Bone Metastasis from breast cancer

tsisgr8
tsisgr8 Member Posts: 1

I am desperate for answers, confort and peach of mine.  In 2009 I had breast cancer which was caught early and I had a lumpectomy and radiation and all seem to be well.  Well for a few months anyway.  I was having pain my back and doctor decided to have a pet can done.  The cancer had metastisize to my bones and I also had uteran cancer.  I had a total hysterectomy...that was the easy part.   Since then I have radiation on the C, T L spine and also hip.  Recently I have been experiencing pain in my back and had another pet.   Well :( I have more cancer on the T L and tail bone also a spot on my liver.   Today I went for a cat scan to my radiation started and she told me that because an area has already been radiated she can't do it again.  I was doing ok until I heard that news.   Has anyone out there have had this experience?  I am so so so scared and alway crying.  The waiting for everything start is frustrating and not knowing the unknow.  I suppost to get a biospy on my liver to determind the souce since I have 3 already (Breast, thyroid and uterus).  that will determin the type of treatment.

Please if anyone is reading this and know of or has had the experience please email me.

 

Thanks

Comments

  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
    edited October 2016 #2
    Liver Biopsy

    While I cannot give any advice on bone mets from breast cancer, I did have a liver biopsy (unrelated to my breast cancer). It was done by an interventional radiologist in an outpatient surgery center. I prepared by viewing a couple of YouTube videos of the procedures. I have always felt that things aren't as scary if you know what to expect in advance. It turned out not to be a big deal. It wasn't painful and I had no side effects at all. I hope your experience is the same. I wish you the best of luck.

  • peony
    peony Member Posts: 306 Member
    edited October 2016 #3
    Yes, I've heard that once an

    Yes, I've heard that once an area is irradiated, it can't be done again.  I'm surprised that no one has recommended chemo for you. It never hurts to have a second opinion.

  • Rhea2
    Rhea2 Member Posts: 8
    Surprised by No Chemo

    I, too, like Peony, am surprised the medical team did not follow up with chemo in 2009, but perhaps this was not the standard of care at that time. Perhaps, the good doctors might be querried about the possibly suggest something else. Good luck in your search and research.

  • Kats2
    Kats2 Member Posts: 126
    edited January 2017 #5
    Bone Mets too....

    Hi tsisgr8,

    In 2012 I was diagnosed with breast cancer, left breast. Tumor was very very small. Had lumpectomy  and sentinel node biopsy which showed 1 out of 7 nodes were cancerous. Had 33 rounds of radiation, no chemo, no scans, no bloodwork to monitor tumor markers. Was put on Arimidex. 1 1/2 yrs later, mets to my ribs, spine and pelvis. I feel that the cancer had already spread before my surgery. No one looked. Switched Oncologists + am being watched carefully with tumor markers and CT scans + skeletal x-rays. Questionable appearance of my liver so am having CT scan at end of March.

    Even though I had 2 compression  fractures in my thoracic spine, as well as fractures in my ribs etc., radiation was not recommended. I was immediately put on infusions of Zometa, a bone strengthener, and had these every month for 2 years. Now I'll have them once every 3 months. These infusions helped tremendously!! They relieved my bone pain along with pain meds. Now I'm on just Ibuprophen, use a heating pad, or put a Lidocaine patch on any area that really hurts. I'm currently taking Xeloda pills in order to keep the cancer cells in the bones and not progress anywhere else. Armidex, Tamoxifen, and Faslodex didn't help me much. I may be put on Ibrance when the Xeloda stops working. Cancer is smart and eventually gets used to the drug you're on and mutates so that it can continue to live and spread. That's it's nature.

    Are you on Zometa or get Xgeva shots for your bones? That's a must!! Radiation for all your bones isn't the best for your body according to my Oncologist. He didn't want it for me and the Radiologist agreed.  So don't get uptight about not getting more and more of it. Could lead to a blood disorder. The scans we get already give off plenty of radiation.

    Keep us posted on your progress. Wishing you courage and strength. We all need it!

                                    Kats2

  • Mike555
    Mike555 Member Posts: 8
    Two Cancer treatments are better than one

    I'm far from an expert on this but after reading on the subject it seems that two cancer treatments hitting it at the same time kind of over whelms the cancer. Like Ibrance and faslodex or Ibrance an letrozol. 

  • acaren
    acaren Member Posts: 2
    edited January 2017 #7
    Breast cancer metastasized to bones

    In 2008 I was diagnosed with stage 4 breast cancer. I had radiation and chemo caled red devil because it is so severe. I was sick for a year, but we were able to get the cancer in remission.  Eight years later I was walking along when I heard a large pop and fell to the ground. After a short ride to the emergency room, several shots of morpine, xrays, mri, bone and ct scan, I learned my pelvic bone had been crushed( remember I wasn't doing anytbhing but walking). After eight years it seems my cancer was back, and in my bones. Every where, legs hips spine and skull.  I was on vacation when all this happened, so I was flown back home to my care center VA in Washington DC. I am a veteran.  After being admitted to the hospital and having another workup and being told my cancer was confirmed back at stage 4. On to treatment, went in for my second bout of radiation and on the cancer medicine of palbociclib and started back on hormone therapy. Its been a year now and although it is not in remission the cancer is not growing.. That is a victory! I cried everyday for the first few months. Still do when I try to talk about it. One thing I have learned cancer never goes away once the seeds have passed the sentinel nodes. I live with cancer every day and refuse to let it dominate my life. On the days I hurt so bad that pain meds don't even work, I get out of bed, get dressed, call my best advocate (my daughter) She helps push me. I don't know what tomorrow will bring, but then none of us do. Pray, keep fighting it and know you are not alone in your battle. None of us are. Let me know how you are doing and I will try to keep you posted on my journey.

  • acaren
    acaren Member Posts: 2
    edited January 2017 #8
    Breast cancer metastasized to bones

    I posted a cooment to you today, but didn't address you directly. Look for my comment today. We have a lot in common and maybe we can help each other.