fatigue hell

bevy01
bevy01 Member Posts: 7
in Breast Cancer #1

Hi Im new here.

Finished active treatment feb this year. had op, removal of left breast and 19 lymph nodes then 6 rounds of chemo plus 15 rads.

Im doing more than i was and getting some sort of routine again. managing own housework and looking after son as a single parent. But the fatigue is crippling at times. Is this normal with most ? I do get out and enjoy walking when i can . i do so well than massive slump and the fatigue brings me right down mentally . also suffer from water infections , bladder discomfort, aches and pains, pins and needles in hands , hot flushes and the list goes on .

anyone else at similar stage that could advise or reasure please .

 

many thanks

bev

Comments

  • karlawel
    karlawel Member Posts: 12
    #2
    Fatigue

    Hi Bev,

    I had my chemo Feb-June of 2015 and radation after that and I still have fatigue also.  I don't know if I will ever be the same, but I think it does bet better.  There is another site for breast cancer fighters.... it is called My breast canter team and below is the link to the site.  Good luck and prayers for you and your family.

     

    https://www.mybcteam.com/users/sign_in

    Karla

     

     

  • peony
    peony Member Posts: 306 Member
    #3
    I finished chemo in Feb also,

    I finished chemo in Feb also, and radiation in May of this year. There are times when I accomplish a lot and I move around pretty energetically, but other times, I'm almost immobilized. I think the periods of fatigue are becoming fewer and farther between, so I don't worry about it.  I just do what I can when I can and don't feel guilty when I'm tired. There was a time when I was exhausted ALL the time.  Best wishes.

  • Deanie0916
    Deanie0916 Member Posts: 626 Member
    #4
    Common thing

    Hi congratulations on completing treatments! I was under chemo and radiation for about 5 months total and the fatigue kept on coming for a good six months after, if not more...try to be patient with yourself, it will get better. God bless you!

  • Losa
    Losa Member Posts: 7
    edited November 2016 #5
    Fatigue

    Congratulations on finishing treatment!  i completely understand what you are saying. It is so draining to feel exhausted and stressed all while trying not to be exhausted and stressed!  every week, mid week I would hit the wall. it's very depressing, you've been through so much.   We are all different, but I hit the 1 year post-chemo mark and found some of the fatigue lifting.  Be patient with yourself, rest when you can, continue walking and be kind to yourself!  Best wishes.  

  • Teach76
    Teach76 Member Posts: 354 Member
    #6
    Share your frustration

    I finished treatment in July (chemo, surgery, Rads) and began anastrozole.  I also went back to work full time in September.  Some days it's a struggle just to get home after a full day.  Hip pain almost daily, and I have a sore/hoarse throat that has no visual cause.

    I was sent to a nutritionist who said I needed to hydrate and eat, eat, eat to fuel my day.  My radiation oncologist also said the anastrozole can cause fatigue.  You did not mention if you are on any hormone therapy - that may be a cause.

     

  • bevy01
    bevy01 Member Posts: 7
    edited November 2016 #7
    Teach76 said:

    Share your frustration

    I finished treatment in July (chemo, surgery, Rads) and began anastrozole.  I also went back to work full time in September.  Some days it's a struggle just to get home after a full day.  Hip pain almost daily, and I have a sore/hoarse throat that has no visual cause.

    I was sent to a nutritionist who said I needed to hydrate and eat, eat, eat to fuel my day.  My radiation oncologist also said the anastrozole can cause fatigue.  You did not mention if you are on any hormone therapy - that may be a cause.

     

    hi thank you for your answer

    hi thank you for your answer ...i cant have hormone therapy...

    HER 3 negative . feeling very much "left to it" its very hard after leading such an active life eh. But grateful i can get around and do what i do. i managed some volunteer work ....not many hours but something this week. very light duty sat in chair duties but something .

    x

     

  • bevy01
    bevy01 Member Posts: 7
    #8
    Losa said:

    Fatigue

    Congratulations on finishing treatment!  i completely understand what you are saying. It is so draining to feel exhausted and stressed all while trying not to be exhausted and stressed!  every week, mid week I would hit the wall. it's very depressing, you've been through so much.   We are all different, but I hit the 1 year post-chemo mark and found some of the fatigue lifting.  Be patient with yourself, rest when you can, continue walking and be kind to yourself!  Best wishes.  

    Thank you. its good to know

    Thank you. its good to know im not alone with this and seems so many others the same fatige way and generally most say it lifts a bit on one year mark so thats good to hear .

    I have learnt the hard way to be kinder to myself and on a pamper eve tonight .....hot soaky bath and all if my son allows lol and a day to myself tomorrow to veg and rest x  

  • bevy01
    bevy01 Member Posts: 7
    edited November 2016 #9
    Teach76 said:

    Share your frustration

    I finished treatment in July (chemo, surgery, Rads) and began anastrozole.  I also went back to work full time in September.  Some days it's a struggle just to get home after a full day.  Hip pain almost daily, and I have a sore/hoarse throat that has no visual cause.

    I was sent to a nutritionist who said I needed to hydrate and eat, eat, eat to fuel my day.  My radiation oncologist also said the anastrozole can cause fatigue.  You did not mention if you are on any hormone therapy - that may be a cause.

     

    wow ....you work full time! i

    wow ....you work full time! i really couldnt imagine even managing 16 hours like i used to yet. i dont get paid sick but on benefits atm luckily that gets me and my son by but all such a worry x

  • bevy01
    bevy01 Member Posts: 7
    edited November 2016 #10
    Losa said:

    Fatigue

    Congratulations on finishing treatment!  i completely understand what you are saying. It is so draining to feel exhausted and stressed all while trying not to be exhausted and stressed!  every week, mid week I would hit the wall. it's very depressing, you've been through so much.   We are all different, but I hit the 1 year post-chemo mark and found some of the fatigue lifting.  Be patient with yourself, rest when you can, continue walking and be kind to yourself!  Best wishes.  

    thank you 

    thank you 

    i totally get that mid week thing....sunk so low yesterday and today i surprised myself as felt bit better , trying to figure out what was different.

    had a walk in morn then vol work small amount followed by lunch and a giggle with a dear friend then another walk home . im thinking a walk after a lunch maybe a good plan....and nutrition wise i didnt have crisps or anything sweet at lunch. defo a lot down to what we eat/ drink. i find i have to drink a lot which then leads to too many loo visits ,,,,,even my mum says " wow you only just been for a wee and now having another " lol

  • bevy01
    bevy01 Member Posts: 7
    edited November 2016 #11
    Teach76 said:

    Share your frustration

    I finished treatment in July (chemo, surgery, Rads) and began anastrozole.  I also went back to work full time in September.  Some days it's a struggle just to get home after a full day.  Hip pain almost daily, and I have a sore/hoarse throat that has no visual cause.

    I was sent to a nutritionist who said I needed to hydrate and eat, eat, eat to fuel my day.  My radiation oncologist also said the anastrozole can cause fatigue.  You did not mention if you are on any hormone therapy - that may be a cause.

     

    hi 

    hi 

    im on no meds appart from paracetemal ibrufan for pain . and propolonol for anxiety.....now theres another thing , anxiety Frownx 

  • bevy01
    bevy01 Member Posts: 7
    #12
    karlawel said:

    Fatigue

    Hi Bev,

    I had my chemo Feb-June of 2015 and radation after that and I still have fatigue also.  I don't know if I will ever be the same, but I think it does bet better.  There is another site for breast cancer fighters.... it is called My breast canter team and below is the link to the site.  Good luck and prayers for you and your family.

     

    https://www.mybcteam.com/users/sign_in

    Karla

     

     

    thank you i will have a look

    thank you i will have a look at that site . very kind of you . and best wishes to you and yours x 

  • Iris_G
    Iris_G Member Posts: 50 Member
    #13
    Hi Bevy!

    I, too, had 6 rounds of chemo with my last one in February and 30 rounds of radiation in April/May of this year.  I was diagnosed last July, took 2 weeks off for surgery (just had a lumpectomy with 3 nodes removed), but I've continued to work through this whole process (some weeks working 50-55 hours).  Needless to say, I didn't work that much during treatment weeks.  There are some days I just had to crawl out of bed and almost crawl to work!  But I made myself do it...just to feel normal.  I thought if I just kept working I was normal, even though I was bald and just wanted to go home and lay in my recliner!  But now that I've had my last Herceptin treatment 3 weeks ago, I can feel some energy coming back!  Some days are good, some days I could sleep or lay in my recliner forever!

  • otessa63
    otessa63 Member Posts: 1
    edited November 2016 #14
    Fatigue

    Hi...I finished my chemo in May of this year after having a right mastectomy in December 2015. I'm still dealing with fatigue. Sometimes I just want to lay in bed and sleep. Sometimes just stay at home and do nothing. Somethings walking into work is a chore. Is this normal this far out? I so want to be back to "me" and it's just not happening. Anyone else experience this 6 or more months out of chemo. No rads.

  • Apaugh
    Apaugh Member Posts: 850 Member
    edited January 2017 #15
    so tired...

    You never go back to your old self.  You find a new you, a new normal.  When I first started this trip, I thought I would be up and running in a month.  HAHA!  It is now 11 months into it and I am still not finished.  Officially, I will get my last treatment mid Aug.  Then they tell me, it will take a year to start feeling better.  So dont beat yourself up.  Accepting it is the hard part.  Dont give up.  fight.  keep fighting.  your new norm will come.

    Hug, Annie

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