stage 3 cervical cancer

Our timing seems about the same - but I was stage 4. I get leg twitches every night and sometimes I look like I have parkinsons because I just have to shake my right foot. I also get foot and leg cramps that are wild. After radiation, I had an illiostomy and recently I developed hemoragic cystitis. I have been in the hospital 3 times since December, and have had 11 pints of blood. When I got blood the leg cramps went away. I am thinking that blood chemistry may be involved...get your blood checked with particular attention to potassium and magnesium levels. Supplements may help but you may need medical intervention. Oh, by the way, I go to get my illiostomy reversed on 4/16 (if I can keep the bleeding down till then) wish me luck. I want to dance April 27 and I want to visit my granddaughter in Arizona in May!!I will if I want to! Hang in there--

Feb. of this year was my last treatment. I also had stage 3. My legs do hurt also, along with my arms, but that is normal, they tell me. You have to be very positive and tell yourself that you are not going to give up. I wake up every day and thank god i am alive. grann77198

Dear JaneyB.,
I was diagnosed with cervical cancer in March of 1998. I had radiation therapy and a radiation implant. My cancer came back in June of 1999. My doctor said he would give me chemo until it was no longer working for me. I had two treatments with him. I then went to Fox Chase Cancer Center. The doctor there said he thought he could help me. I has surgery. A tube and ovary were removed. I then had chemo until March of 2000. My last check-up, they found something in colon. I need colonoscopy. Haven't had it yet. Anyway, about the legs. My legs are very, very weak. I don't know if it is from the chemo or not. I find it hard to even carry anything or take anything up steps, like groceries. I also have numb feet from the chemo. Hava a hard time. But, after 4 and one-half years, I am still ok.
I just worry about it coming back myself. But I try to go on with living. Hope you feel better. Try to be relaxed.
Fran

franv said:

Dear JaneyB.,
I was diagnosed with cervical cancer in March of 1998. I had radiation therapy and a radiation implant. My cancer came back in June of 1999. My doctor said he would give me chemo until it was no longer working for me. I had two treatments with him. I then went to Fox Chase Cancer Center. The doctor there said he thought he could help me. I has surgery. A tube and ovary were removed. I then had chemo until March of 2000. My last check-up, they found something in colon. I need colonoscopy. Haven't had it yet. Anyway, about the legs. My legs are very, very weak. I don't know if it is from the chemo or not. I find it hard to even carry anything or take anything up steps, like groceries. I also have numb feet from the chemo. Hava a hard time. But, after 4 and one-half years, I am still ok.
I just worry about it coming back myself. But I try to go on with living. Hope you feel better. Try to be relaxed.
Fran

information?

Hi, what did you use for the burning sensations in your vagina area? I have been using vaseline and aquaphor, it doesnt help much. I could sure use some relief, my cancer Doctors say there is no numbing medicine that I could use for some relief. So if you have any advice I could sure use it.

Thanks in advance

Marilynn

marilynndrake said:

cervical cancer stage 3C1

Hi, Im trying to find some information on what to use for radition burns on my vaginal. I have severe pain and burning sensations when I go to the bathroom. I have been using lots of vaseline and Aquphor, but it only helps a tiny bit. Any suggestion?

Miss marilynn, you have

Miss marilynn, you have tapped in to an older thread here on the board.  If you see the dates of the posts in the upper right hand corner of the block you will see it has been a few years.  I am a Uterine cancer survivor and visit the other boards of the 'below the belt' cancers to check in on the women there and see how they are doing.  This board can be a little slow sometimes but your pain is now, I would suggest visiting the Uterine board (those ladies have been pretty active - it kind of goes in 'waves' sometimes) or to ask other women who have similar experiences as you, you might want to try the Naitonal Cerivical Cancer Coalition www.nccc-online.org as they have a chat board there as well.  I hope the link I attached worked but I have found that some setting at CSN has changed and they don't always post correctly after I hit "Submit".

It is in the note, but try

It is in the note, but try this:  http://www.nccc-online.org