Struggling to Care for Mother (vent)

bratgrr1
bratgrr1 Member Posts: 2

My mother is stage 4 metastatic breast cancer that has spread to most of her bones and spine.  I am her caregiver.  I have a brother who is basically uninvolved.  He visits her from time to time but doesn't help with her care.  I also work full time and am gone about 11-12 hours a day and then have to run her household in my "spare" time.  I buy her groceries, do her laundry, take care of her pets, take care of her meds, fill her pill box, schedule all of her appointments and transportation to get her there, open her mail, refill her prescriptions, you  name it, I do it.  I am on call for her 24/7.  When she is hopsitalized, I never leave her size (last time was for 5 days).  Running 2 households is wearing me down and lately she has been mean and snapping at me from time to time.  I have my own home, pets, job, adult childrenthat require my attention too, and I have abandoned all hobbies, gym, etc.   I am trying to find a caregiver support group in my area that works with my schedule.   She has home health check in on her once a week and PT twice a week but that's it. Yesterday at the hospital for a procedure, she told me to stop mothering her but I guess she doesn't realize that I HAVE TO DO THAT.  Her memory is awful and she gets confused frequently.  Additionally, she battles thrush, depression, anxiety and now she has H. Pylori on top of all of that.  I cannot find the balance between bieng a parent and child to her at the same time and I find myself feeling lost and bitter and taken advantage of.  

 

Any words of encouragement would be helpful.  

Comments

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    Been there, done that, survived

    It is exhausting. There is always the thought that you yourself might fall ill and the house of cards will fall.

    What is your mom's prognosis?

  • Catholic
    Catholic Member Posts: 86
    edited January 2017 #3
    There is no balance.  At

    There is no balance.  At least for me, its like a complete overtaking of every minute of my life.  I am completely living someone else's life and occasionally concern myself with my own.  I know its not much of a pep talk yet!

    I know this sounds crazy, but I focused on eating.  Yes eating.  I have, I had, I have had no time for hobbies, fun things, TV, anything.  I live with a person who screams and belittles and otherwise acts like a raging lunatic.  I cant go anywhere or do anything and instead serve.  And it got very frustrating and is frustrating and I ate all the wrong foods.  Then I just stopped eating all the wrong foods and I stick to a very strict diet.  Dark green leafy dinners and baked vegetables and more.  I think Im obsessed with healthy eating now but eating is the only thing I find time to do and now that Im eating healthy for every meal, I feel better about myself even though I am around a miserable person with cancer.  Eating is the one thing you take time for yourself right now.  It might be crazy but make that meal and time with yourself really count and eat very healthy.

    I hope this helps.

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    Catholic said:

    There is no balance.  At

    There is no balance.  At least for me, its like a complete overtaking of every minute of my life.  I am completely living someone else's life and occasionally concern myself with my own.  I know its not much of a pep talk yet!

    I know this sounds crazy, but I focused on eating.  Yes eating.  I have, I had, I have had no time for hobbies, fun things, TV, anything.  I live with a person who screams and belittles and otherwise acts like a raging lunatic.  I cant go anywhere or do anything and instead serve.  And it got very frustrating and is frustrating and I ate all the wrong foods.  Then I just stopped eating all the wrong foods and I stick to a very strict diet.  Dark green leafy dinners and baked vegetables and more.  I think Im obsessed with healthy eating now but eating is the only thing I find time to do and now that Im eating healthy for every meal, I feel better about myself even though I am around a miserable person with cancer.  Eating is the one thing you take time for yourself right now.  It might be crazy but make that meal and time with yourself really count and eat very healthy.

    I hope this helps.

    Yes

    There is nothing balanced about the caregiving life.

    Catholic, your patient needs sedation. Abuse is never acceptable and that's what is happening to you.

    You have taken control of the one aspect of your life no one else can control. Interesting how we do that.

     

  • Catholic
    Catholic Member Posts: 86

    Yes

    There is nothing balanced about the caregiving life.

    Catholic, your patient needs sedation. Abuse is never acceptable and that's what is happening to you.

    You have taken control of the one aspect of your life no one else can control. Interesting how we do that.

     

    Healthy eating has been a

    Healthy eating has been a Godsend.

    My wife is nuts and that's a generous way of putting it.  She literally lives in the basement all day.  Gets up around 5pm and goes out to eat at some fast-food place.  Then comes back and goes to the basement.  We walk on egg shells to avoid her and I take care of the kids.  What really grinds on me is her family absolutely walked away from this mess.  We visited her sister in the summer and her sister spinned everything back on me that "only you can help her" and "she wont listen to us".  And I cant help.  If I could, I would but when the person refuses to talk and/or listen, then there is nothing I can do.  Id like to strangle her sister for not helping and dumping this all on me.  

    I, personally, have come a long ways and healthy eating has helped.  When my wife came home from the hospital with our 3rd child, she went to the basement. I literally (not figuratively!!) had 3 kids aged 6, 4, and 1 day old to take care of and an angry wife in the basement who only left to unload anger and then return.  My youngest is now 3 years old and its a miracle I made it this far.  My youngest use to call me "mommy" and called my wife "momma".   With persistence, I convinced her to call me dad and she does now.  In the fall Im putting her in a pre-school in the mornings and Im taking the mornings off. 

    My wife though is nuts.  She will be in good spirits one day and come upstairs and want to see photos and learn about what has been happening.  The kids are all happy and everything is peaceful.  Then the next day she is ready to kill someone and all of her anger is directed to me.  She goes through the same list of issues "you dont respect because Im a woman" (not true but she wont let me speak), "you only think about your money" (not true again), "you took the kids away from me" (not true she moved to the basement, get out of the basement and she can visit but she wont let me speak), "I so regret marrying you" (same here) and then she just keeps going down this negative path with more accussations none of which are true.  I cant begin to list the accussations leveled against me.  Her best is "even a broken clock is right twice a day" which is true but the clock is wrong 99% of the time.

    Eating healthy has keep me sane.  I buy and eat dark green leafy stuff like you wouldnt imagine.  I encourage you to eat healthy.  If you live in Wisconsin, stop by and I'll make you a great meal and swap stories.

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    Thanks

    For the invitation but Wisconsin is a long way from Alabama!

    It makes me sad a young person finds himself in the situation you do.

    What is your wife's prognosis?

  • Sharmaineice
    Sharmaineice Member Posts: 2
    edited January 2017 #7
    I know the feeling.

    Hello everyone, this is my first time posting but I have been a member for a while. I too feel overwhelmed. I am my mom's only caregiver. I have two sisters and one brother. None of them have done a damn thing for her. I am doing everything while they sit back and watch without a care in the world. I live in a three family house, I am on the third floor, my mom and 29 year old sister lives on the second floor. My oldest sister lives on the first floor. But they are worthless! My brother lives in Virginia, when he came to visit he was in basement drinking with his friend the whole time. They haven't even offered to do a damn thing to help with her care. The 29 year old cares more about her boyfriend than she does my mom. my oldest sister is a piece of **** she lies all the time about everything. Both of my sisters' use my mother's cancer to get attention for themselves. Its a damn shame. My brother doesn't give a damn at all. My mother defends them and makes excuses for them.

  • Catholic
    Catholic Member Posts: 86

    Thanks

    For the invitation but Wisconsin is a long way from Alabama!

    It makes me sad a young person finds himself in the situation you do.

    What is your wife's prognosis?

    I dont know her prognosis.

    I dont know her prognosis.  She wont tell me.  She was Stage 2A and HER2+ and the HER2+ meant something and Im not sure what.  She went through almost a year of chemotherapy and it was actually very peaceful for us.  We rarely saw her for that year.  She slept.  Then the chemotherapy stopped and the clinic gave her medicine to take for the next 5 years.  She was in good spirits for a few weeks as her hair grew back.  Then she started to get angry about little things but we were going to visit her parents and sister and I had the trip planned for several months.  She never took the medicine the doctors here gave her.  She was angry for much of the trip and I was hoping she was going to stay with her family.  But she refused.  We came back home after 1-month just in time for school to start and for the past 4 months, she has been angry every day.  She wont let me speak at all.  If I say or ask anything, she gets angry and starts shouting and leaves and goes to the basement (and then there is peace!).  I have no idea what her prognosis is. She says nothing to me and when I talk to her sister, her sister says things like "its her fate" and "she refuses to talk".  So I get no help from her sister but then again, she never helped in the past either. 

    Before she ever stepped foot in a clinic, she lived in the basement and was angry all the time.  In the past though, she called the police on me and accused me of something bad from "beating the kids" to "beating my wife" to "beating the (pet) dog" all of which were untrue but created a tremendous investigation into my life and a huge smoke screen for her life.  Social services, police, humane society all investigated me for abuse (and not the accuser!!).  I was preparing divorce and talked to a divorce lawyer because the level of anger she had was off the charts.  But then her sister visited and got her to go to a clinic and she was diagnosed with cancer and I held back divorce.  But she is as angry now as she was then, she has new, more exciting (and ridiculous) accusations about me and its January, 2017.  She stopped chemotherapy in June of 2016.  Its been 6 months and we are right back where we were.  No change.  No progress.  She refuses to take the post-chemotherapy medicine the clinic gave her.  She lives in the basement all day/all night and she works herself into an anger all the time and just uploads. There are brief times where she is okay and calm.  Whenever there is a positive, a plus, and good day like Christmas eve and Christmas day, the next many days she is depressed, angry, and wont calm down.

    You tell me from someone who has been through this before me. What is my future?

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    edited January 2017 #9
    First of all

    Yes, I have been through some rough times but our children were grown. Your first allegiance and responsibility is to them.

    Your future is establishing a peaceful, safe life for your children.

    Why not see a therapist, Catholic? Someone who can help you with perspective?  Because as much as I believe marriage is a sacred thing, I'm going to tell you to get out for the sake of the children if not for yourself.

  • gcrich677
    gcrich677 Member Posts: 7
    Can relate some

    Bratgrrl1, I'm so sorry to hear of your struggles.  I also am a primary caregiver to my Mom (mostly just elderly) and my husband who has some serious issue including multiple cancers in the past.  I also work full time and feel like I can't stop to take a breath.

    You are a very good person doing all the things you do. I'm sorry you get the brunt of her anger. It sounds a lot like my Grandma when I was her caregiver and legal guardian due to her dementia.  When I had to move her to a nursing home she told me there was a special place in h___ for people like me.  I knew she didn't understand but it can be overwhelming at times to do so much and get treated so poorly in return.  My prayers are with you and I hope you take some time for you along the way.

  • mcrhoutsong
    mcrhoutsong Member Posts: 4
    Hang in there!

    HI! Hang in there. My mom moved to be near me. Never thought that would happen. Hate that Cancer was the push to do it. However- I have had my life turned on its ear as well. She's divorced. So, my hubby and i are the main support. I am there for everything for her. And having to be the center of balancing everything and everyone. I read your note and my heart went out to you. I'm not doing as much as you, but I know its coming. I am feeling the stress. I would give you a hug if I could. Share a smile. A knowing nod. Hang in there. You are not alone!