue to grow I'll start a new treatment. Just wondering what treatments have worked for you all and if you could tell me your experiences with different treatments. Thank you 

Tracy

Comments

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    I was lucky

    Tracy,

     

    I was only nephed. Others and there are a lot of them here will chime in withtheir experiences.

     

    Icemantoo

  • tracylev
    tracylev Member Posts: 17
    icemantoo said:

    I was lucky

    Tracy,

     

    I was only nephed. Others and there are a lot of them here will chime in withtheir experiences.

     

    Icemantoo

    Thanks for replying. I hope

    Thanks for replying. I hope being nephed is the only thing you have to go through. Good luck to you!

  • Deanie0916
    Deanie0916 Member Posts: 626 Member
    Welcome tracylev

    My thoughts and prayers are with you...I haven't had to have any further treatment so far...so I am not much help except to say the above.

     

  • tracylev
    tracylev Member Posts: 17

    Welcome tracylev

    My thoughts and prayers are with you...I haven't had to have any further treatment so far...so I am not much help except to say the above.

     

    Thank you Deanne for your

    Thank you Deanne for your kind words.