preliminary vs. final results

I called first thing, had to call back b/c lab tech hadn't arrived yet. Dr. isn't in today but nurse practitioner is and she is supposed to call me back. They usually turn off the phones about 2pm, so I am going to call back before then if she doesn't call.

Having the results sent for a 2nd opinion was not discussed with me. Of course I never thought to ask. If it was sent out for a 2nd opinion I am thinking it would have gone to Cleveland Clinic, because that is where the gyn. oncologists are from. And a 2nd opinion does seem prudent, if they are uncertain about the results. So I am fine with waiting if that is the reason.

I will definitely post when I hear back.

Nurse practitioner called and was very apologetic. She was the only one working in the office and seeing patients today. (I didn't mention pre-lim vs. final results)

She wished she could tell me it wasn't cancer, but she can't. She said there is something, I guess there is not enough info. to make a diagnosis. She mentioned increased estrogen multiple times. She mentioned metaplasmic changes to the endometrium. I am hopeful my husband can pick up a copy of the report tomorrow for me to review before my appt. next Monday.

It sounds like the next step would be the hysterectomy.

I still have questions re: what is causing this high estrogen level. Is it the ovarian cyst? Prior to the hysterectomy should anything further be checked out re: my ovaries? Because polyps and tissue samples were removed would that give them the additional info. re: the high estrogen level or would a regular biopsy provide that?

Realistically, is it good, bad or neither that there is no definitive diagnosis at this point? As in, if it were not the "garden variety" endometrial cancer is it more likely to be diagnosed during a D&C? I know the hysterectomy gives you a more clear answer, but I though a diagnosis of type would come before the hysterectomy. Does that make sense?

kvdyson it does help to see your timeline and your diagnosis. Thank you. I am hopeful others will be able to share to give me some type of reference point.

cheese queen my gyn. discussed the option of referring me to Cleveland Clinic or Pittsburgh (not sure of the name of the facility.) I explained that that isn't an option for us. Gas, tolls, and other traveling expenses just aren't there. I did go to Cleveland Clinic for another issue and tried to use something called Provide A Ride. It was a nightmare as far as them showing up too late to get me there on time for my appt. or me waiting for hours afterwards and worrying about not getting back home. We have one car and both my adult children attend college, work and have other activities. So, the four of us have to coordinate our schedules. Also, our car is 17+ yr. old and not sure about the feasibility of lots of long trips.

To be honest, if we were going to seek outside care I would prefer it was for my husband. The whole neurosurgeon thing freaks me out much more than the gyn. oncologist thing.

I just want to get thru this with the least fuss possible. As in, whatever needs to happen I do it for as long as necessary or feasible. And hopefully it will be a good outcome. It isn't the outcome that is upsetting me, but more the messy parts in between.

I am in counseling and go tomorrow, the first I will see her since before the pre-op visit. I have had some chronic health issues for a few years, and it just seems like there is never a break for my husband.

I suppose I am grasping at information as a way to feel more in control. My hope had been that seeing the gyn. and getting the bleeding stopped, by whatever means necessary, would get me situated and better able to be supportive of my husband.

Dorothy