First my right boob, then my right kidney....
Comments
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I had Thyroid and Kidney
I had Thyroid and Kidney cancers at the same time-the kidney was found during a CT scan to assess a tumour in my sternum.
It was 7 months of waiting before i had surgery. Very stressful.
During my 6 month CT, a breast tumor was found. Surgery a month later identified a Phylloides-very rare, 3rd rare cancer.
At that point I was sent for genetic testing. I have Cowden Syndromem. Itself extremely rare.
Ive been waiting 2 years for a prophylactic double mastectomy. Too late....now dealing with a huge mass in lumpectomy scar.
So yes....i can relate.
Good luck with your surgery and heal fast.
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Walk...
Walk, because it'll get that miserable carbon dioxide out of your system. Walk, because it'll get you additional endorphin deposits in your account so you can better kick pain's butt. Walk, because it'll help you get your energy back. Start out with however much you can handle -- 2, 3, or 4 minutes. Work up to 5 minutes. Work up to once every three or four hours and gradually build up to every hour.
Do the breathing exercises with the little plastic gizmo. That puts endorphins in your account, too. Another breathing exercise: Breathe in for 4 counts, hold the breath for 6 counts, exhale for 8 counts. That helps to relax you and puts even more endorphins in your account.
It definitely hurts to stand or sit up straight if you normally just use your core muscles to do it. Try using your back muscles to pull down on your shoulder blades instead, even just a little (Keeping your shoulders down). It really works -- You should notice your sternum rise slightly -- and your midsection will thank you for it.
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Hello Rainsandpours! Nice torainsandpours said:I had Thyroid and Kidney
I had Thyroid and Kidney cancers at the same time-the kidney was found during a CT scan to assess a tumour in my sternum.
It was 7 months of waiting before i had surgery. Very stressful.
During my 6 month CT, a breast tumor was found. Surgery a month later identified a Phylloides-very rare, 3rd rare cancer.
At that point I was sent for genetic testing. I have Cowden Syndromem. Itself extremely rare.
Ive been waiting 2 years for a prophylactic double mastectomy. Too late....now dealing with a huge mass in lumpectomy scar.
So yes....i can relate.
Good luck with your surgery and heal fast.
Hello Rainsandpours! Nice to see you checking in here! I am so sorry to hear that you have another mass to deal with. I am hoping that whatever your medical plan of action is, works well - and quickly!
Take care!
Hugs
Jojo
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I'm back home after a 2 day
I'm back home after a 2 day morphine-laced paloooza from the hospital...and I could see why they administer such strong pain meds after this particular surgery. as soon as they took if off IV night before departure, I was in constant pain that oxy couldn't even touch. I did manage to get the scoop on the Pathology Report during my hospital stay - and yep that sucker was legit cancer (urologist told me there was a 5-10% chance of it being cancer. It's Chromophobe RCC cancer- so I'm in company with the 5% others who are in this subtype. Urologist told me I'm NED and follow-ups will come- I'm presuming that will be with my MO.
I walk like the Hunchback of Notre Dame, need help to get out of chairs and tie my shoes, feel as if there's painful gas buildup in every single inch of my body. Thos who had these same kind of post-surgical issues, any tips/advice??? I could use all the good smart stuff- my poor husband had to do nearly everything after mastectomy and TE placement.
And this pain and discomfort is pushing me further away from going on with radiation to the breasts. I feel like I've been through enough already.
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Oh my dear....ENUFF!!rainsandpours said:I had Thyroid and Kidney
I had Thyroid and Kidney cancers at the same time-the kidney was found during a CT scan to assess a tumour in my sternum.
It was 7 months of waiting before i had surgery. Very stressful.
During my 6 month CT, a breast tumor was found. Surgery a month later identified a Phylloides-very rare, 3rd rare cancer.
At that point I was sent for genetic testing. I have Cowden Syndromem. Itself extremely rare.
Ive been waiting 2 years for a prophylactic double mastectomy. Too late....now dealing with a huge mass in lumpectomy scar.
So yes....i can relate.
Good luck with your surgery and heal fast.
Oh my dear....ENUFF!!
Know that we're here for you and want to support you. Keep us informed hon.
Sending you healing hugs, and care~
Jan
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OH dear so sorry!pepper43 said:I'm back home after a 2 day
I'm back home after a 2 day morphine-laced paloooza from the hospital...and I could see why they administer such strong pain meds after this particular surgery. as soon as they took if off IV night before departure, I was in constant pain that oxy couldn't even touch. I did manage to get the scoop on the Pathology Report during my hospital stay - and yep that sucker was legit cancer (urologist told me there was a 5-10% chance of it being cancer. It's Chromophobe RCC cancer- so I'm in company with the 5% others who are in this subtype. Urologist told me I'm NED and follow-ups will come- I'm presuming that will be with my MO.
I walk like the Hunchback of Notre Dame, need help to get out of chairs and tie my shoes, feel as if there's painful gas buildup in every single inch of my body. Thos who had these same kind of post-surgical issues, any tips/advice??? I could use all the good smart stuff- my poor husband had to do nearly everything after mastectomy and TE placement.
And this pain and discomfort is pushing me further away from going on with radiation to the breasts. I feel like I've been through enough already.
OH dear so sorry!
Use ICE!!! It reduceds the swelling, BUT I suspect its the GAS!! Gets trapped in areas where the pain meds cannot touch as its not in the bloodstream/intestines.
MOVEMENT, walk, walk,, walk, even if in place as soon as you can. NOw with a partner to hold onto, but yes, I have had several abdominal surgeries and found the most pain was from that GAS. Lasted about 4-5 days, then pow, gone ...finally!
Keep us informed, Take best care of you!
Oh and I doubt that they will pump you up for your breast surgery, but ASK Its mostly used for abdominal cuz there are so many organs in there.
Hugs, gentle ones, Jan
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The First weekpepper43 said:I'm back home after a 2 day
I'm back home after a 2 day morphine-laced paloooza from the hospital...and I could see why they administer such strong pain meds after this particular surgery. as soon as they took if off IV night before departure, I was in constant pain that oxy couldn't even touch. I did manage to get the scoop on the Pathology Report during my hospital stay - and yep that sucker was legit cancer (urologist told me there was a 5-10% chance of it being cancer. It's Chromophobe RCC cancer- so I'm in company with the 5% others who are in this subtype. Urologist told me I'm NED and follow-ups will come- I'm presuming that will be with my MO.
I walk like the Hunchback of Notre Dame, need help to get out of chairs and tie my shoes, feel as if there's painful gas buildup in every single inch of my body. Thos who had these same kind of post-surgical issues, any tips/advice??? I could use all the good smart stuff- my poor husband had to do nearly everything after mastectomy and TE placement.
And this pain and discomfort is pushing me further away from going on with radiation to the breasts. I feel like I've been through enough already.
Is toughest but you will feel better day by day. Did you get a spirometer for breathing exercizes? Make sure you use it to get your lungs moving and avoid pneumonia. Walk a bit until it hurts then stop. Walk a bit more tomorrow. Walk to the front door. Walk down the path. walk to the nearest lampost and you wull get better with baby steps. They've cut bits out of you and moved other bits out of the way. I dont need to tell you, it will yake a while to recover. Jan's the expert.
Good luck. We're thinking of you.
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Hi Pepper
I'm sorry for your pain and discomfort but please keep posting about your experiences. I'll be following in your footsteps in two weeks.
I'm also sorry for your double cancer. I know there's no fairness in nature but getting two different cancers just seems wrong.
Steve.
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Another Chromie??
Hi, Pepper. I'm starting to wonder if those numbers for Chromies are correct. Lately a lot of newly diagnosed people are reporting Chromophobe as their RCC. My doctor gave me the same numbers as you after my pathology report came back. I know we are just a small sample of people, but it sure is interesting. As you know, Chromophobe is suppose to be less aggressive than the other RCC cancers. That doesn't mean that it doesn't spread, which is why we need to be diligent with our follow-up scans.
As far as the gas build up and the pain that follows--walking worked the best for me. I had the pain in my right shoulder, so I rotated my arm a lot and that helped. Keep moving, it will filter through your body and dissipate soon.
Take care--and blessings
Stub
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Plus little plastic gizmo!stub1969 said:Another Chromie??
Hi, Pepper. I'm starting to wonder if those numbers for Chromies are correct. Lately a lot of newly diagnosed people are reporting Chromophobe as their RCC. My doctor gave me the same numbers as you after my pathology report came back. I know we are just a small sample of people, but it sure is interesting. As you know, Chromophobe is suppose to be less aggressive than the other RCC cancers. That doesn't mean that it doesn't spread, which is why we need to be diligent with our follow-up scans.
As far as the gas build up and the pain that follows--walking worked the best for me. I had the pain in my right shoulder, so I rotated my arm a lot and that helped. Keep moving, it will filter through your body and dissipate soon.
Take care--and blessings
Stub
Plus the little plastic gizmo!
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I'm so sorry you're in such
I'm so sorry you're in such pain. But the advice to walk and walk some more is absolutely correct. I did a lot of walking while holding a pillow to my incision. It helped. ITA also about using the breathing apparatus. The first week is the worst with discomfort/pain then it improves rapidly. Hope you get some relief fast!
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Hi there! I just had a
Hi there! I just had a partial nephrectomy done robotically on December 6th. I went back to work right after Christmas. I had an open partial nephrectomy 10 years ago on the other side. That was a tougher surgery even though I was 10 years younger. The first two nights were not the easiest but much of that was being in the hospital. Once I got home it was much better. I stopped taking pain meds 4 days after the surgery. Robotic is precise and laproscopic was so much better than open. Take your time and one day at a time. I wish you all the best and will say a prayer for you!!
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Uhhhh, no!JerzyGrrl said:Can you get that...
Can you get that at Starbucks? I think I'd want some chocolate in there to make it a Prune Mocha.
My oldest daughter is about to be managing her own Starbucks location and she says "No" to the prunes, but got a kick out of that. Might be an idea though for seniors? A Pruney Frap? haha Oh wait, they all hang out at McDonald's don't they?
Donna~
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