My second husband with Brain Cancer :Inoperable DIPG

I'm sorry you have not had any responses.  I'm sure the rare of the rare leaves few with advice.  I don't have brain cancer but a different cancer.  I just wanted to say my hopes and prayers are with you, and to never give up.  Educate yourself, make informed decisions, and direct your own care.  Hugs.

Dear vschiff I'am sorry to read your husbands diagnosis as I have been travelling a simular path in life..I live in Queensland, Australia and was diagnosed 5years ago with a pontine glioma growing into the midbrain .My treatment has been watch and wait with a now yearly MRI that has shown no change for about 2 years. The tumor was discovered when a closer look of a annuerysm of my bassilery artery near the brainstem was required via a MRI. The diagnosis explained a lot of strange symtoms I had been experiencing for around 2 years prior. 2 years after diagnosis a spinal thalamic disturbace was diagnosed after losing touch and temp in my right arm and leg and left side of face, I also have a impaired gait that is been with me since about 1 year after diagnosis. My annuerysm has been stable since discovery. My advice is accept life for what it is and it is sometimes short. I was given between 5 and 10 years to live, 5 at worse and 10 at best, I 'am now entering year 6. I continue to have a scotch and smoke and holiday as much as possible. After many years of reading of many sad terrible stories that all ended in the demise of patients with this condition I decided to just keep living and enjoying myself as much as possible. I still work as a house painter, a bit slower and harder yet still earn a living. This is not a battle against a cancer that can be won, as long as you do not regard death as a loss you win. Life is living, so get out there and live and make the most of your time left and forget about wasting the time you have left trying to buy more time, you simply can not.  The funds and time wasted looking for a cure with this condition is burning up the life you have left. I wish you and your husband all the best and hope you enjoy life rather than live in fear of the inevitible. My apology if this upsets you, but it is the best advice I can give. Maybe it might give you some food for thought as I do not fear death, as where were we prior to birth, the same place. Death is nothing to fear as we all end up in the same place along with all life on this planet. The chemo and radiation does more damage than good with this cancer in adults was the advice from my neurosurgon, Good luck to you both and remember to live life and love it

i find myself looking for why. Two great men. Both great fathers and husbands. I ask who or what is to blame?  Me?  Our area?  Watching my second husband being stripped of his life after a brain tumor has already taken one husband. It is more than I can take   

Wouldn't the Magnesium Chloride and Black Salve Blood Root zinc Chloride pretty much fight that stuff and eventually you become better. My mom had terminal brain cancer and did radidation and chemo but the doc gave her compound x that is the salve with blood root. Theres alot of salves but the good one is the blood root zinc chloride. I read these post because it surprises me how some of the things that work and do things for the body next to amazing are not highly encouraged or always well spoken of because of foolish errors. But common sense and evident facts and results it's hard for me to think it wouldn't help for every form of cancer. Magnesium like 99% of all americans lack because of our processed foods which are terrible.  Anyways that was my moms key to success the compound x black salve did it ...im not even sure what terminal means but it was sad times seeing her all cut into her head and wrapped up like a mummy in experimental treatments. I think many know cures to these things but it's sad times in a place full of greed. No doctor at a hospital would tell you this most likely ..what would they loose there license. Sorry if I speak as though im angry it's just sickening like cancer our medical field rules and practices are not what I find righteous.  About 30 years later my mom is alive and well and still taking the compound x and cancer has not returned. Oviously people that beat it with chemo and radiation it's like it always comes back ...somethings gotta keep it away ...seems compound x maybe the key wish doctors would study into a natural product and get everything out of it they can because so many are so thankful for it.