Adénocarcinome endometriale stage4 with nodules in peritoneum

Sandrine04
Sandrine04 Member Posts: 76
in Uterine/Endometrial Cancer #1

Hello

My name is sandrine. i am french. i am 40 

I have a adénocarcinoma endometrial stage4 because i have tumor on peritoneum.  I had surgery but failed because the tumor was too large. So I had chemotherapy to decrease the lesions.( cisplatine, adriamycine and endoxan)

It's very difficult but after 6 cures,  The surgeon decides to operate again. Unfortunately he sees that the diaphragm also to nodules. Surgery is still impossible

Now I will still have chemo(carbo taxol)...

I am very afraid.  Who had the peritoneum with lesions?

Scuse for my english... 

Kiss 

 

 

 

Comments

  • BC Brady
    BC Brady Member Posts: 70
    #2
    Sandrine04

    Try not to get ahead of yourself - do you know what I mean? It sounds like you did respond at least somewhat to the chemo you had, and it's not uncommon to have nodes involved. I, too, have stage 4 adenocarcinoma, 2 years and 9 different chemotherapies in that time, and surgery. Everything has had mixed results - some regression and some progression. But - I am hanging in there! We can make it! There is new stuff happening everyday - our cancer is very similar to ovarian cancer so some of those advancements may work for us, too. I am preparing to be in a trial now - called the NCI MATCH Trial. Please ask your oncologist about it. It is nationwide and has 24 different "arms" to the study. They test your genetic mutations and the chemo is targeted directly to the mutation you have. Whatever is available to you, don't be afraid to ask questions or get a second and even a third opinion. You deserve the best! Keep your chin up and know that we are all here for you. XOX

    Billie

  • MAbound
    MAbound Member Posts: 1,175 Member
    #3
    Hi

    Well, your English is a lot better than my French!! ;-) 

    Welcome to our group, but I am so sorry that you needed to find us. I'm not quite in the same situation as you are, but there are others here who are also dealing with advanced stages of this cancer like you and I'm sure some of them will respond with their stories when they see this thread. You'll see that there is still reason to have hope in spite of how scary all of this is. 

  • Sandrine04
    Sandrine04 Member Posts: 76
    #4
    To cancer that has not been

    To cancer that has not been operated on?

  • Sandrine04
    Sandrine04 Member Posts: 76
    edited November 2016 #5
    I am alone ?

    I am alone ?

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    #6
    Sandrine04 said:

    I am alone ?

    I am alone ?

    Hope

    There is always hope And,you are not alone.   New treatments are becoming available all the time.  We are all so different. I did have surgery 4 years ago, but it has returned to a number of different places that are not operable.  It has been treated with several different types of chemo.  Taxol /carbo worked for quite awhile.  Doxil worked on small tumors, Avastin worked very well until I had a major reaction to it.  I am now on an immunotherapy drug and it may be,working.  Don't give up hope.  It has been four years for me with stage four and,I am still here.  I have many more good days than bad.  And I plan on having many more good days ahead.  Sending you many Hugs and prayer.

    Lou Ann

  • Sandrine04
    Sandrine04 Member Posts: 76
    edited December 2016 #7
    Lou ann

    Thanck you

    I am very afraid.. 

  • Kvdyson
    Kvdyson Member Posts: 790 Member
    #8
    Don't give up, Sandrine. That

    Don't give up, Sandrine. That chemo (carbo/taxol) is the standard treatment here is the US. And there are a lot of non-surgical options for you if it doesn't work. You are not alone. We are here with you. ((Hugs)) Kim

  • Nellasing
    Nellasing Member Posts: 528 Member
    #9
    Sandrine04 Visualize a Great Future

    Someone shared this with me and I often revisit it- hope it helps you- "Every thought we think is creating our future."  We frequently run a mental movie of the future as we hope it will be or as we fear it will be.  With conscious attention, we can choose what is in that movie.  Choose to visualize a great future.  Practice getting that movie back on a positive track whenever your mental movie of the future starts to focus on possible negative outcomes.  Holding the mental imagine of a great future is the first step to creating that future."

    Stay in today- don't get too far out into the future.  See the things today that bring you joy, comfort, hope, peace, beauty, love- look for the blessings and give that your focus and attention.  The medical side will play out however it will but in the meantime you can lessen that fear by facing it with courage and faith that TODAY you are alive - what will you use your precious time on?  You are stronger and more able than you can even imagine Innocent

    Prayers for you and (((HUGS))) you are definitely NOT alone <3<3 Keep coming back here we are here for you!

  • Sandrine04
    Sandrine04 Member Posts: 76
    #10
    BC Brady said:

    Sandrine04

    Try not to get ahead of yourself - do you know what I mean? It sounds like you did respond at least somewhat to the chemo you had, and it's not uncommon to have nodes involved. I, too, have stage 4 adenocarcinoma, 2 years and 9 different chemotherapies in that time, and surgery. Everything has had mixed results - some regression and some progression. But - I am hanging in there! We can make it! There is new stuff happening everyday - our cancer is very similar to ovarian cancer so some of those advancements may work for us, too. I am preparing to be in a trial now - called the NCI MATCH Trial. Please ask your oncologist about it. It is nationwide and has 24 different "arms" to the study. They test your genetic mutations and the chemo is targeted directly to the mutation you have. Whatever is available to you, don't be afraid to ask questions or get a second and even a third opinion. You deserve the best! Keep your chin up and know that we are all here for you. XOX

    Billie

    Billie

    Thanck you for give me your opinion.  it's difficult for me to speack about cancer heure because i am french and my english is not perfect.

  • Sandrine04
    Sandrine04 Member Posts: 76
    edited January 2017 #11
    Avastin

    I dont no that avastin is possible for endometrial adenocarcinoma ?

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited January 2017 #12
    Sandrine04 said:

    Avastin

    I dont no that avastin is possible for endometrial adenocarcinoma ?

    Yes to Avastin

    I have Serous Pappillary Endomedrial andocarcinoma and I was on Avastin for awhile, in fact it was the genomic match for me.  It was working very well for me.  My CA 125 was dropping and a CT scan showed shrinkin.  I had to stop it because I ended up with one of the rare but serious side effects.  

    Hugs and prayers, Lou Ann

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