tamoxifen question

mollyz
mollyz Member Posts: 756 Member
in Breast Cancer #1

Hi everybody! hello newbies lol, I've been on tamoxifen for about 3 or 4 months now, and im not feeling well, I have shoulder pain that eases up at night and hurt so bad in day time , i take goody powders and it helps but doesnt take the pain away., i was at my ocologist office last week and he sheduled a bone scan and i had it today and the tec said it looked good he does it every year and smiles and tells me that and so far its been true i go next monday for a ctscan, my mind has got me thinking calvical area, i have a slight fever nothing major 99.8 it doesnt go any higher i keep a check. my question finally can tamoxipen cause this? because i was fine until he switched me. it hurts like i been shot in my shoulder no swelling no redness....i need prayers my mind is wondering too much and most of you know how that is...

Comments

  • Iris_G
    Iris_G Member Posts: 50 Member
    #2
    I'm on Arimidex

    Hi mollyz!  I'm on Arimidex and have been for only a month now.  I can tell you that joint pain is a side effect of your Tamoxifen.  I, too, have a shoulder that's giving me fits and so are my ankles.  I take an Aleve once a day to help, but other than that, there's really not much else we can do. 

  • mollyz
    mollyz Member Posts: 756 Member
    edited December 2016 #3
    Iris_G said:

    I'm on Arimidex

    Hi mollyz!  I'm on Arimidex and have been for only a month now.  I can tell you that joint pain is a side effect of your Tamoxifen.  I, too, have a shoulder that's giving me fits and so are my ankles.  I take an Aleve once a day to help, but other than that, there's really not much else we can do. 

    Arimidex

    Hi Iris, I've been own them all he switched because all the others are not friendly with the bones Ive done 4 1/2 years of  the others i was doing good own Arimidex well i had joint pain but i dealt with it but this is wild,i have to admitt im a little nervous about  my Ct scan next week as always....but i know we're in Gods hands....welcome to the board. thank you for responding.

  • mollyz
    mollyz Member Posts: 756 Member
    edited December 2016 #4

    When did they start showing how m any people read your post? hahahahah i havent been own the site in a whileKiss

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #5
    i was on tamoxifen for 5 yrs.

    i was on tamoxifen for 5 yrs. about 2 1/2 yrs into it i had an enlarged uterus and had to have a hystertomy-which was a known side effect. ONE i was over the surgery I went back on the meds to complete 5 full years.

     

     

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #6
    5 yrs for me

    I was on tamoxifen for 5 yrs., abourt 2 1/2 yrs into it I had an enlarged unterus (commons known side effect) and had total hystrectomy.

     

    All is good-6 yr later..

  • mollyz
    mollyz Member Posts: 756 Member
    #7
    Tamoxifen

    Well i finally know whats wrong with my shoulder, i have a rotator cuff tare, i don't know how that happened but i still blame tamoxifen for it cause i havent had any problems with my shoulder till i started tamoxifen  and now i have to have surgery but im not wanting to but the pain is unbearable now it wakes me up from sleep...has anyone one had any problems with joint surgery after starting tamoxifen?

                                                                  MollyZ

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    edited February 2017 #8
    mollyz said:

    Tamoxifen

    Well i finally know whats wrong with my shoulder, i have a rotator cuff tare, i don't know how that happened but i still blame tamoxifen for it cause i havent had any problems with my shoulder till i started tamoxifen  and now i have to have surgery but im not wanting to but the pain is unbearable now it wakes me up from sleep...has anyone one had any problems with joint surgery after starting tamoxifen?

                                                                  MollyZ

    Rotator cuff tear? Hooray

    Now, did you ever think you'd be happy about that?  I was on Arimidex and then Tamoxifen for 5 years.  I had no joint pain while on either - other than the I'm getting old pain and stiffness which was there before and is there after.  So I'm probably no help as I had no pain on either drug.  Now, get that rotator cuff fixed and see how it is.  I don't think the tamoxifen would interfere with surgery, but ask the surgeon and oncologist. 

    Best,

    Suzanne

  • RozHopkins
    RozHopkins Member Posts: 578 Member
    #9
    I think you can get a great

    I think you can get a great deal of muscular pain from hormone treatment, or some of us do.  I had a rotator cuff operation just before I had breast cancer.  kind of doubt your medo could have caused that.  But I do feel if you have existing problems Tamoxifen can makes them feel worse, such as arthritis.  You very often have arthritic spurs which they deal with when they do the rotator cuff operation, now that could be being irritated.  It's very commonly found.  The more I think about it the more it makes sense.  I must mention (unless I am just a baby with pain) the shoulder operation was also very painful for some time afterwards BUT, I was very careful for nearly a year and it is absolutely like brand new.  Just like don't play tennis, kind of thing for as long as you can.  Some do heavy exercise too quickly and re tear it.  Good luck, at least know you know whats going on.

  • mollyz
    mollyz Member Posts: 756 Member
    #10
    RozHopkins said:

    I think you can get a great

    I think you can get a great deal of muscular pain from hormone treatment, or some of us do.  I had a rotator cuff operation just before I had breast cancer.  kind of doubt your medo could have caused that.  But I do feel if you have existing problems Tamoxifen can makes them feel worse, such as arthritis.  You very often have arthritic spurs which they deal with when they do the rotator cuff operation, now that could be being irritated.  It's very commonly found.  The more I think about it the more it makes sense.  I must mention (unless I am just a baby with pain) the shoulder operation was also very painful for some time afterwards BUT, I was very careful for nearly a year and it is absolutely like brand new.  Just like don't play tennis, kind of thing for as long as you can.  Some do heavy exercise too quickly and re tear it.  Good luck, at least know you know whats going on.

    @RozHopkins

    Hi im sorry im just seeing all your and other respones,but i did have rotator tare surgery February 23 and had a spur and yes its a very painful recovery,im still in therapy and still cant raise it good. this thing hurts so bad and yes like someone said i do think the tamoxifen brought it out im now on exemestane i have been on it for almost a month ,i was doing so good on arimidex but dr. thought i needed my bones to thicken up even though my bone denisty was osteopenia stage and bone scan was good.. i hurt really bad with the shoulder and all other joints im asking can i go back on the arimidex i only have  3 more years this is my 7th year.

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