Another brother dx'd.

camul
camul Member Posts: 2,537
in Breast Cancer #1

One of my brothers moved back here a little over a month ago

and was not feeling well so he went to new doctor, did blood work sent him to the Cancer Center.  He was dx'd w/ stage iv  non-hodgekins lymphoma.  Another brother has CLL and non hodgekins Lymphoma but a different sub-type.  The bro just dx'd has one of the rare subtypes.  My sister was dx'd with bc a year ago, and another brother with Lung. He is now following thru because his lungs are bleeding. That is 4 terminal (if the one with the lungs follows thru and gets a complete report), and then a sister who is cancer free at this time.  My brother here is getting  his gene tested to see which cell is regressive?  Dr figues with half of us stage 4, (one brother died of bladder cancer at 53, my mom had malenoma, but passed from head and neck cancer, there must be a recessed gene that is weakening our immune systems.  My insurance denied the tests.  It will not help my brother here, but if they find it, it could help 5 remaining siblings as well as nieces, nephews  grand babies etc.  It is in the same family as my sons ET!

Does it ever stop!  

Comments

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #2
    I am overwhelmed by all of this

    Carol I can NOT imagine what your family is enduring.  I will keep them all in my thoughts and in MY prayers.  so so so very sorry for all of you - 

    blessings for all Vicki Sam

  • tufi000
    tufi000 Member Posts: 745 Member
    #3
    This is too much

    So incredible! So you and your family are also born with the skills to handle this too? Is that small advantage in the genes too? If only some docs would see this as a great source for investigation.

    I also have an extended family history. As a teen, our generation would joke, you will either start the battle in your 40's, die before 60, or if you make it past 60 you are in the clear and will get to 75-85-100. If only we had all gotten my grandpa's genes where he and all 4 sisters lived to over 100 and vital the whole way.

    Seeing your post, I realized that spending so much time with my parents in every hospital in the city since I was 17 may have given me an advantage too.

    All good stuff for you and yours Ninja

    Sherry

  • tufi000
    tufi000 Member Posts: 745 Member
    #4
    Had to Addthis

    When a family member decides to go to the doctor and people outside the family say...Don't worry, everything will be fine,  you know that isn't true.

    Love ya

    Sherry

  • Apaugh
    Apaugh Member Posts: 850 Member
    #5
    So sorry for all your heartache and worries...

    I too am from a "cancer family" is what the docs called it.  It's hard, it is stressful and it is depressing.  My heart breaks for you.  I know how this feels all to well.  I remain fighting and will continue to do all I can.  Prayers for peace, understanding and the genitic mutations to stop.  Praying for you and all families who go through this.  Hugs.

  • Sasu
    Sasu Member Posts: 39
    #6
    Another?I

    This is happening wayyyyyy too often. Please tell me someone somewhere is paying attention to all the families like this.  I do not have the numerous cancers showing up in my family. There is just me.......and a grandson with an extremely rare bone cancer ( we were told he's the 13th to be diagnosed with it....ever....worldwide).  No one else in the family.....so far.   Your family is another one to be follwed by a host of Doctors to figure this out.  I keep telling people to not buy the cutsie stuff to represent the cancers and just donate to the research.  Ach!!!   It needs to be cured!!!!!!!!

    hugs.

    i am climbing off the soap box now.........

  • camul
    camul Member Posts: 2,537
    #7
    My brothers doctor is doing the gene testing

    She figures as mine did that we have a suppressed gene somewher.  My ins denied it, and my sister had some gene work done but no results yet.  There has to be something. Like Sherry, my moms family had longevity but with cancer.  Most were in their 80's, all but 2, it is us cousins who are getting it early and not surviving.

  • tufi000
    tufi000 Member Posts: 745 Member
    #8
    camul said:

    My brothers doctor is doing the gene testing

    She figures as mine did that we have a suppressed gene somewher.  My ins denied it, and my sister had some gene work done but no results yet.  There has to be something. Like Sherry, my moms family had longevity but with cancer.  Most were in their 80's, all but 2, it is us cousins who are getting it early and not surviving.

    Hmmmm

    It's like any big picture.  Seems obvious to most of us, but nobody cares unless they will make some money from it

    Love you Ninja.  Hope you are still laughing Babe!

    Sherry

     

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