14 month Oncology NED

mokus
mokus Member Posts: 63 Member

They never offered any insight before but today said typically the first approximately 18 months iswhen they most often see relapses and they are counting time from date of diagnosis for some reason instead of end of treatment date.  So their count is almost 17 months now.  Maybe just trying to make me feel better because it was so obvious my level of extreme anxiety, but they seemed, to my desparate mind, optimistic for me.  I mentioned to them how much very appreciated support and encouragement I had received from CSN to maybe help others who don't know about here.  Still have appointment with ENT on the 22nd and still apprehensive about that since I have been coughing a little lately.

Comments

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    NED

    mokus,

    Whichever way you count, you are NED and a little cough of concern is temporary.

    Stay on top of all changes and the NED will stay on top of you.

    Matt

  • mokus
    mokus Member Posts: 63 Member
    CivilMatt said:

    NED

    mokus,

    Whichever way you count, you are NED and a little cough of concern is temporary.

    Stay on top of all changes and the NED will stay on top of you.

    Matt

    ned

    tyvm and I am happy things are well with you

  • armana
    armana Member Posts: 97 Member

    http://www.medpagetoday.com/MeetingCoverage/MHNCS/56281?xid=nl_mpt_DHE_2016-02-20&eun=g794290d0r

    The above article supports your dr's statement

    Enjoy your NED diag.

  • mokus
    mokus Member Posts: 63 Member
    edited February 2017 #5

    Thank you very much for that link.  That little report does make me feel a lot better about where I am sitting.

  • wmc
    wmc Member Posts: 1,804
    edited February 2017 #6
    Mokus NED is good

    Glad to hear you got the NED. So set back and take that deep breath and slowly let it out.  Now relax and enjoy the days.  Thanks for letting us know.

    Bill