need help understanding MRI report

MY HISTORY

I'm still waiting for diagnosis and see the gyn-oncologist on the 22nd but have elevated CA125 and a TVUS found a 2cm solid, vascular nodule on my right ovary. I have most of the symptoms of OC daily and am BRCA+. I'm 39 and premenopausal.

As the US tech had suggested an MRI in the report, my family dr requested one and I jsut go the results and don't get them. I'm hoping someone here with more experience with these terms can help.

MRI REPORT

"The junctional zone is thickened to up to 16mm posteriorly in keeping with adenomyosis.

They could not find the 2cm nodule but there is a very poorly visualized 1.3 cm region of ill-defined hypointensity on the T2-weigthed images which is not resolved on the T1-weighted images. Certain concentrations of proteinaceous fluid or blood products could conceivably give this appearance, as could calcification. Whether this is what was seen on sonography is uncertain. There is no evidence of a dermoid or endometrioma.

A small amount of free fluid is seen within the pelvis."

QUESTIONS

  1. I had never heard of adenomyosis before. Anyone with experience with this? From what I've read now thanks to google it's not associated with cancer but is cells growing where they shouldn't. Isn't that basically what cancer is? Also, the symptoms of this seem to be very similar to OC. Anyone know of what differences in symptoms to consider? (I have a symptom diary and want to ensure I include everything relevant)
  2. Free fluid in the pelvis is concerning but would the report say if this was ascites or ruptured-cyst fluid? Is a 'small amount' concerning or not?
  3. what is proteinaceous fluid? I've googled it and can find nothing.
  4. How would blood products not be from a dermoid?
  5. Before my mastectomies, I once had a mammogram with calcifications on it and the dr said they could be a sign of cancer or turn into cancer. Is that the same for the ovaries?

I know you all aren't drs but any information you have collected with all your collective experiences would be much appreciated.

 

 

Comments

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,486 Member
    edited November 2016 #2
    madeline, you are right, I am

    madeline, you are right, I am not a doctor and I wouldn't want to begin to tell you something that is inacurate because of my lack of education.  I think these are all great questions for your doctor.  I would ask them to walk you through and explain the entire report.  Perhaps some of the other ladies might know.

  • bluesmama
    bluesmama Member Posts: 125 Member
    edited November 2016 #3
    I'd wait for the gyno-onc for

    I'd wait for the gyno-onc for the official interpretation. Is what you copied and pasted above the radiologist's full conclusion? Usually they use certain terms like "certain" or "probable." I'm not a doctor so take what I have to say as a grain of salt. Based on the terms above, it sounds mixed. Here's what I think will be your next steps. Since you're BRCA+ and young, you have a confirmed vascular mass, your CA 125 is elevated, and you have ascites, you probably have enough indications to warrant a surgeon to take a look inside and probably remove the ovary. It might be just endometriosis but they won't know until they take a look. Unlike other types of cancers, they can't biopsy anything without surgery. Ascites can appear because of inflammation, endometriosis, cysts popping and other organs having problems. Your CA 125 can be elevated because of endometriosis too. All of which are not cancers. Adenomyosis isn't cancer. Proteinaceous fluids indicates you have proteins in your fluids. On its own it doesn't mean cancer but combined with other indications, it is also another indication that would build a case for something worth taking a closer look. The problem with ovarian cancer is there isn't a single indication that definitively confirms cancer. Rather they look at a combination of scans and blood markers like CA-125 to help determine the probability of it and taking action on the sum of these indications. Ovarian cancer symptoms are also vague because they resemble other benign diseases. But it's a good idea to take notes on them to give you a rough idea of when this potential disease began to advance. Having said that, hang in there. I know the worst part of this is the waiting but think of it as a luxury if you can. Waiting means you have time and time is a luxury many of us relish. Good luck.

  • LorettaMarshall
    LorettaMarshall Member Posts: 662 Member
    edited November 2016 #4
    Madeline~The 22nd will soon B here~Can U tape record the consult

     Hello again Madeline:

     My first advice would be the same as those who have written before me.  I do know that if “ascites” were present, it would be defined as such.  My reports often say “no ascites present”.  That’s always a good thing.    So I think you can rule that out.  BluesMama has been helpful, but I would do as she has said, have your oncologist explain all the terms, take notes, write them down as he/she is talking.  And if you don’t understand, just say so.  You need to go home feeling like you know more than when you came.  Now I know that you are in the Canadian health care system, and your doctor’s are assigned to you, but you have been given a date of November 22nd for your consult.  But I don’t blame you for wanting to understand as much as you can before that meeting.  Do you have a friend who is in the medical field?  Do you know any nurses?  While they will be reticent to say anything definitive about your particular case, they should understand more about the “new words” than you do. After all, they have been trained in that field. 

     Strangely enough, I was just reading about both “Adenomyosis” and “Endometriosis” tonight, and I think the references below will enlighten you a bit more.  These are two references that I found helpful in trying to understand your problem, maybe they will give you even more insight into how Endometriosis behaves. 

     We’ll be remembering you on that date.  And try as hard as you can, to find things to divert your attention away from the temptation to live in a constant state of worry.  We’re having some beautiful weather here.  Leaves are turning into shades of gold and red.  I have a grandson that lives in Michigan and he says that it is already turning cold there, so since you’re his neighbor, perhaps it’s already “coat weather” for you.  Try to find something that you enjoy doing right now, and DO IT!  I know the temptation to let worry rob us of today’s blessings, but time is precious, so pick out something you’ve just wanted to do, and do it.  You’re doing all you can for right now.  So try to balance “worry” out with some “positive thoughts” as well. I have to take my own advice.  When I start to figure out the future, and I haven’t even lived to next week and back, the Lord says, “Hey Loretta, get back to today.  It has enough problems.  Why worry about next week.  Only I’ve been there and only I know what it holds for you.”  And He brings me back to the day He has given me which is only one day at a time.  Life’s much more peaceful when I don’t try to delve into the world of the unknown and sink into the worry pit.  That’s an ever-present temptation but it can only lead to despair, so spare yourself some worries, and find something good about today, because really it’s the only day we have. 

     Will be praying for you especially on the 22nd.  So make your list, and then lay it aside, and wait for the answers on that day.

     Love Loretta

     Peritoneal Carcinomatosis/Ovarian Cancer Stage IV

     P.S.  I would suggest you print out all of Reference #2.  There is a PDF booklet on Endometriosis that you can print out.  It is very helpful.  And I always find Mayo Clinic to be a “user friendly” site for a basic understanding of any given condition. 

     1.   http://www.mayoclinic.org/diseases-conditions/adenomyosis/basics/definition/con-20024740

     Definition

     Adenomyosis (ad-uh-no-my-O-sis) occurs when endometrial tissue, which normally lines the uterus, exists within and grows into the muscular wall of the uterus. The displaced endometrial tissue continues to act as it normally would — thickening, breaking down and bleeding — during each menstrual cycle. An enlarged uterus and painful, heavy periods can result.

     Symptoms most often start late in the childbearing years after having children.

     The cause of adenomyosis remains unknown, but the disease typically disappears after menopause. For women who experience severe discomfort from adenomyosis, certain treatments can help, but hysterectomy is the only cure…”

     __________________________________________________________

      2.   https://www.asrm.org/BOOKLET_Endometriosis/

     “…Endometriosis is a common condition that affects women during the reproductive years. It occurs when tissue similar to the uterine lining (endometrium) attaches to organs in the pelvis and begins to grow. This displaced endometrial tissue causes irritation in the pelvis that may lead to pain and infertility…

     Experts do not know why some women develop endometriosis. During each menstrual period, most of the uterine lining and blood is shed through the cervix and into the vagina. However, some of this tissue enters the pelvis through the fallopian tubes. Women who develop endometriosis simply may be unable to clear the pelvis of these cells.

     Early endometriotic implants look like small, flat patches, blebs, or flecks sprinkled on the pelvic surface. The flecks can be clear, white, brown, red, black, or blue. The severity and course of endometriosis is highly unpredictable. Some women may have a few endometriosis implants on the surface of the pelvis, the peritoneum, or pelvic organs, or they may invade the peritoneum and grow as nodules. Endometriosis may grow on the surface of the ovary as implants or invade the ovary and develop a blood-filled cyst called an endometrioma, or a “chocolate cyst.” Chocolate cysts are so named because over time the blood they contain darkens to a deep reddish-brown color. These cysts may be as small as a pea or grow to be larger than a grapefruit. Endometriosis may irritate surrounding tissue and produce internal scar tissue called adhesions. These adhesions can bind the pelvic organs together, cover them entirely, or involve nearby intestines. The adhesions may keep fallopian tubes from picking up the egg from the ovary during ovulation. Endometriosis also may grow into the walls of the intestine or into tissue between the vagina and the rectum…”

    _____________________________________________________________________

    3.   http://www.cancer.net/navigating-cancer-care/side-effects/fluid-abdomen-or-ascites

     Fluid in the Abdomen or Ascites

     Approved by the Cancer.Net Editorial Board, 08/2015

     Ascites is the buildup of fluid in the space surrounding  the organs in the abdomen. When ascites is caused by cancer doctors call it malignant ascites. Malignant ascites is most common in people with the following cancers:

    •  Breast cancer
    • Colon cancer

    • Gastrointestinal tract cancers, such as stomach and intestinal cancers

    • Ovarian cancer

    • Pancreatic cancer

    • Uterine cancer

      Symptoms of ascites

      Ascites often causes a lot of discomfort. People with ascites may experience the following symptoms:

    •  Weight gain
    • Shortness of breath or dyspnea

    • Abdominal swelling

    • Sense of fullness or bloating

    • Sense of heaviness

    • Indigestion

    • Nausea or vomiting

    • Changes to the belly button

    • Hemorrhoids, which causes painful swelling near the anus

    • Ankle swelling

    • Fatigue

    • Decreased appetite…”

    • _______________________________End of references_______________

      

     

  • madeline236
    madeline236 Member Posts: 17
    edited November 2016 #5
    thanks again

    Thanks for this ladies. The 22nd is one week away and so I will bring these questions along (don't know why I didn't think of that). I have been told the dr I am seeing hates all questions as she believes she's the expert and patients should simply trust her decisions, but I can be stubborn when necessary so hopefully I get some answers from her.

    I'm expecting to schedule a surgery on the 22nd and will request to have a salingo-oopherectomy, even if it's seen as preventative. A hysterectomy I will have to discuss with the dr as I'm still on the fence, but leaning towards 'yes'. If they find something, of course, there may be no choice to make.

    Bluesmama - your comment re time being a luxury really put it in perspective for me. You are clearly very wise. Time is precious and fleeting. It is also something I have been wasting lately.

    For the next week, I vow to spend my time planning a summer trip to the Rocky Mountains. I've promised my kids we'd go there one day and planning will give me something positive to do and something to look forward to.