I'm back and hoping for help please :(

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  • Nellasing
    Nellasing Member Posts: 528 Member
    #42
    Dorothy that sounds like a win to me!

    So glad it went well- I'm glad you pointed out once again that this has been going on since Oct!  Sheesh what does it take?!

    Sorry you are feeling a bit under after but drink as much as you can to clear the drugs and do get some sleep- it always helps me to sleep - kinda reboots things.

    Keep us posted- we'll be praying  (((HUGS)))

  • nateandkatesmom
    nateandkatesmom Member Posts: 40
    edited February 2017 #43
    Nellasing: yes, I have been

    Nellasing: yes, I have been sipping on gingerale. I could barely eat one of the Lorna Doones they gave me. They were all so nice.

    I am babbling.

    hugs,

    Dorothy

     

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    #44
    Dorothy

    Glad you are done with this part! If you can drink water please do so. It will help rehydrate you better than anything else.

    For the life of me.... I will never understand why we are offered dry stuff when we come out of surgery! My  mouth is always so dry that any of those things stick worse than the thickest peanut butter! Good grief. Jello, ice cream, yogurt - anything that has liquid please!!!!  It generally takes me a good half day to get my body back to a normal level of moisture.

    Take care and I hope you heal quickly. Please let us know how you are doing.

    Love and Hugs,

    Cindi

  • nateandkatesmom
    nateandkatesmom Member Posts: 40
    edited February 2017 #45
    Thanks, Teddy Bears mom

    When I first woke up and asked for a drink she gave me ice chips. Then later gingerale. But when she offered "food" there were no soft options mentioned. I am totally forcing myself to drink. Both to help the UTI and to help the cramping. I ate very light yesterday. Today yogurt, toast and oatmeal. And lots of gingerale. To be totally honest, with this nausea I don't think I can do water. I will try, maybe adding a little taste of gatorade in to help.

    Hugs,

    Dorothy

     

    ***updated to add that a headache soon joined the nausea. I had one dose of Toradol, and things got worse even with heat and ice and an antinausea pill. So, I stopped the toradol and am now (12 hr. later) going back on the ibuprophen. DH got me a cup of wedding soup, and I ate about 1/2. So far so good. ***

  • Lindaspinner
    Lindaspinner Member Posts: 1
    #46
    Lou Ann M said:

    Hi DorothY

    i am so sorry that you have to go through this.  Waiting is absolutely the worst part of ant health issue.  And we all have the bad habit of putting the horse before the cart.  Our mind jumps to the worst possible outcome and it sticks there.  I use jigsaw puzzles and adult coloring books to relieve stress.  My own diagnosis  was just the opposite of waiting.  It was more like a whirlwind. I went to my GP for a visit because I thought I had a yeast infection, and I did but he found a small tumor on my cervix.  Two days later I was back for a pap and some type of test where they vacuum cells from my uterus. Three days later, post ve results and an appointment with gynocologist two days later. He wanted a CT scan and then a D&C.  They couldn't decide if it was cervical or untiring cancer. All within two weeks, my head was in a major spin, no time to think.   the Gyro wanted to do a radical  hysterictomy immediatel, I asked for a consult with a Gyno-oncologist. He argued but followed through.  That was the best decision I ever made.  Before seeing me, he told me he wouldnt do the hysterictomy until I was healed from the D&C.  Finally a little time to think.  I am writing to tell you that even it it turns out to be the worst, life does not end.  It will be different.  I have stage IV Serous Papillary Endometrial Andocarcinoma and I have been around for 4 1/2 year.  I have more good days than bad.  There are new treatments coming all the time.  There is always hope.

    Hugs and prayers, Lou Ann

    New Member

    lou Ann I was just diagnosed with stage three serous papillary uterine carcinoma awaiting surgery. It spread to 4 lymph nodes as what they see from Pet Scan and why they want me to do radiation and chemo which petrifies me and wanted to know what kind of treatment you did and how you got through it my surgery is Feb 21st 

    thanks Linda 

     

     

     

  • Nellasing
    Nellasing Member Posts: 528 Member
    #47
    Lindaspinner said:

    New Member

    lou Ann I was just diagnosed with stage three serous papillary uterine carcinoma awaiting surgery. It spread to 4 lymph nodes as what they see from Pet Scan and why they want me to do radiation and chemo which petrifies me and wanted to know what kind of treatment you did and how you got through it my surgery is Feb 21st 

    thanks Linda 

     

     

     

    Welcome Linda

    I just wanted to say hi and let you know you've come to a great place.  I'm sure Lou Ann will be along as she is excellent at checking in.  While I do not have your type of cancer I do know how scary it is waiting for surgery ... waiting for everything!  I'm fairly sure the advice will pour in to not get ahead of things because no one knows anything really until they get the pathology report after surgery.  The best thing you can do for yourself is to try and stay calm and not worry.  Occupy your mind with other things and perhaps gathering your support team around you.  You are a statistic of ONE- You are stronger than you can even imagine you are right now and good news, you just inherited a LOT of peachy sisters who are ready, willing and able to walk along this journey with you.  Prayers and (((HUGS))) and invitation to come back as often as you want/need to- nothing is off limits so ask your questions, vent or whatever you feel will help you <3

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited February 2017 #48
    Lindaspinner said:

    New Member

    lou Ann I was just diagnosed with stage three serous papillary uterine carcinoma awaiting surgery. It spread to 4 lymph nodes as what they see from Pet Scan and why they want me to do radiation and chemo which petrifies me and wanted to know what kind of treatment you did and how you got through it my surgery is Feb 21st 

    thanks Linda 

     

     

     

    Hi, Linda

    Welcome to the club no one wants to belong to.  This is a wonderful place to come for informotion, support, and comfort.  my frontline treatment was what is called the sandwich.  Three rounds of chemo( Taxol And Carboplatin),28 internal radiation 2 brachytherapy ( internal radiation and then three more rounds of chemo.  My cancer Metastizised seven months after I finished frontline and I have been on treatment since then and that was 3 years ago.  Since then I have had several other kinds of chemo, more Taxol/Carbo, Doxil,  Topotecan , and Avastin.  I am now on an immunotherapy drug called Keytruda.  I have gotten through it by a lot of praying.  I also have a lot of support from family and friends.  My husband has been a rock.  i have many more good days than bad.  I have much to live for so I fight.  I do have things that keep mind calmer.  I draw, color,  and do jigsaw puzzles, also I Pad games are all relaxing for me.  It is not easy but you can do it.  You,will find that you are much stronger than you ever imagined that you were.  As hard as it is, try to take one day at a time.  Even though a pet scan gives a lot of info, you,will get a more definitive plan when the pathology reports from your surgery comes back.  Chemo is scary, but it is doable and not as bad as I imagined.  Chemo nurses are the best and they will treat you like a queen.  Pelvic radiation was the easiest part for me.  Both do have unpleasant side effects, but your doctors will have meds that can help with them.  I was scared at first as we all are and there are days when I still am scared.  Sometimes we all just have to,out on our big girl pants and go on.

    Sending you hugs and prayers, Lou Ann

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